Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

I'm new, nervous and really tired .

Feb 22, 2016 11:53 AM

I am new here. I found this app after getting fed up last night with my fibro after 7 years.

I have a child with SPD. We homeschool now, it's better for both of us.

The relationship between my husband and I is rocky but good. He is a support that trys to understand but gets annoyed by the constant pain. I know that if he could fix it he would.

I know opiates are what some of you chose to take but after having them put me in a wheelchair due to the reaction my body had, I will not go back. I have tried so many medications , doctors and treatments. There are still a few I am willing to try and new ones being developed. I try to keep an open mind. I have people tell me about diets, allergies , reset your system , take this and that... I have or am... I try not to let it bother me but it does. 7 years of feeling like a failure is tough.

I didn't have fibro from birth, I am survivor from a pretty terrible disease and surgery that left me with this.

My in-laws said your prior military get over it. Move past this. It's in your head, your not hopeless . Other days when I can't attend something or help move something, or play a sport anymore - I am faking...lol

My chronicly ill (cancer ridden) paternal side of my family stopped talking to me.

What they all don't know is: I push through 99%of my day with only my gabapentin and toprimate. No actual pain meds... Even when I want to die. I keep going . Why because if I don't whobis going to show my son that even when you get tested you need faith (in whatever you want - we choose God) , support , and belief that you can make it..

I suffer from PTSD, Anxiety Disorder , Panic Disorder , Debilitating Migraines, Complicated Migraines, Fibro, Brain Damage , Memory Loss...what else...lol

I was close to completing my associates in Chemical Technology but now I can barely remember atomic mass.... But Art is another thing. The surgery , and the chemicals used to save my life progressed the brain damage just enough that art is now a BIG part of my life and passion.

That's all for now.
Haha as if it wasn't a book already .

Feb 22, 2016 12:57 PM

Welcome H3llo, so glad you decided to join us. You will find great support here.

Feb 22, 2016 1:30 PM

Hi h3llokitkat, I'm so sorry to hear that you are not getting support from your extended family. How dare they say you are faking it!! If only they could have one day of your pain eh. I totally understand how you feel. Whilst my husband is very supportive, I sometimes sense a bit of impatience from him. Not his fault, I wasn't a morning and miserable cow when he met me 😂. Anyway, I am also a newbie on here and I think it's brilliant that everyone is so supportive of each other. You moan away, we are happy to listen. Keep your chin up x

Feb 22, 2016 1:56 PM

Lol. I wasn't this way when I met my husband either. He actually developed an autoimmune disease 1 year prior to my issues and has almost fully recovered from it. Minus some lingering side effects.

Feb 22, 2016 2:02 PM

I'm glad he is over the worst. Youve just got to carry each other through the tough times. Like you say, we have got to get through it as best as we can for the kids. I hope tomorrow is a better day for you x

Feb 22, 2016 8:13 PM

Welcome to our community family H3lloKitKat! Unless someone lives through daily chronic pain, from life altering illnesses, they will never understand. I'm sorry to hear what you've been through, and that family isn't supportive. Pace yourself and do the best you can when you can, and when you aren't just rest. I rest between every activity because otherwise I end up unable to do anything. I'm allergic to most narcotics so I use Tylenol Arthritis or Aleve middle, with low dose gabapentin, leaving Tramadol for bad days. I have antidepressant, anxiety, migraine, & muscle relaxer meds too, all used as needed. Have you allowed yourself to grieve the loss of your old healthier life? That's an important part to most of us accepting our new normal life. We are all here for each other, because we understand each other. Sending you hugs, & praying your family will come to be more supportive. 🙂💕🙏🌼

Feb 24, 2016 2:11 AM

How are you feeling today h3llokitkat? X

Feb 24, 2016 4:45 AM

Hi and good morning, I think I have it so bad and then read posts! Very helpful and humbling, welcome to this great community

Feb 24, 2016 9:16 AM

Hi welcome, you might want to also check out the online community health rising and patientslikeme. All are very useful in conjunction with eachother.

Ready to start relieving your pain?

Join Community