Hi all! I have fibro and suffer with a variety of symptoms such as fog, tingling, pain, balance issues, a stammer.... And many more. I just wondered if anyone else with this condition has a strange feeling of being in a tunnel with everything else going on around them, with noise too loud and everything chaotic? I have the urge to flee from these situations; this might be too many people in the kitchen, talking whilst I'm cooking, in a busy shop with lots of activity going on or in a bar or pub or public transport with a cacophony of noise that seems too much to bear.
Deena26, I have a very difficult time being in large groups of people and loudness. I tend to leave and go to my room where I can suffer in silence and have some peace. It's a bad habit I've gotten into because I used to be the life of the party... Got there first, left last, had everyone laughing, etc.. But this disease and others I have (among other folks here), tend to make you isolate. I'm sorry you're having to live like this but you are in a good place with us. We are all here to listen and help one another.
Thanks Flappy and Alwayz, it's a shame to hear that you both suffer similarly but from a personal perspective it's nice to hear from people who understand. I've tried to explain to my family but they tend to glaze over with the 'not more symptoms!' Face, which I'm sure you've both seen from time to time. I also was a party person but now if there's too much going on then I seem to have an overload. The pain therapist has said that your brain is working at a heightened level when dealing with so much pain and so can't function as well with other demands on the senses. This might explain it but doesn't help with dealing with it. Best wishes to you both x
Thanks, Deena!! Yes, I have definitely seen those expressions and den the looks of "do I have to hear about this again, what's wrong now or that dead silence and the look of, I don't know what to tell you. It's rough, but we are all here to help each other get through. Hang in there.
Headphones with an mp3 player can help as you choose the noise by u listen to but it also helps to counteract the noise which causes the overwhelming and anxious feelings. If you can, try it and let us know how it works for you...
@alwayzzinpain I used I go out all the time too. I mean everyone still sees me as this outgoing enthusiastic extrovert, but I no longer feel that way. This pain in top of PTSD and still recovering from a bad accident makes me just want to be on my own or with very few others
Deena, I am so glad you brought that up. That has been happening to me here lately. I thought it was a panic attack of some sorts. I had to pray my way thru the last one as I felt that I was loosing my mind. Its no fun. But it helps to talk about it so I see that I am not alone with this. Its strange how one second I am fine then, bang! Not so good.
Mad - I do listen to white noise a lot to help me work. I will have to try the MP3 tip next time it happens and will let you know if it helps. Blessed - I'm glad to hear that I'm not the only one dealing with this peculiar feeling. It's almost like I'm standing still in a speeded up time lapse film. I've had panic attacks in the past, but this is nothing like those, no hyperventilating, just alone in a mad world, peering out from inside my head with the desire to escape. Totally weird!