Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

I'm new here

Jun 07, 2016 10:43 PM

Hi all
I'm brand new here, chronic pain sufferer for the last year after being injured in a car accident. I was an athlete before the accident and now I have constant pain on my leg and walk with a limp. I now understand that chronic pain is a disease on its own right and I hope there will be more research on this. I'm happy to finally find a place here to talk to other pain sufferers. Even though I have to change my lifestyle considerably because of the pain, I will not let the pain defines me as a person.

Jun 07, 2016 11:26 PM

Welcome to the group! You're going to find lots of encouragement here.

Jun 07, 2016 11:32 PM

Hello exrockclimber, Glad you are on app. Oh, gosh, I really do empathize with you. It must be a whole new life style for you. You have landed with a lot of helpful and caring people. I wish you courage as your journey shifts into unfamiliar territory.
I have had severe nerve pain for seventeen years, actually I think it just turned 18. I have traveled the pain protocol with various doctors &.specialists and am still doing it. Sometimes I get really depressed thinking about what seems like wasted years of my life. I try ver hard to stay positive using my pain management tools and reaching out to those who are so much worse off than I. Other times I just want to hermit and shut everyone out. Then I read a post here and feel ashamed that I am feeling sorry for myself! I get what I need here. Welcome.

Jun 07, 2016 11:46 PM

Thank you guys, it's definitely a very new unknown territory for me. I was filled with fear and truth to be told, I still struggle with it on daily basis. I feel so isolated sometimes and a lot of my friends seem to not understand. My favourite moment was when I was told that it was all in my mind and that I should get over it. Needless to say, she is no longer my friend :)

Jun 07, 2016 11:50 PM

Good for you!! Someone that callous you do not want anyhow.

Jun 07, 2016 11:53 PM

Hi and welcome. With chronic pain you will truly learn who your friends are. It is sad how many of us end up isolated. Try to be socially active as much as possible.

Jun 08, 2016 12:05 AM

Yes - I've actually just started seeing my friends again after 9 months. I now go to restaurants with bar seating so I can stand up during dinner! It's funny how you learn new habits and adapt to it. My (other) friends are very supportive and I love how they joke about my condition sometimes. I think it keeps my sanity to be able to laugh at my pain although some days I just want to stay in bed all day. I'm getting cortisone injection next week, I hope it will help me. I really appreciate all comments, it's really good to know that you're not alone in this journey.

Jun 08, 2016 8:05 AM

exrockclimber, I am sorry that you had an accident that caused you to have chronic pain that has changed your life. You have a good attitude and you'll need that as time goes on when the bad days come and you are fed up. I'm glad to hear that you're not going to let your pain define you. You are NOT your pain, you're you. A person who happens to have daily pain and walks with a limp. You're still you. This is not an easy life and I'm glad that you found this wonderful community. It's filled with really awesome, zany, compassionate, people. We are a family and we pray for one another, give each other a boost when you need it, give each other information and support one another. I have made many strong friendships here and have always been supported and given support when it's needed. I hope you settle in with us and find the support and comradery that you seek.. I also hope that one day there will be a doctor that is able to help you find relief from some of that pain. {{{Hugs}}}💕🙏🏻🌻😊

Jun 08, 2016 3:21 PM

Exrockclimber, I'm so sorry to hear your accident has affected and changed your life so. You've joined a very wonderful and strong support system community, which is better than family! Your positive outlook is an asset to chronic pain living. But if you have days you struggle to find the positive, just let us know. We are all here for each other. Our circumstances of attaining chronic pain varies greatly, but we so totally understand. Allow yourself to grieve the lost activities of your healthier life. It comes, with depression, anxiety, anger, and then some. But you are not your pain, and your pain, while it may restrict your activities, it cannot defeat you unless you let it. I've learned so much from others here, and tried suggestions. Not everything works for everyone. But with time you will find your best methods for coping & living with chronic pain. I've had cortisone injections (injx) in one, foot, & shoulder joints. And I've had epidural steroid injx (ESI's) all down my spine. Two pieces of advice: (1) on joint injx, move the joint randomly to prevent stiffness pain, & ice for swelling internally (24-48 hrs); (2) ESI's, ice the injx area 24-48 hr, and rest. You may hurt worse at the injx site the first few days, but it should be improved after the injx pain goes away. Hugs & prayers the injx work well to reduce your pain! 🙂💕🙏🌼

Jun 08, 2016 3:23 PM

(injx) in one, foot = in knee, foot, & shoulder... lol you will see lots of autocorrect errors in the forum! 😁

Jun 09, 2016 12:54 AM

Welcome! I have found so much strength, support and healing in this group and I'm a relatively new member as well. It was a parking lot bully that had me seeking emotional support. Chronic pain for me for 15 years, though I had a 4-year break during pregnancy/breastfeeding. Pain doctor told me that my pain was covered by Oxytocin. So now I just need to find that in a pill form and I'll be good! haha

Jun 09, 2016 12:58 AM

I haven't been here long and have found great support too. Its nice to talk to others that actually get it. You had a break in pain during pregnancy and breastfeeding? I wonder was it hormones? I haven't had a break with either instance.

Jun 09, 2016 1:06 AM

Yes, what a gift! I even walked around Legoland while pregnant. I thought I was "cured". Now I can only walk a few steps, without a flare. Within a week after weaning, my pain came roaring back. More specifically my foot pain. My back pain and other joints had already restarted, but my foot pain seems to be a nerve pain while my other joints are tendon, stiff and unstable. Yes, it's so nice to be able to share, know I won't be judged, or have to explain as much as to someone who hasn't felt chronic pain before. A lot of times I am just so exhausted, physically and emotionally, I don't say anything when I am in pain. It's quite isolating, and such a relief to know I'm not alone!

Jun 09, 2016 2:18 AM

Thank you guys. I can't tell you how much I appreciate the comments. I was telling my partner who suffers from chronic pain for 25 years about this app but because he is not on smart phone, he can't access the app. But he thinks it's the best thing ever.

Jun 09, 2016 11:30 AM

This is the best thing ever! You can learn so much by talking to others. Its great!

Ready to start relieving your pain?

Join Community