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Inflammation markers and low vitamin D

Nov 13, 2016 12:33 AM

I had blood tests done last week or the week before and gave a urine sample at my last Dr's app because I still constantly feel like i have a water infection (I've felt like I've had a constant water infection for months but every urine sample I've done has always come back clear)....if I have trouble remembering what I did 5 minutes remembering what I did a week ago is almost impossible!

Back to point....when I rang the doctors surgery to find out if my blood and urine results were back they booked me a telephone app as my GP AS she has no face to face appointments available till mid December!
When I was speaking to my Dr she said that I have slightly raised inflammation markers and low vitamin D in my blood test results and in my urine sample there was a minimal amount of white blood cellsl.

She said she'd done me a script for the vitamin D but as for the inflammation markers she said that she couldn't see a reason why and there was no infection present in both blood and urine samples. She said that as the inflammation markers were only slightly raised she didn't think there was anything behind it and it's nothing to worry about, there are no underlying causes for it, it's just one of those things!

I also asked her about when she said I have Post Traumatic Stress disorder and was it a proper diagnosis she said I have all the markers for it and she strongly feels that I have it but I've not been formally diagnosed with it and when I see the mental health nurse she may be able to diagnose me (a diagnosis like that apparently can only come from the mental health services)

Well I'm still unsure that there's no underlying causes as my knees, hip joints and lower back from the coxes up to the curve in my lower spin (sorry don't know the technical words or what disks they are) all hurt, some days the pain is mild where as other days it's more painful.....even with the pain meds I'm on!.....I also have a lot of pain with my left sided trigeminal neuralgia and pain in my neck and shoulders which has caused pins and needles in my left finger tips but now I also have a tingling sensation under my left shoulder blade on top of the fact my neck is numb but hurts at the same time....a really weird sensation to have. You could press a cocktail stick into the back of my neck where it meets my shoulders and I wouldn't feel it! On top of all the joint and muscle pain I constantly feel exhausted and drained all the time, the feeling goes far beyond than just saying I feel tired it's more than tired and it's soo hard to get myself up and moving no matter what time of theday it is.

Am I just being a hypochondriac and imaging it all like some people think and imply or should I keep going back to push for more answers?
This is all just soo confusing and is bringing me down even further 😟

Nov 13, 2016 6:16 AM

Hi Sezzy, based on what I can recall from yr other posts ... If you didn't have PTSD I'd be surprised. Same here for dx mental health Dr is needed .. cbt is the only thing going and you have started that I think.
Guh about the water infection. I had a lot of issues first year at college .. stress seemed to trigger it.
I use rescue remedy sometimes for anxiety ... Might help yr daughter? My son has anxiety issues due being autistic and managing his world ... I found gaba vitamin helpful and L-theanine helpful at times .. they have chewable here in Canada. Something to google.
Funny when you list everything it's like geezzz that's alot to be going on in one body. Well know all of us more then believe you .. wish I had a magic wand.
Hope you discover a few extra spoons today.

Nov 13, 2016 7:20 AM

Could you have possibly developed food intolerances? I only ask because for years I had raised inflammation markers that the doctors shrugged off because there was no reason for them that could be found and it wasn't supper high. But I was in absolute agony and ready to end it.
I got desperate and went to a naturopath who said it sounded like food intolerances. Once the intolerances were found and eliminated from my diet my pain went from kill me now to mostly managable.
I have developed more intolerances as time goes on. But because I avoid them (mostly) my inflammation markers are lower.
As for feeling like having an infection, my pee is highly acidic and if I don't drink enough water (which happens to be a lot) it is incredibly painful to go. Are you drinking a lot of water?
I hope things calm down for you soon. Doctors miss a lot of things. Don't give up on finding answers. I gave up on medical doctors and my naturopath is now my primary care physician for my conditions even though she isn't recognized by my insurance, work, or any doctor as being a doctor. My medical doctor is for when new things show up, prescription refills, notes for work, referrals to specialists and physicals.

Nov 13, 2016 7:28 AM

Thank you foggurl, I have started cbt counselling and my session last week was the time I realised I really wasn't holding myself together anymore and just let everything come out and then again when my mum called I just couldn't stop crying.
The thing is I still don't feel better for letting it all come out, I just feel worse because everyone is worrying about me. I think some of them think I might do something stupid but that's far from right, the only time I've been close to suicidal was when I was on citalapram and venaflaxine antidepressants (not both at the same time....I had them 6 months apart but they both had the same affect on me). I have my two babies (even tho they're 14 and 10 they will always be my babies) to think about but when I can't cope, get overwhelmed and anxious I shut down and my ability to function goes out the window and the neuralgia pain which is always there and fluctuates anyway without the anxiety, goes high with it as well. At these times the only respite I get is when I'm sleeping so I sleep even more. And I have noticed triggers the last one was my ex husband messaging my cousin to say he's going to my mum and dads (he knows where they live because they moved there just before I left him) and tell me what a bad person I am and to see the kids (only my 10 year old is his).
I know that was the straw that broke the camels back so to say and I know the anxiety is irrational but I can't get out of this downward spiral.
I'm trying to get things in place to help me it's just taking soo long to get things moving

Nov 13, 2016 7:31 AM

Sorry didn't mean to go on soo much but it's like this is the only place where I'm not made to feel like that I should just snap out of it and stop being so..... I can't even think of the right word for it!!!

