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Injury induced fibro

Dec 31, 2015 11:23 AM

I've been dealing with the ins and outs of my work related injury of almost four years now. Torn labral tendon in my left shoulder (surgically repaired a year after the injury) and a bulging disk in my c6-7 vertebrae (removed and fused three years after the injury). I deal with pain daily. There are days that I struggle to even function but then there are days I feel amazing. My struggle days last about a week maybe a month but then takes a few months to recover from. Then the days I feel amazing last about the same, maybe a week or two. Only to immediately followed by the bad day. I'm wondering if I have injury induced fibro, it's frustrating because I like being active and I can't even depend on my own body to keep up. I'm talking to my PCP next week about this and hoping to get a rheumatologist. Any information or ideas on what my be going on with my body would be appreciated. Thank you.

Dec 31, 2015 5:46 PM

I have injury induced Fibromyalgia. It sucks. I have a work injury, my left shoulder, that I cannot seem to get over. After 2 1/2 years of nerve conduction, shock wave therapy, TENS therapy, cortisone shots, deep tissue massage, chiropractic, cupping, heat and laser, ultrasound and acupuncture, I finally got my GP to refer me to Arthritis Society. This past September I was diagnosed with acute aggravated Fibromyalgia related to injury and multiple asserbating therapies. What they thought would heal me just gave me excruciating pain.
Please get in to see a specialist for Fibromyalgia as well as get your thyroid checked. I have a severe hypothyroidism called Hashimotos. TSH results can be frequently normal with hypothyroidism so get the full testing done for Hashimotos. It drains your energy and makes your brain foggy, just like fibro.

Jan 01, 2016 12:45 AM

Thank you so much for the info. Sounds like you and I have almost the same issue.

Jan 02, 2016 2:15 AM

I was in a car accident where my spine was fractured in the lower lumbar area L5s1 and I have 3 bulging disks in my neck which I will not allow anyone to touch unless the pain becomes unbearable. They had to fuse my lower lumbar it but because my pelvic was out of place they've fused my left hip to stabilize the area. I live in pain every day. Well anyway about a year in the pain was so bad I didn't know what to do it was all over my body. The pain medicine that always worked for me wasn't even touching the pain. So I go to my primary physician and after he sent me to have a ton of tests and they all come back negative he tells me I have fibro that was induced by injury. I'm on Gabepentin to keep the fibro under control thank goodness it works for me. But if I miss it even by an hour I feel a flare up start to begin. It really sucks for us to be dealing with something so bad already then to make matters worse we end up with something else on top of it. I hope you feel better and are being treated by a good doctor.

Jan 02, 2016 2:27 AM

Oh man, sorry about your pain. Yes my PCP is good, along with me doing research on my symptoms. He listens to me and between the both of us we generally figure out what is wrong with me. I also fight with anemia so I've gotten infusions to rule out low iron being the problem, come to find out through research that anemia can also be caused by fibro... Long story short I'm going to request to be seen by a Rheumatologist. Hoping for you that your pain stays minimal. I made myself get out of the house today and go see a movie, I enjoyed myself despite the pain of having to wear actual shoes today. Lol. Talk about achy feet. Got a little annoyed by the sick people to the left and right of me knowing that their illness could send me into a bad "episode" but none the less I at least got to see the new Star Wars movie. 😊

Jan 02, 2016 2:34 AM

I get out at times I force myself and typically pay for it later. I hope they figure it all out and get you on a regimen of medication that gets you back to normal well as close as someone like us can be. My worse struggle next to pain is my memory. I feel like I'm 90 years old and can't remember the simplest of things. (I'm going to see Star Wars tomorrow :))

Jan 02, 2016 2:37 AM

Thank you, I hope so to. Enjoy the movie. 😊

Jan 02, 2016 5:00 AM

Lvnhurt and Daniell77,
We've had a rough go of it, all of us on here can relate.

