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In REMISSION

Sep 13, 2016 5:55 PM

Hi guys,
So I had a really good appointment with the neurologist this morning.
Amazingly, went from discussing having a VP shunt put in last month , to this month hearing the words, "Amanda, the swelling has gone down to almost nothing and you are in remission from pseudotumor.
I just can not believe it at this point.
But, still something is kind of weighing heavy on my heart tonight.
With this surgery on Friday, that is it. There will be no chance of having children of my own and I'm kind of grieving that a little bit.
But if it makes the horrendous cycles stop, then so be it already.

Sep 13, 2016 9:14 PM

I'm happy for you that you're in remission and I understand not being able to have children. My Hubby and I couldn't either. Gentle hugs as you grieve. Do you have support in place for after your surgery and recovery?

Sep 14, 2016 4:20 AM

The world is full of children. I just adopted my son's friend and have their friends stay at my home. Exchange students need places. Shelters need people. I am proud of your progress

Sep 14, 2016 5:26 AM

I am sorry to hear that! Happy you are in remission but so sad to hear you won't have any children of your own.my thoughts are with you💕

Sep 14, 2016 5:42 AM

I actually was up most of the night trying to wrap my head around the enormity of that conversation. And thinking, Was it real or just my imagination? But no, definitely real.

Sep 14, 2016 7:58 AM

Amanda, I am so happy to hear that your in remission! YAY!!

I am so sorry to hear that you won't be able to have children of your own. My aunt couldn't have any children because she was infertile, but that didn't stop her from having children, as she adopted I think the total in all was 7 kids and that was keeping two sisters together so they weren't separated. Their is always kids that need adopted when your ready to start having kids check it out. I'll be praying for you. love, Gentle hug's and Prayer's headed your way for a brighter day ! 🙏💖🌹💐🌞

Sep 14, 2016 9:17 AM

I'm glad you have support in place. It really is a one moment at a time thing. Adoption any other suggestions are just the same as having your own. I know. It's also a very long painful roller coaster expensive process. We chose not to go through after 3 rounds of IVF and the cost mentally, emotionally and physically of the whole process and 7 losses. If you ever need someone to talk too let me know. 💜

Sep 14, 2016 10:49 AM

Amanda, so glad to hear that you are in remission!! That's a wonderful thing to find out. I know you're worried about Friday and that when all is said and done, you'll not be able to have kids but am extremely proud that you pulled the positive out of it (in that your medical issue will be solved). I know how you love being an Auntie and how you love to make the kids giggle and play with them. Well, you spend time with them, spoil them a bit and love them with all your heart (as you already do). Down the line, if you feel the need to have your "own" kids, check into adoption. You'll get through this, I know you will. Keep looking to the sunny side of the road and you'll do just fine.. You got this, Girl..! 💕

Sep 14, 2016 12:33 PM

*I meant not the same as having your own. Sorry about that.

Sep 14, 2016 12:59 PM

Thanks guys. It is so refreshing to come here after a very long/hard day and look at these responses. I must admit I did not expect to see the outpouring of love and support. It made me leak a few tears this afternoon. Hey Gibber, there is another positive that I can pull out of the situation. When I have my period, my IC has been known to flare up at the drop of a hat. I'm hoping that this will also help with that issue as well.

Sep 14, 2016 1:17 PM

Here's hoping! 💜

Sep 19, 2016 10:38 AM

Amanda I'm so happy to hear about the remission. I know you're grieving about not having children. Sending you big hugs with love and prayers!

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