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In A Lot Of Pain And Don't No What To Do

Feb 12, 2016 4:22 PM

I am in so much pain. For the past two nights of have tried to get some sleet and have not got any. Today I had to go get my hair cut and the little that the barber messed with my hair put me out. I woke up when my haircut was done. My arms have been hurting so bad and my low whole back and neck and shoulders. Just the top half of me It is an ache, along with sore and weak muscles. An extreme pain goes along with it that keeps you up. This is what I am taking all at once for it. 150 mg , Lamictal, Cymbalta, 90 mg, 900 mg gabapentin, 30 mg oxycodone, 800mg ibuprofen, 10 mg Baclofen, 3 lidocaine patches, biofreeze, then I take an Ambien that does nothing to help me go to sleep but I just keep on hoping it will. This is my rant that this thing will soon pass. I wonder if it has something to do with what is going on inside me. No one knows the reason. A doctor said it is fibromyalgia. I can believe that if they had checked me more thoroughly. I had a high ANA.

Feb 12, 2016 7:21 PM

Profiler, ANY time you are in that situation and can't sleep and feel alone and in pain, please feel free to text me. It doesn't matter what time of day or night or if I've just fallen asleep... You're more important than sleep as I can take naps because I'm home and can't work. I feel badly that you've been in such aggregious pain. It's NOT a happy place to be. Sending you {{{{Hugs}}}} and prayers that you get to feeling better and your pain levels get under control. Hang in there, my friend, you'll not be alone. 💕🙏🏻🌻

Feb 12, 2016 11:09 PM

Profiler, your situation sounds like mine. I have PMR and Myositis. Sounds like you need to talk to your doctor. If we can not sleep our body gets no rest and can not heal. Call your doctor.

Feb 12, 2016 11:58 PM

Thanks always, can I have your number to text

Feb 13, 2016 8:53 AM

Profiler, I'm so sorry you are in so much pain! You're in my thoughts & prayers, with hugs & love! 🙂💕🙏🌼

Feb 13, 2016 11:26 AM

Hey Profiler.. You got it!! 1-516-946-5596

Feb 13, 2016 12:41 PM

I have the same problems I am constantly in pain from the neck down my legs hurt so bad sometimes my hip tailbone back shoulders my arms and legs they lose feeling a lot and anytime I have went to a Dr they don't do anything to help. I know my own body it's not my muscles it's nerves and my joints but I can't seem to get any relief or help and it's been since my car accident in 2012 and not a single dr does anything about it or helps me the only thing that seems to mildly tame the pain is if I take a few narcotics from my neighbor that aren't prescribed and a benzo like valume or xanax. But all the pain still isn't gone. I never have a good day every day minute second week month I hurt I cry I hurt so bad I can't move half the time bc I hurt so bad I rarely sleep bc the pain is so intense and it just seems it's getting worse and I am way too young for this I feel like I am literally just deteriorating into nothing I feel worthless I can't work I have no health care I don't have a spouse so I'm doing it all on my own I can't afford a specialist or drs anymore I don't even know what to do anymore but I shouldn't have to rely on buying narcotics off people bc a dr won't even help me or believe the amount of pain I'm in and it's awful I wouldn't wish it on anyone. There's days I get so depressed and down about it I've thought suicide is better than living like this everyday the rest of my life. Idk what to do anymore if there's any kind of help I can get the er has diagnosed me with chronic pain over 5 times so I can get right to a specialist but I can't afford it I have no children so I assume I can't get medicaid to help get me into a dr and maybe get a good dr that will get me on stuff to help me and get me slightly in relief to where u can go back to work someday maybe idk if I ever will b able too my tailbone is shoved up in me from my wreck and my hips are bad and my neck is too from the whiplash but it seems drs automatically just assume everyone is a drug seeker I just want some relief. Have u guys found any things that help or anyways to get help or anything that helps alleviate the pain bc I'm at witts end I don't think i can go through all this another year let alone a whole nother month or two. I feel I'm stuck and out of luck and I'm just stuck with these diseases and problems of whatever is wring with me I feel beyond hopeless. Thank u for ur time and response if I get any.