Nov 13, 2016 8:03 AM

I would get a 2nd opinion

Nov 13, 2016 9:17 AM

Sezzy, I don't know if I mention I also have PTSD. Abusive relationship that ended in him assaulting me . . I haven't done cbt since there is cost to it here in Canada and but there needs to be after care when you start ... When your triggered and what meds.may support the fight or.flight response ... I'll inquire about stuff to do from a mate since she has done more cbt work.
The physical blow out is incredible isn't it? Combine with the daily pain I'm not surprised you need to sleep more ... Apparently writing out the trama and rereading it takes away it's power. That's my basic understanding.
Yes I understand the stress of the text ... I had to move in with mom and he knows where she lives .. it is a hum of being alert ... He had limited access to our son, who is autistic but it's been years now since the last visit. But crazy angry doesn't change ... I'm waiting to see some link between chronic conditions and fibro linked by PTSD ... There is a light at the end if the tunnel. Like chronic pain ptsd and domestic abuse is hard to understand unless you have lived it ... Hang tough you're doing a brave and good thing for yourself ... Ativan after a session??? Hugs

Nov 13, 2016 10:22 AM

Thank you foggurl, I'm finding it so hard at the moment especially as I haven't seen him for about 15 months and our daughter wants no contact with him at all, he knows where mum lives but not where we live so it also makes it harder for me to feel safe at mums even tho I know he wouldn't be able to do anything but it's still there going around in the washing machine of my head!
I think at first I was functioning and doing everything I could to keep my kids safe but the kids are ok now, minor bumps here and there like normal everyday life holds but nothing out of the ordinary.

I never realised how much it all affects the physical body as well as the mental health. The two combined is just awful and yes I can sleep a lot but it's all broken sleep so it's not restorative sleep.
I fell asleep earlier a on the sofa for a bit and Jo said that I kept jumping about and said "no leave me alone" a few times! I'd only been asleep for about 20 minutes but because she was worried about what I was dreaming she woke me up and I'll say now hand on my heart I have no idea what I was dreaming about, I don't remember a thing but it frightened Jo and I'm sure something like that would frighten most adults let alone a 10 year old girl.

I've never heard of writing the truma out and rereading it , that might be worth a try because I can mostly talk about it and have spoke about it in depth with a couple of talking therapies and with a couple of people who were in the woman's refuges with me but that hasn't helped me at all....that's also 1 of the reasons why some people think I should be over it by now. Oh if only that was the case!!!!

I wonder if this sort of stress could trigger other autoimmune conditions? From what I understand type 1 diabetes is an autoimmune illnesses because it's the body attacking the pancreas so it stops producing insulin and my 10 year old was diagnosed with it mid august but there are genetic factors as well because my paternal grandmother had type 1 diabetes as well.

Foggurl any info I would greatly appreciate, at this moment in time I'm willing to try anything because every area of my life is affected by this....both the Trigeminal Neuralgia and the PTSD, the more I read about it the more I believe I have it as well but knowing and feeling seem to be two completely separate things!

I've found there's a lot of people who say they understand one or the other but then do, say or suggest something that completely belies and contradicts that so I've given up on speaking to certain people about anything other than the weather!!!

I wish there was a way for you to get more help, it seems unfair that you've been thro all that and still expected to pay thro the nose for something that you need to try and move forward with your life so you can enjoy living again and not constantly looking over your shoulder at the past because of the PTSD and the triggers that put you right back to square one 😕

I'm going to try rescue remedy for both me and my daughter to see if that will help us. Thank you again foggurl {{hugs}} XX

Nov 13, 2016 10:29 AM

Sorry gotobef I've only just seen your reply.....my head isn't with me much today!!!! Could food intolerances also cause sudden and very itchy rashes to come up on my chest and legs as well? The past 2 days it feels like I could scratch the skin off the top of my bobs and chest and milder itching on my thighs and knees.
It's not from the central heating because putting on moisturiser stops that and I've used a couple of creams including my son's exema cream but it feels like it's burning and I've never had that before?

