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Important linking Autoimmune, chronic pain and fibro

Mar 07, 2016 11:50 AM

Due to some of my health issues i requested a cortisol and adrenal test. Mine both came back low and when I looked it up my jaw hit the floor and I thought I have to share this....

This is an exert from http://adrenalfatiguesolution.com/immune-system/

cortisol leads to increased production of pro-inflammatory cytokines, which lead to an over-activation of the immune system and inflammation. According to Dr. Thomas Guilliams, an immunologist, β€œThe result is amplification of numerous inflammatory pathways and increased susceptibility to developing inflammatory diseases, including autoimmune diseases, mood disorders, atopy, malignancy, chronic fatigue syndrome, chronic pain syndromes, obesity, glucose dysregulation and fibromyalgia.”

Why is this being kept a secret? Why isn't this a test done if you have fibromyalgia or chronic pain or any of those things? It was a simple blood test!!!! I have almost everything on that list!!!!!

Mar 09, 2016 8:50 PM

It is sometimes considered "junk science". However, there are also other recent discoveries in fibro sufferers that are also eye opening. Did you see the discovery of additional nerves around capillaries in the hands of fibro patients? This also has links to spinal issues since the nerves ultimately go there. I cannot remember exactly. If you have not seen it I will try to find it. But, in the meantime, I hope adrenal fatigue solutions help with your pain.

Mar 09, 2016 9:44 PM

That hyper link goes to nada.

Mar 10, 2016 3:04 AM

Silvery, you have to hit the Home page in the bar key at the top and then it takes you to the info.

Mar 10, 2016 4:44 AM

How strange! Currently on a day ward for tests due to low cortisol. My endochronlogist booked me in for a synacthen test where an injection of ACTH is given and bloods are monitored for an hour. I'm then going to be given prednisalone and then bloods monitored for 8 hours. My cortisol was low and he believes this is causing my symptoms and may be able to be treated by the prednisalone. My symptoms are full body muscle aches, extreme fatigue, shooting pains. I have already been diagnosed as Hypothyroid.

Mar 10, 2016 9:02 AM

Kelly5, I pray that your diagnosis be confirmed and treatment started and it be effective immediately.
It is interesting to see how many different directions they can go for treatment. I pray suddenly your pain will cease. Peace & Grace.

Mar 11, 2016 1:12 AM

I have hashimotos so that was what led me to request the cortisol and adrenal tests. I am on prednisone for other autoimmune issues and I know it is not good to be on it. As a doctor once told me the problem is they don't understand autoimmune issues well enough.

Mar 11, 2016 9:18 AM

Shammagren - that is what I've been given. How do you find it? Why is it not good to be on? I'm really cautious about starting steroids but I need something to help my symptoms.

Mar 11, 2016 7:57 PM

Prolonged use of steroids can cause pulmonary fibrosis and none of us needs lungs that that cannot inflate or expand properly. There are many more negative effects that xan come with longterm use also.

Mar 12, 2016 8:42 PM

I take plaquinal. Will never take prednisone again unless I'm at deaths door. I was on 90 mg. Daily for three years 41 years ago when I manifested sarcoidosis.while it kept me alive then, it is a double edged sword. I had to have my first osteoporosis arthritis surgeries when I was in my 40s. Now have osteoarthritis in every joint from cervical spine down. Be careful with the dosage. It was worth what I took because I'm alive to speak of it. However, I'll never take take such a massive dose over such a long period ever again. I'll try not to allow that drug in my body again.

Mar 16, 2016 1:07 AM

My entire spine has arthritis and lots of other issues before prednisone. I am on 10 to 20 mg a day at can't stand it. Lmb I did not know of the lung issues. I am hoping my insurance approves my shot for my autoimmune hives so I can end the steroids. I see the specialist for my adrenals in april.

Mar 16, 2016 8:38 PM

Prednisone is rough to be on it hurts the body especially the bones .

May 10, 2016 10:53 AM

My GYN doc did a saliva lab test and it came back in low in cortisol, DHEA, and melatonin. My endocrinologist doc ran cortisol, B12, T3 & T4/free labs. She said she doesn't think the saliva test was right. The results came back my cortisol is very low, and my T4-free is in the very low and of normal. I'm on T3&4 meds for hypothyroidism already. Without the meds those levels are bad.

GYN doc wants me on Adrene-All, DHEA, & AdreneVive. He says they'll repair my hormone levels and help me lose weight. The endocrine doc does not want me on them. She says they'll do just the opposite, making my hormones worse & making me gain weight. Who to believe? Has anyone else had experience similar to this? The ingredients in the "Adrene" products are all plant based herbs I think, except the bovine adrenal compound. πŸ™‚πŸ’•πŸ™πŸŒΌ

May 12, 2016 10:55 PM

Flappy from all I read the saliva test is the more accurate testing so it makes me go hmmmm about the endo. Can you ask one or both doctors why they have the opposite opinion of the other. If your endo thinks the saliva test wasn't accurate then why not double check it. Was the blood test within the norm?

I always say go with your gut on what you think or feel. Are you having issues related to low cortisol and so on? From what I read high numbers are dangerous but really low numbers can be bad too.

Good luck hope you find the answers

May 13, 2016 8:45 AM

Shammagren, the GYN is more holistic in treating, where the endocrinologist is more traditional treating issues. And what they've said is totally opposite to each other, so I'm really confused. I honestly don't know what to do.

Funny thing, the endocrine docs blood level (cortisol) came back real low, below normal. She's sent orders in for me to do an 8 hour, full adrenal glands function test. I haven't heard from the facility yet, so they're likely getting preauthorization. Hopefully they'll call today or Monday.

May 14, 2016 1:06 AM

Flappy I know my PCP who I trust completely said she would be more worried about high numbers than low. I hope they call you soon so you can get the 8 hour test and have better answers. Seems like everything is always a frustrating hurry up and wait.

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