Doctors don't listen. This is my second specialist who has come to a stZnd-still where there are no more answers for me apart from 'lose some weight'. They treat me like I'm making up that I've got this pain- chronic lower back pain. Car accident in 201/ completely not my fault yet living with this crap life of pain ever since! Life upside-down. Not eligible for Disability as I don't make the 20 points required, can't work due to serious restrictions and pain, living on Newstart benefit ATM of $62 f/night after I pay rent! Exhausted all help options from salvos, c/link etc.. I'm over this! This is not living and I can't see a way of improving this! 😔
JaniceC it can be so agravating dealing with SSD, they never get in a hurry. Have you asked to see a pain specialist ? It sounds like you may be going to harm yourself, please don't, call your Pastor and talk with him, or a friend. It's always darkest before the dawn. I get so mad at these Dr.s that think just loose some weight and that will fix all of your problems . Well it doesn't !!! The pain has a lot more to do with than just loosing a few lbs will fix. It took me 4 yrs to get my SSD it was so frustrating every rejection letter, I saw 3 different judges before I finally got mine and back pay. It didn't take my husband but 18 months to get his, but his Dr as well as his Lawyer helped him. Do you have a Lawyer yet? You know that you don't have to pay anything to them they don't get any money until you do, here in Texas it's only $6.000, and the government sends them their fee you don't have to worry about it. What part of your back was hurting your accident? I hurt my back on my job I worked in the hospital as a nurses aide while making my last rounds checking on my patients I hung the toe of my shoe in the leg of a potty chair when I turned to put the diaper in the trash can. Lost my balance tried to catch myself on the back of a chair twisted slid over the chair arm down into the seat and out on to the floor on my bottom. Lol that must of been a site to see scared the poor little old lady to death she sat straight up in bed the first time I'd seen her do that all day. She was asking me if I was ok at the time I thought I was. But I herniated L4 S1 and uprooted the nerve. All the Dr.s say it's not bad enough for surgery. I had a anterior diskettetomy
Doctors told me if I lost 30 pounds I would go into remission I have lost 70 and still no remission but they refuse to say well maybe weight isn't a factor for you. I have intracranial hypertension doctors think weight loss is a miracle cure
Oops hit the wrong button. On C5,6,7 I have a Syrinx inside my spinal cord, Syringomyelia, Osteoarthritis, and Fibromyalgia as well as other health problems. I am never completely pain free but I have a good life we recently welcomed a new granddaughter into our lives. There are a lot of wonderful considerate,people on this community, I believe that God led me here when I was having a bad day. There isn't anything that you can say that there isn't someone her who has gone through or something similar to it. You can rant and rave no one will judge you for it. We are all here for one another. We all are here to listen to you. Will be praying for you.
JaniceC, I'm sorry for your pain, physical and emotional. I've been in 5 auto accidents, between 1985-2001. Only 1 was my fault. I've also slipped and fell on slick floors three times. I have chronic and worsening spine disc issues. I've had 2 neck surgeries and need another but due to the risks no surgeon will do it (c2-3). As Weezie said, I'm being told it isn't severe enough yet, so chronic pain in my neck & back is everyday.
