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I'm so tired

Oct 08, 2015 5:37 PM

I have neuromyelitisOptica. A few days ago I started having so much pain that I take 75mg lyrica and 6 myprodals a day just to function. I also struggle to breath, but I think it might just be stress as I am in my finalexams. I don't know what to doe, my mother thinks that it is a relapse and that I should be admitted. I believe that it's just stress. I lost is completely today. I was out with friends, and on tha way back, I had so much pain that I could no longer drive and just threw up for the rest of the hour long drive. I just feel like my whole world is being ruled by pain, and I don't want it that way. I want to be a normal eighteen year old. I guess I'm just a little tired of constant pain and fear

Oct 08, 2015 6:09 PM

TM532, you are so young to have to deal with all off this. I am very sorry to hear you struggle so much with pain. Do you have a doctor that you see regularly? If you are having panic or anxiety attacks, perhaps there is a medication that might help control the stress portion of this. If you ever need anything please let me know, there are a lot of great people in this community. ✌️❤️

Oct 08, 2015 11:02 PM

TM532, reading your post breaks my heart. I suffer from chronic pain from about a dozen diseases and have had 28 surgeries in the last 22 years. But, I am also 50 years old. Someone your age should be goon out with friends, having fun and thinking about what you want the future to bring, not being plagued by pain and hospital stays. I am sure the stress had caused you to have additional pain. You know your own body better than anyone. I know it can only make things more difficult when trying to take exams. I'm glad that you found our family community though. Coming here you will find that there are many wonderful folks who will be here to help you when you need it. You will get support, advice, hugs, ears to listen and shoulders to cry on. Never worry about venting or being in a bad mood or upset. This is a no judgement zone and we all understand. Many times just being able to speak to people who really do understand, makes it a bit easier knowing that you are never alone. I wish you all the very best and hope that you can get some rest and have less pain. Let us know how you are doing. Sending you {{{{Hugs}}}} for support and prayers to help you get through. 🌻🙏🏻

Oct 09, 2015 12:31 AM

It truly sucks that you are in so much pain at your age. Unfortunately stress is one of THE triggers that adds more pain. Obviously with you writing exams you're under a lot of stress. A catch 22. One litlle thing that has been helping me (and I stress about everything) is 5 deep breaths focusing only on breathing for those 5 breaths. I set an alarm at first to do this once an hour. I've also started "chair yoga" which also seems to be helping. We're all different and each of us have to find what helps for us personally. You are a brave young woman and even though your life has taken a U turn without your permission you are trying to deal. Prayers and gentle hugs and keep on fighting you CAN do this no matter how hard it seems because you're tougher than this shitty disease. Gentle hugs

Oct 09, 2015 2:08 AM

I get tired,fatigue, sleepy, cause I can't sleep,can't eat right, or walk much cause the pain I feel is mostly on my back,thighs,left arm,hands and wrist,my head I feel that its about to explode. Along with that depress and anxious

Apr 28, 2016 3:55 PM

Okay, so I was recently admitted to hospital again. I had so much pain that I was literally just throwing up for two days straight. They adjusted my medication and it seems to be working, I'm on 1200mg neurontin... It makes me very tired and I still have pain. At least now, it's manageable and I have a doctor who is really fighting this battle with me. I can't help but feel that this is unfair. I'm 19 and I used to dream of studying engineering. Now, I dread every monent of it because I just don't have the energy and I'm working towards nothing. The doctor gave me a life expectancy of 4 years which means that I won't even be able to finish my degree. I had such big plans and now it's all gone. I guess God's plan differs from mine, but it's such a cruel way of taking away my dreams. I'm just really angry at life right now... And I don't want to be. I want to enjoy it for all that it is for the little time that I have left. Anyway, thank you all for replying on my previous message and I'm sorry that I didn't post anything back. Just know that I appreciate your support and prayers immensely!❤

Apr 28, 2016 8:55 PM

TM532, I'm not sure how I missed your original post. I had to research your illness because I have not heard of it. I am so sorry you are fighting such a crippling illness, especially at your age. I'm 54 and have developed multiple chronic pain issues in the past 25 years. I hang my head in shame for complaining whenever I read about someone like you. It does seem unfair that your life plans have detailed so harshly & quickly. Your plans may be changed but please don't give up trying.

You spoke of God's plans for your life being different from yours. When one door closes another one opens. My daughter had plans to be a paramedic and nurse. When she fell breaking her arm and injuring her back, she spent a year recuperating trying to figure out where her life would go. Because of the grade of permanent injury nursing & paramedic was out, so she used the knowledge she had gained to work in a pharmacy for 2 years. She's now a mgt trainer in an insurance company. She has macular degeneration and is legally blind, knowing one day shell lose her sight completely. I now here health issues are nothing compared to even mine, let alone yours. But she's gotten through it all by believing God has another purpose for her.

Maybe God has a different plan for you too. Through the struggles and pain you can gain strength & courage. When you're weak and tired let God hold you. Let the community be your support. Who knows how you may help someone else, maybe even someone younger than you. I'm wondering why your doctor would give you a 4 year expectancy. He can't know your time left, especially so far in advance. My dad had 4 types of cancer from age 50 on, and he's fought through it all. He's now 85 with Alzheimer's. Grieve the loss of the life you dreamed and planned for. Grieve what you feel cheated of. Then fight to make the best of your life, to get through your flare ups, and pray for longer remissions. Do everything you can to enjoy your life when you do feel good. And when you don't, turn to us and God. I'm sending you gentle hugs! And I'm praying that somehow through research you can receive treatment to live a much longer life, enjoyably with longer remissions. Hugs & prayers! 🙂💕🙏🌼

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