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CatchMyPain Community and Pain Diary App to manage chronic illness

I'm new here, struggling with pain

Feb 13, 2017 7:16 PM

Hiya, I've just downloaded this app so still getting the hang of it. I'm 22, I live with chronic pain but I don't have a diagnosis (FMS has been mentioned and I think it's pretty likely that's what I've got). Every single day is a struggle. I have to take it hour by hour instead of day to day because getting through a day seems impossible. I smoke cannabis for pain relief (it's all that helps, I have a morphine patch and other analgesics but nothing works) and I've had to quit it today as we just can't afford it and I'm so scared of trying to get through a day without getting some relief at the end. I'm struggling so bad. I have two young kids and a husband and they need me but I'm useless. My flat is a bombsite, I can't get down and play with my kids, I can hardly have a conversation with my husband without snapping at him because I'm just so sore. He's amazing and understands but ugh. I just don't know what to do. I can't live the rest of my life in this pain. I just can't. Thanks for reading if you got this far. Sorry for the essay.

Feb 13, 2017 7:28 PM

Hey. I'm only 21 and I've been struggling with fibro. I was about 16 when the pain started and I just got diagnosed with fibro last month. I hope you find something to help with your pain, I've recently tried doing light exercise but it's hard getting past the first 2 or 3 weeks. I failed to fight through the pain but I figured maybe you could try it, I have heard not to stretch before exercising and drink alot of water. I really hope this helps you. I also snap at my boyfriend when I'm in pain and luckily he understands.

Feb 13, 2017 7:36 PM

Hello and welcome, sorry your in so much pain and i hope you find the support and help you need here.

Feb 14, 2017 5:18 AM

Hi Dale and welcome to the crazy family 😉 I've found sometimes the craziness is all that gets me thro the day!
There are great people on here, all are very supportive and caring, and there is a whole lot of knowledge on different things to try that might help.
Everyone is from all over the globe so you'll find people answer in their time zones or people like me who struggle to sleep will answer whenever we're awake!!! Lol
It's hard not being well and having children makes you feel even worse but that doesn't mean you're a bad mum, it just means sometimes we've got to get a bit creative in how we play....do you have a table and chairs? You could all sit at the table and do arts and crafts, lego/duplo depending on how small yours are. Read to them while you're all snuggled on the sofa or in bed and little things like that, as long as you spend a little time where you can as that's all they want is you focused on them.....tidying up can wait there's always time for that later and pace yourself when cleaning. I've found 10-15 minutes cleaning then 10-15 minutes break, one room a day and get the kids to help, make it a game - how many socks can they pick up off the floor, how good can they wipe the coffee table, how quickly can they pick all the toys up off the floor and little things like that.
It's hard not to snap at people when you're in pain, if you can try to say to him that you don't mean to snap but the pain gets the better of you but you love him and your thankful you've got him and you appreciate that he's there and helps you. Just saying how thankful you are to have him will go a long way and let him know you don't take him for granted.

Have you tried any alternative therapies or a tens machine? Do you take vitamins and minerals that can help a little? Epsom bath salts? Magnesium spray?

Feb 14, 2017 8:32 PM

Hi Dale, Sezzy's right! I've been in pain since 1965 or 67 and diagnosed with fibromyalgia since I was 19 in 1981. For those doing the math I'm almost 55 now, and I didn't end up disabled with it and a host of other conditions until after I had my kids in my 30's so I know where you are coming from feeling like you can't keep up with them and always exhausted and snapping.

Take a deep breath. Take another deep breath every time you want to snap because you are in pain at your kids or your husband. This is NOT all you want them to remember of you or see. My mantra was always a story my husband told about my son and a hospital visit I had to take early in my disability. He asked my husband, "Are they going to take the mean out of Mommy?" From that moment on it became my goal to not expose friends and relatives to that.

I soak in Epsom salts, in a bath. You can pick them up at the dollar store and 1/2 cup with some menthol and mint will help sooth aches. Aspercreme can help as well. Lidocaine and heat patches. Ace bandage wraps over hurting joints.

