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In pain and by myself lately

Jul 06, 2017 9:13 PM

I have missed you guys a lot. But I have been paralyzed in pain. Has anyone ever been that way. You are just in pain and you have done all you can do. You are on so many medicines. You are in so much pain. But your doctor won't raise your pain medice because of the trend to cut back on pain medication. They cut back on mine even after having getting MRIs and it showing them that I have severe arthritis in my neck , shoulder, knee, lower, and upper back. Tomorrow, I am having a surgery and I am scared. It is an ankle fusion. I won't be able to walk for eight weeks. But the last time I had one of these, it did heal for two years and it took seven surgeries. So I am scared about losing the foot. I almost did last time. The last time they did surgery, the skin burned and I would have to rub it with fabric to desensitize it. But now it is going to be in a cast and I will not be able to do anything for it. I worried about my diet as far as healing because my teeth. Because of my medicines, my teeth have broken and fallen out so most of the time I eat Ramen noodles. But that is not going to have the things in it to help heal my ankle. I am going to have to ask the doctor what supplements to take.

My family has been so grouchy towards me. I don't ask them to do anything for me but they want to but when they do it they are grouchy about it. Like they are sick of it. It has bee 16 years. I would be sick of it too. That is why I stay in my room. In my bedroom. Usually I do nothing but stare and I find I am thinking about nothing. I tried to get into a rehab after the surgery but my doctor never got back to me on that. I was trying to take the pressure and work off my family. I really wish this was over. All the pain. I am not suicidal. But I think you all could relate. I just have to get to find something to do. I need to find someone to help. That would make me feel better. I like when I am not thinking of me. But like I said, I just feel paralyzed in my room. I will get out. I just wish I had help right now. I am sorry I have not been around to help you all. But I haven't been able to help anyone lately. I have just been closed up. Sorry for such a serious post guys. Take care and I hope your pain is not that bad. I am hoping my surgery is not that bad today. I am hoping the local will work. Bye.

Jul 06, 2017 10:28 PM

I hope that your surgery went well and that you are feeling Ok! Just know that there are people out There Who understand what you are going through. Feel better!

Jul 06, 2017 10:35 PM

So sorry to hear about your pain and upcoming surgery. I'm having a rough time this whole week. I have severe AS ( arthritis of my whole spine) the weather has been rainy all week. Last night my husband said he gets pain in his shoulder but he doesn't complain about it! I was devastated! I know he's tired about my pain ( about 34 years) my spine is crap. Like you I take a lot of meds but I try not to take as much narcotics because of the recent scare and concerned they will cut my med. my bad spine also affects my shoulders he-- all my joints. I'm sick of being in pain all the time. I wish it would just stop. I honestly hear you Profiler! I'm so very sorry you are suffering as you are. I will pray for you tonight that all will go well for you. Honey hang in there. I send you my love and best wishes. I live in Pennsylvania ( USA) don't know where your from. I just know your pain as I feel it also. They cannot operate on me anymore. At least my PCP said he won't let me have any more surgery. I had been in bed for the last 21/2 hours and have done all I know but the pain has not decreased. Broke down crying hysterically. They say when life gives you lemons make lemonade!!!It sucks period!😭 I care about you my friend and send you a hug 🤗 and kiss 😘 and pray 🙏🏻 all goes well. Write to me anytime ! Please know my heart breaks knowing your suffering as you are.💔 My first name is Sharon and I care about you even though I have never met you. It's nice to know someone truly can relate to your suffering. Please let me know how your surgery goes. My thoughts and prayers and little be go with you.
Thinking 💭 praying 🙏🏻 and sending you 🤗 hugs and lots of love ❤️

Jul 06, 2017 10:50 PM

I have a husband and 3 children ( all grown up) I see you are a male. I hope you weren't offended by anything I said. I hope your surgery is successful and you can finally experience less pain in that foot. Best wishes. You have a friend in Pa.

Jul 07, 2017 12:14 AM

@profiler wish you the best of Luck tomorrow with your surgery. 😊 I understand you being scared. Sending prayers your way and prey for fast and smooth recovery. 😊 I myself am healing from surgery but if you need to talk pm and I'll do my best to respond fast

Talk with your doc again about the rehab if you feel it's best for you . I'm sorry to hear that your family is a grouch to you.. people don't understand unless they lived it .

Best of wishes. We are all here for you. ((Gentle hugs))

Jul 07, 2017 7:29 AM

Profiler, It's good to see you again! We have missed you. I am very sorry to hear how your family is treating you as no one should be treated that way... But I do understand as I keep myself pretty much in my room too mostly when pain is so bad that it has me in tears and I don't like my family to see me like that. You have always been in my prayers and I glas you checked in with us, it's good to know your still with us. I will be praying for your surgery, that it goes as it should and that you don't have any issues or complications from it. Please keep us posted on how everything goes when you can.

Your friend Moparmom

Jul 09, 2017 6:12 AM

Hey Profiler.. I have missed seeing you and you've been on my mind: please feel free to send me an e-mail or private message and I'll be happy to chat with you. If there's anything I can do to help you feel better, please let me know. Sending you positive vibes, gentle hugs and well wishes your way🤗💕

Jul 10, 2017 2:00 AM

Thanks everyone for being there for me especially since I have not been around for anyone for a long time. I just have exiled my self to my room and banned myself to being alone. I didn't want to have a negative affect on anyone. I should have thought of all of you all. Just by your comments and thoughts, you can can tell that you and we have so much more to offer people besides maybe being able to do something physical. But as a group, you have been and we can always be awesome when it comes to our abilities of being empathetic and compassionate. Because of our pain and experiences, we often sense others before they even tell us. And that has been able to be made into a gift.

My surgery went well as far as the procedure was concerned. I had to have my ankle fuse again for the seventh time. I developed severe arthritis in a joint on the foot that they did not fuse. I wish I could go back in time and tell them to include that with the other surgeries.

I had encountered a problem after surgery. I didn't wake up for quite some time. The doctors were getting quite worried and making my wife cry because they were scaring her. I went into surgery around 11:00 A.M and I eventually woke up around 8p.m after an hour of surgery. My blood pressure remained low for two days. But they let me go home the day after surgery since I wasn't dizzy or passing out.

My pain levels have been doing very well. My wife has been taking care of me very nicely without complaint and she is keeping in mind how much I hate that she has to be in this situation. She is being really sweet and really nice. She doesn't want me to feel bad at all. It has been a relief. Friends have been stopping by with meals to lighten my wife's load too. It has all been nice. It has been a prayer answered. I did pray about it. Thanks for your thoughts, hugs, and prayers. Even when I don't deserve them. I will try to be a better friend.

Jul 11, 2017 8:07 PM

@profiler you are a great friend . We all deal differently . I am happy you pulled out of it . And I am sad that you didn't wake up soon after . But really happy you and your wife is okay and your surgery went good 😊

Rest a lot . Take it easy . Oh and your wife sounds as Awesome as my hubby . He is the same way . Taking really good care of me . And won't let me feel bad about it at all 😊😊🤗🤗

Jul 14, 2017 7:28 PM

It's so good to hear from you again! I admit I go through spells where I don't communicate myself. I can go weeks without talking to anyone other than my other half. I'm so glad your surgery went well and while it took you awhile, I'm glad you woke up after! I hope you heal much better this time around.

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