Feb 13, 2016 1:36 PM

Deb, I was so sorry to hear about the pain you are in. You are right. A lot of doctors think that people are drug seekers but a good doctor would not think that. I wanted to know if you were far away from a medical university hospital even if requires a little bit of travel. If you are let me know. I know how desperate you feel. I have been there but you can not consider suicide. You need to be stronger then that. One thing that can help you now is biofeedback. It is a good exercise that can give you some temporary relief. That is sometimes all I need is some time with lighter pain and it rejuvenates me to deal with things further. The way I do biofeedback is I lay down on my bed and make sure there is no distractions. It needs to be quiet. If you have an app with the ocean sound or nature sound, play it if you want. Then in your mind, make a picture of the most relaxing place that you would like to be at. Then imagine something you would like to to eat while you are there. Try to imagine the smell. Really put yourself there. Put things in your picture like a swing. After you have done that, start at your feet and order your brain to make your feet warm. Believe it or not we do have control over our brains. Once we have developed our perfect place we can see the control we have. Always go back to that picture. Keep thinking that your feet will become warm and they will. They will eventually become warm and you may not feel them. Then move it up halfway between your foot and ankle, do the same thing. You keep doing it in small sections. When you get to your back, it may be a little harder because of the pain. But when you get there just really let go of yourself and imagine yourself and also let those muscles around your back become loose. You will feel them loosen. Let yourself become gel like. That area probably won't get completely numb but it should feel a lot better. This really makes me feel good so I can sleep or relax. I get to the point where all I can do is feel my head and the rest of my body feels paralyzed.

If you want to tell me the city and state you live in if it is in the us, I can look up available services for you. I am really good at this thing. I have been able to get some of my friends complete health care for free.

Feb 13, 2016 1:52 PM

Thank u so much for ur reply and info idk what I'm doing when it comes to this stuff I just try so hard everyday and struggle and get no relief no break no dr believes me or tries to get to the bottom of it nothing. I live in springfield, Missouri. I'd appreciate any information and I didn't know such things existed and I'd b willing to make a drive if it meant getting some type of help or services. We have Jordan Valley health care here but they don't help it's one of the best known hospitals here for low income type of stuff but they don't help people and are government financed and ran I seen a dr there for a year and a half and he never did anything but prescribe me flexeril which I told him countless times it wasn't helping me and it made me super sick and he was prescribing me tramadol which didn't do crap. And I know it's not only muscles I didn't know for the longest time the difference between nerve pain muscle pain and joint pain until my car accident now I def know the difference and I tried explaining it to him constantly I felt like I was talking to a wall he wouldn't do mris or anything he just was a bad dr and Jordan Valley is known for their lack of care for their patients that have pain. But any information I would be more than appreciative of. I am tired of living like this and I can't do it the rest of my life. It makes me so depressed I can't do normal things I never go hang with my friends anymore I'm 28 years old and I can't do things 30 year Olds are still doing just fine it makes me feel so hopeless and worthless. I just want answers relief and help I'm not a drug seeker I literally just want relief and answers I understand it may not be complete relief but some relief that I feel everyday compared to no relief is better than nothing. I know suicide isn't the answer but it gets so hard being alone all the time and no one understanding how hard it is to live a life full of pain constantly and consistently everyday some days worse than others. People can't understand unless they have felt it themselves and people have no compassion or empathy unless they have the same kind of pain. I don't want pity I despise pity I just want someone or shall I say a dr to actually listen to me understand and actually help me for once in my life I'm tired of dead ends. But the whole suicide thing can be hard not to think of when u hurt so bad everyday ud rather just not deal or feel it anymore bc it's so youth robbing and life robbing u already feel like ur dying and it sucks it's cruel it's unfair which u all understand what I'm talking about it can be so overwhelming. Hopefully maybe u can find something or an answer or direction I can go and thank u so so so much for ur reply and help

Feb 13, 2016 2:00 PM

So you do qualify for help at this hospital but you don't like the doctor. I asked that because I am wondering if your income makes you qualify for help at other hospitals. Which it sounds like if you are able to qualify now at this hospital you would be somewhere else. I use a lot of words but my question is do you still qualify for help at this hospital?

Feb 13, 2016 2:11 PM

Yes bc they are based on.a low income scale which I have very very low to no income the job I have I only work 3 to 4 days a week for 3 hours crap pay but it's the only job I can do cuz it's taking care of a lady I know so it's really really light work and she knows my pain situation and stuff so she doesn't work me hard at all let's me take breaks and is really empathetic and understanding bc she's disabled for some of the same kinds of pain that I have. At that hospital the Dr I had no longer works there but I've been there several times and had 4 doff drs cuz none stay bc they are so strict on what they allow to prescribe to people so a lot of drs leave bc they are restricted to what they are allowed to do and how they can help their patients and out of all 4 Dr's they were all the same prescribed the same stuff said the same stuff etc.

