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May 28, 2016 2:07 PM

Hi, I'm Bethany, I'm 18 and I am currently diagnosed with Fibromyalgia and I'm awaiting a possible diagnosis of Ehler Danlos Hypermobility type. My current Doctor (my family is in the midst of switching gp's due to insurance) believes I have both, but said that they are often mixed up and things, so he referred me to a specialist to figure out if I've got one, both, or neither.
I'm currently not in school, I graduated in 2015 and have no current plans of going to college. I'm a part time phone rep at a call center that does medical surveys, and I'm living with my sister, her husband and two children. My pain level prohibits me from working more than 25 hours or so a week, and I can't really afford to live on my own or anything like that. My usual pain level is a solid 4 that goes up and down between 4-6 throughout the day. It's mostly my joints that have been hurting me, and I've been having a lot of difficulty sleeping at night. I'm currently on Celexa 30 mg for depression and anxiety, Temazepam 30 mg for insomnia and Orphenadrine 100 mg for muscle pain/TMJ. Anyway, I'm not sure what I should do anymore, because my pain is really starting to limit me and I fear that I won't be able to support myself. But that's all I have to say for now, thanks for reading!

May 28, 2016 2:18 PM

I'm sorry you are going through all this. Chronic pain so often causes depression since we are limited in what we can do and dealing with pain all day and night. I want to ask you if the Temazepam puts you to sleep and have you tried Lunesta or Ambien? Thanks.

May 28, 2016 2:39 PM

Thank you for replying 💕 I've had depression since I was around 11 years old, and I've tried different meds, but this is the first that's actually worked well for me. The pain really has been depressing, but I'm finally working through it! As far as my Temazepam, it works alright. It doesn't really "knock me out" or anything, but it does help put me in a more tired state. I usually try to meditate as well to fall asleep, but it only helps some of the time. I have tried ambien, multiple times, actually. The first time I did I was about 15, and I had a habit of abusing prescription medications. It never actually helped me sleep then, and even when I took more than prescribed it never made me tired, only got me high. I tried it again a few weeks ago, and though I only ever took the prescribed amount, it did the same thing again. I haven't yet tried Lunesta, But if the Temazepam doesn't make a significant difference, my doctor said he may try that with me.

May 28, 2016 3:55 PM

There is a pill called Doxepin that is an antidepressant that has been around a LONG time. Many docs prescribe that as it works much differently than the others. Trazadone is another that works for many. I only take half an ambien (5mg), otherwise I do things that I have no memory of from cooking to texting to email. My texts and email ramble and sounds like I was terribly drunk when I wrote them. 5mg of Ambien has me asleep in an hour and has continuously worked for several years. Hope you find some good sleep.

May 28, 2016 6:07 PM

Hi there. I too have Fibro and was diagnosed with EDS III hypermobility by a rheumatologist. My daughter is 17 and also suffers from EDS but her type affects her internal organs.

May 28, 2016 8:00 PM

Gregginatl- I tried trazadone for a while before, and it didn't make me fall asleep, but rather it kept me asleep for at least 13 hours. Thank you.

Writermom- I'm glad to hear it's not impossible to have both, though I'm sorry to hear you do. May I ask what kids of EDS your daughter has and how it effects her?

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