Nov 13, 2016 10:52 AM

Hmm she said that writing exercise was to desensitize anxiety .. her internet is very slow so I keep asking. She also said it's designed for the individual based on goals. So I guess you need to let the therapist know you were triggered and need coping skills if possible.
I really feel that I would prefer to be living in my own place to cope with cbt ... To have the space to sleep without explanation to anyone . . Just makes it worse.

Nov 13, 2016 10:53 AM

Oh and I normally drink anywhere in the region of 4 to 8 pints of water a day with a few large mugs of herbal teas like peppermint and liquorice tea or cinnamon tea....not keen on the fruit teas tho!

Nov 13, 2016 10:58 AM

Hi pink3515 sorry not doing well with my replies today!!!
I think I've been to all the doctors in my surgery and they're all of the same opinion once they read the notes.....there's one who definitely thinks I'm faking it and said I should get a job!!!

Nov 13, 2016 11:50 AM

Hi Sezzy. Food intolerances could easily cause rashes, so could intolerances to ingredients in personal care products like shampoo, lotion and laundry products. Given that is worse on the chest and less on the legs I'd look at the hair products your using too. I had that happen when i used a shampoo my body decided it didn't like and because i washed my hair in the shower it ran down my body and caused a rash. I had to go 'toxin free' for all my personal products.
Stress can also cause rashes.
The nurse at my work recommended checking out calm.com and going through some of the 'exercises' they have. They have an app too you might want to check out if you dont want to go on the website. It seems to be good stuff, and some of it is free. I don't think trying it could hurt. And it could be something you and Jo could do together to help anxiety and relax in general.

Nov 13, 2016 3:44 PM

Thanks gotobef, I'll try calm.com I did have a meditation app before but the music started to get on my nerves....it would set my tinitus louder than normal but that was at the start of this flair 6 weeks ago!
I'm not sure if it would be my shampoo or conditioner because I've been washing my hair over the side of my bath as it less painful with my TN. The only new thing that I've introduced is epsom bath salts. Being a larger lady especially in the chest area , it doesn't normally go in the water too much and I always shower after a soak in the bath.
Because my son seems allergic to most washing powders and soaps I have to use a non-bio liquid and have been using it for a while now as he doesn't seem to react to it.
What I can work out its either the epsom salts which I've been using for a few weeks twice a week or a food intolerance....my mum has a few intolerances like if she has too much dairy she gets headaches and too much wheat bloats her out and my daughter can't have orange in any form as it give her severe diarrhoea and horrid stomach cramps.
I think I'll look into the naturopath but it'll probably be after Christmas now.....Jo pulled out the two large boxes of Christmas decorations that we managed to keep and want to start decorating....she loves Christmas but then so did I up until recently 😕

Nov 13, 2016 3:54 PM

Foggurl I'll have to ask my counsellor about the writing down bit. I have told my cbt counsellor pretty much everything that I remember then more each time as I remember more....I think I've blocked a lot to protect myself apparently it's something I learned in childhood and there are parts of my life which are completely blank that I have no memory of at all. My next sister down has the same thing there are bits I remember that she doesn't and there are bits she remembers that I don't. My sister was also diagnosed in college with having a short term memory dyslexia. I don't know the ins and outs of it but it's never held her back.

I hope you are able to find your own place so that you can get in to your own routine and live how you want to live xx hugs xx

Nov 13, 2016 4:03 PM

Thanks Sezzy ... It's a small window ... Need disability to be accepted and my mom is in good health but she is not getting younger. I'm sure it's been hard for her over the past 2 plus years us being here. It's tricky and physically hard being here ... Details just sound like whining .. just add stairs 3 levels pain and bad memory ...

Cripes ... Nothing like memory holes. I have forgotten stuff I'm sure ... big hugs!

Nov 13, 2016 4:29 PM

Foggurl I'll pray that you get your disability and then be able to move on with your life....you'll have to keep me updated on how it all goes so we can celebrate with you.....oh at times I can be the forever the optimist!

Big hugs and positive vibes being sent your way xx

Nov 13, 2016 4:36 PM

Thanks aren't you in the UK? I just did the time change so I'll I wish you restorative sleep tonight!
Catch up soon!

Nov 14, 2016 1:52 AM

Foggurl I was about to reply to you and the next thing I know it's 1am and I had the phone in my hand and my glasses still on!!!! Lol
I got up went to the loo, back to bed took my glasses of and phone on charge and surprisingly went straight back to sleep!!! I won't mention waking up every hour after that tho.....but roughly three and a half hours sleep wasn't too bad!!!!
Back to the school run now....yawn xx

Nov 14, 2016 5:06 AM

Just starting my school routine as well. .. thankfully my son wasn't awake before 5 am ... 3 mornings of that really helps my already crappy sleep lol.
Hope your day goes well ... Trying to decide what to put on my list today.

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