Feb 13, 2016 2:35 PM

I am doing some research right now with the university of Kansas in Kansas City. They have an assistance program. They say they 650 location I am guessing around the state. They have two universities. The other one is in Columbia. But I am sure you know that. The one in Kansas City, the hospital, is two hours and 34 minutes but I was thinking they probably have clinics closer to you. I can give you the phone number to the assistance place if you would like it. I think it would be worth it. It would be worth looking into. My friend who goes to the university gets free medicine to. But I will keep looking. I just think that is where you will get the best care and access to the best test.

Feb 13, 2016 2:37 PM

So when u go to these universities is it free or is it for low income people and they are people in studying of being drs cuz idk what it is or what they do I've never heard of these

Feb 13, 2016 2:43 PM

These are people who have completed several years of medical school and are residents they have passed their test and are doctors. But have to serve as residents. They will access you and will come to there conclusions and then a doctor who has been a doctor for many years will come in and see you and make sure they are correct. I trust them. I am not on low income but I go there and they serve me well,. What I like is they always have access to the newest medicine. When they are residents, they are very smart.

Feb 13, 2016 2:48 PM

Ok well that sounds really good. As far as money wise are they really expensive like especially for tests like mris and stuff like that that they will have to do and run and what if u can't afford it do they have payment programs or anything

Feb 13, 2016 4:36 PM

I've found that the newer doctors are much better at trying to help me with my chronic pain issues than the older ones. Every older doctor I've seen has told me the exact same things... exercise is the answer! Yes, some does help...but it is not the complete answer...especially when it hurts so bad to do them!

Feb 13, 2016 7:39 PM

That or ur in so much pain some days u can't even move then what I've kind of noticed that too that older drs are all about it'll go away with meditation and time and vitamins no it doesn't trust me I've been doing that since my wreck and I have noticed no difference and obviously I have something wrong with me if since 2012 my pain has increased drastically and has not gotten any better but it's like they don't listen they don't look into it or access u they just assume they know what it is or ur a drug seeker sorry if I was a drug seeker much easier to go to the streets if I was that desperate instead of wasting time and money going from Dr to Dr or doing research all the time to try to find out on my own what is wrong with me bc not a single dr has even tried

Feb 13, 2016 9:35 PM

Usually at places like university hospitals, the services are fre or they have a copay. My friend had to pay $6.00 for his MRI. So you will have to check and see how there services work. Just don't ask them to many details like what you are wanting. Just ask them like what if you need an X-ray. If they think you want to take advantage of a lot of services, they may look for a reason to not approve you. So be vague. You know what I mean. Get the answer you need without asking to many details.

Feb 13, 2016 9:41 PM

Ok that makes sense and something like that I can afford and would help a lot being that affordable now u said that they also can approve answer write u scripts too right cuz I don't want to have to go there just to get a reference to a Dr they recommend and go through the same process and then be able to get my scripts I can't afford stuff like that.

Feb 14, 2016 12:08 AM

Now, I don't no for sure on that but I can help you with free prescription programs through different companies. Just in case you ever need my help with that, my email address is the_profiler@comcast.net . Most medicines, you can get free through prescription assistance programs.

Feb 14, 2016 12:18 AM

I have had horrible insomnia since I was young. I take Trazadone, half a pill will knock me out. I have Fibro among other things and there are only certain meds I can take. I am recovering from major surgery and its hindering my sleep on top of me dog sitting which is not helping what so ever. I am taking care of myself which anyone who has been non weight bearing should know its not easy getting around on a knee scooter. U need to talk I am also available..

Feb 14, 2016 9:10 AM

Profiler, please friend request me in Facebook if you want to chat with us! Terri Rodgers, picture of me taking a selfie in the mirror. Blonde hair woman...and anyone who wants to chat realtime in our circle. We keep it up 24 hours a day....real time chat beats the loneliness..

Feb 15, 2016 10:28 AM

I friend requested you terri rodgers I'm debra endicott. And as far as insomnia I have it horribly too i think it's partially due to the pain I'll get bad of the worse kind of leg cramps I can't explain and it's not the muscle kind they drive me nuts they make me cry I wake up every hour or two I might if I'm lucky get 5 hours of sleep a night but never all without being disturbed or woken up by pain in those 5 hours tramadol seems to make my pain actually worse and I find that really odd but drs are always trying to give me just muscle relaxers and I keep telling them it's not my muscles I know my body it's nerve and joint pain but I might as well talk to a wall bc that's basically all I feel I'm doing everytime

Feb 16, 2016 3:28 AM

Are you having leg cramps in your calves?

Feb 16, 2016 6:58 AM

In most intensely my calves and upper thighs but it's not the muscle cramp feeling like growing pains it feels so deep

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