I know your pain and the financial and emotional struggle. I was suicidal and hospitalized three months many years ago. You have voiced frustration that seems desperate. Please let your doctor, a pastor, or a county health agency help you through this. Depression in our circumstances is normal, but thoughts of desperation (thinking dying would be easier) is not normal. Please check into assistance through utility companies, food banks, clothing banks if needed, and govt assistance with for food stamps, to help you cope and survive with less stress. Also, many churches offer temporary assistance in various forms, most even if you aren't a member. Please reach out to family and friends, and neighbors, to help you through. And if you haven't hired a lawyer for the disability process do so. They fight for you and you don't have to be stressed handling that. Being overwhelmed can cause desperation. I know because I walked that same road last year, but having been suicidal before I sought help quickly. And my thoughts weren't "I want to kill myself, but rather along the lines of " it would be so much better if I died right now " & "I wouldn't care if I die today.". We are all here for you. Many of us have had to get financial & food assistance. Talk to us as much as needed. Emotional pain is no less pain than physical pain. We care about you! I'll keep you in my prayers. 🙏🌼
Janice, I am sorry that the stress is too much at times. I am not sure that you are suicidal. I think you are just telling us that this is no way to live. I feel that way at times. Sometimes, even though I am not suicidal, I really don't want to be alive in my situation. It just hurts too much at times and the stress can be too much. I think maybe that is what you are saying. Sometimes, we feel alone and feel no one understands us, especially the ones we love. We sometimes expect them to understand us. But when you think about it, unless they feel the intense pain we have and how hard it is to survive with it at times and support ourselves, there is no way they could understand. And for the most part, even though we are sad that we feel alone among our own family at times, we are glad that they don't understand the type of pain we endure. We are glad that they don't have to live with it too. We just wish they could have empathy.
But that is where this community comes in. They let you rant about your day.. Instead of judging you, based on their own expierences with pain and life, they do their best to imagine what you are going through, empathy, and they offer offer words of encouragement and understanding. Everyone wants to be understood especially if the ones around us just are not getting it. You can come here and know that because we share your life experience, we will understand you.
You see already how people can be concerned. You said "This is not living and I can't see a way of improving it". You came on here because you were reaching out. But people here were worried that you were in a state of desperation. They immediately Didn't tell you but asked you to reach out to someone for help if you were in such a state thinking you needed immediate help. That is the type of care you will find here. This is a good place to come and you are always welcome to voice your burdens on us especially when it hurts. Take care. I hope things will get a little better. I have found it helpful to search out a social worker in the county you live in. Usually people are not aware of all the programs that are available. Usually people are not aware of the different grants that have been made to help people. This may help if you check in with a social worker. I hope you pain improves.
I have to say that I've never come across a doctor who didn't blame weight for my issues. I've lost 90 pounds and don't feel better. I have Grave's Disease and no thyroid so it's even harder to lose the weight. Also, when I try to be active, it takes a long time to recoupperate. Memorial Day we had a BBQ and there was a DJ at the house behind us. We were dancing and singing. I did the cha cha slide, the west coast swing, a Lindy hop, salsa, etc... It took me a whole WEEK to feel better and be able to walk and get the swelling off my feet and legs. The next day I was very sad because I felt like, am I never supposed to have fun any more?? Hang in there, stick with us and vent, chat, pray, laugh, cry, etc.. We're here when you need us.
Thanks everyone for your comments and support, it means a lot. I've just had an awful argument with my sister over my situation with pain and all that comes with it, really didn't need to hear she's sick and tired of me whinging about my pain all the time... Anyway hoping things improve..
I'm sorry about your sister. It's really hard when the family is so unsupportive and won't even try to understand. Hugs and flowers (virtual) to brighten your day! 🌺🌻🌼🌷🌸🌹🌞. Try and enjoy the rest of your day! 🙏🌼
JaniceC I am sorry that you and your sister had words. Hopefully y'all will make up and be close again. I' m not making excuses for her but she may feel guilty that there is nothing that she can do to help fix it. My husband's was to get angry at me. Go figure it doesn't make sense to us. He told me he was afraid to even touch me any more because it hurt to touch me anywhere my skin as well as joints and back was so tender, to the touch. So his answer was to be angry at me. I will never understand his reasoning maybe some of you guys could explain it to us gals.
Unless people have lived it, they cannot comprehend what we live with day in and day out. One thing they CAN do though is have some compassion. Try to read up on your condition(s) and get a better idea of what you have to live with. When the ones we love are unsupportive, it makes it very difficult. You're in my prayers💕🙏🏻
Oh hunny, I'm right there with you. All I do anymore is sleep, cry, think about downing all my pills, & barely eat (yet somehow still gain wait). Life is what happens to everyone else. We r barely surviving, let alone living. ((hugs))