For the kids spending time cuddling, building blanket forts, reading or singing them to sleep, or talking to them every day after school. And the house has to go hang most of the time. If you can't sit and direct, or do it in 15 minutes when you have energy ( or spoons, look up "the spoon theory" online) then it doesn't get done by you.

Good luck Dale! Hugs.

Feb 15, 2017 4:43 AM

Thank you so much for the replies and kindness. My mum got me awesome Epsom salts and I use them a lot. I do thank my husband regularly and I try to swallow my pride and apologise when I'm shitty with them. My kids are only 1.5 and 3 but already they know if I tell them I can't do something because I'm sore they're fine with it. I'm very lucky. That 15 minute rule thing is great, I'll try to stick to that. I find exercise exacerbates my issues but I'll try to find something that helps. Thanks again :)

Feb 15, 2017 6:02 AM

Welcome to the Mad Squad Dale, everyone on here will help as much as they can with advice and suggestions.
The housework will be there when you're not so leave it. Spend what time you can with your children and your husbby. Make sure that you have time for yourself to rest.
In some respects I'm lucky my chilrdren are grown so I don't have that worry.
Anytime you want a rant hop on here, we will all listen 😊

Feb 15, 2017 6:28 AM

It's amazing how young kid's understand, I have 2 teenagers and they sometimes don't want to understand or they understand because they can see the pain in my face. When they can see that they are really good to be and we either do a family movie night or we play Minecraft on thier Xbox and that's of course after they taught me how to use the controller's lol! Since your kids are so young I would suggest going to the table with them and coloring, they will remember the time that you have spent with them even though your hurting. I'll be praying for you.

Feb 15, 2017 6:42 AM

Hey lady I was diagnosed n sept.. With many past issue and this piggy backs on top of everything.. If some thing hurts its 10 times worse cuz of fibro.. This is struggle I went thru for 11 months so I soooooo understand I lived like min by min for 11 months with NO DOCTORS TO HELP NE NO MEDS TO HELP ME JUST ME MYSELF N MY TREE WHO ALSO IS SO AMAZING IM BLESSED HE HELPED ME PUT HE MAKE FOOD DID LAUNDRY HE PICKED UP WHERE I COULDNT SADLY NOW TILL AUG HRS GONE BUT IM GETTING BY.. I WAS LUCKY BLESSSED IN FACT TO BE PUT IN WITH A FREE PHYSICIAN THRU A PROGRAM HERE SHE SENT REFERRALS OUT TO PAIN MANAGEMENT DOC, TO THERAPIST AND A PHSYCIATRIST, I ALSO HAVE A ENDOCRINE SPECIALIST, ALL THEM HAVE BLESSED ME BY THERE KINDNESS AND HELP BECAUSE THERE HELPING ME FOR NOTHING BUT YET THERE THE MOST AMAZING DOCTORS, GO ABOVE AND BEYOND FOR ME I DONT GET IT... UNFORTUNATLY AT TIME IM NOT A CANDIDATE FOR PAIN MEDS, IM SORTA OK WITG THAT A MONTH AGO THEY PUT ME ON MY FIRST MED FOR FIBRO AND WE ARE, STILL WORKING IT OUT... YOU DEFF SOUND LIKE U NEED TO LOOK INTO WHERE U LIVE A PROGRAM TO HELP U LIKE THAT... MY ER HOSPITAL MADE THIS HAPPEN BECAUSE IN 6 MONTHS TIME ID BEEN IN THERE 11 TIMES... ITS HARD I USE TO SAY I LIVE DAY TO DAY BUT I TO LIVE HOUR BY HPUR WITH EVERY ISSUE I HAVE... UR NOT ALONE HERE U HAVE US IM SPACEY SO I COME N GO SORRY BUT TRUST ME WHEN I SAY MANY HERE R IN SAME BOAT OR AT LEAST U CAN GET IDEAS TO TRY HERE JYST BE OPEN TRY THINGS U BE SURPRISED WHAT MAY HELP OR NOT HAVE U LOOKED INTO KRATUM YET??? SENDING U HUGZ N LOVE

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