This is my story:
I had a car accident in 1987. A BMW drove into the driver side of my '78 Mini 1000. She ran her stop sign.
I didn't break any bones, I did dislocate almost all of them. Both hips dislocated. Lumbar disc bulge. All ribs but one popped out, back and front. My jaw dislocated, left knee and left shoulder as well.
9 months of excruciating gravity traction followed, bone manipulation done repeatedly (as my muscles were bruised and tense, any slight movement would pop out a bone or the disc.
That ended all sports and removed me from my nursing programme. I was 19.
I developed an extremely high tolerance for pain over the next years. Had to to hold down a job. I became OCD as a way to always have something else to focus on.
Until I was pregnant at 26. The agony of the 43 week pregnancy, with the 36 hour back labour ended with me on morphine and an emergency c-section. And also ended my marriage.( that's a good thing)
My son is healthy and nearly 21 and I am 48.
I've lived on prescription pain killers for over 2 decades. I started a career with an airline at 21 and moved many times, which meant many doctors, many clinics. I was told I was a hypochondriac because my pain was everywhere ALL the time. I pleaded with many OBGYN and GP and triage doctors for the past 20 years to remove my plumbing. I had developed Endometriosis after delivery but I was refused.
( I mercifully went into early menopause 2 years ago. )

My liver is shot from chewing Tylenol 3 like candy for decades for undiagnosed pain.
I left the airline and graduated as an LPN in 2005 basically to know what to do for myself. I now have a wonderful healthcare team.
The Arthritis Society here has been brilliant. From the many agonizing years of sketchy diagnoses (or lack of) plus injuring my left shoulder at work 2 years ago I now have zero pain tolerance. No more caring for my Dementia seniors which is sad, gave me a reason to wake up.

I have a list of medications as long as my arm for my rheumatoid arthritis and Fibromyalgia, inflammation. I received counseling for depression, PTSD, anxiety and spousal abuse. Also on medication for that and hormonal changes. Chronic nerve impingement in left shoulder with calcific tendonitis is still a bugger, will always be. Physiotherapy is just another torture session but have to go twice a week. A requirement for LTD.
I have sleep apnea, use c-pap. Memory sucks but I get to call it fibrofog now.

I am still in agony. Doubtful they'll develop a drug to fix that. Not sure I'd know what to do with a pain free day anyway.
But my ESA dog is my life saver now. Non judgemental unconditional gentle giant. best therapy ever.

And .....after all of that, my employer expects me to return to my nursing job.

So I come on here and read about everyone and realize as unique as I think I am, I'm not. I'm not even the worst of us by any measure. I'm just one of us. And I'm morbidly incredibly grateful I'm not alone.

Jan 02, 2016 10:26 AM

Yes, it nice to know that we are not alone and it's not all just in our heads. I'm going to try a product called Plexus, I've heard that people with fibro have good luck with it. It's a probiotic program that helps with weight loss. I figured that I have nothing to lose but weight. About that pain tolerance, yeah what's up with that, it seems that mine is getting lower and lower. Ugh. Anyways I fought with insomnia last night, hoping I get to nap today.

Jan 02, 2016 10:00 PM

Welcome Luvnhurt, and Daniell77! Ouch on all of your injuries! My fibro I'd genetically predisposition, multiple surgical stresses, and multiple autoimmune problems; hypothyroidism & Sjogrens with the fibro. And as I've learned from others here, once you get one autoimmune issue you can get more. I call mine the triple whammy. I was started on Plaquenil for the Sjogrens, which has been a blessing since I have so many allergies to meds, especially pain meds. It really is sad that there are so many of us, but it's so wonderful to have a support group that really understands! I've learned to pace my activities with rest in between. And when I'm sick with other problems, like now with a head/chest cold, I don't do anything unnecessary. I also suffer with the fibro fog, but in Jan 2015 was dx by a doc with dementia (not sure on that although there is changes on an MRI from 2012 & 2014). (((Hugs))) & prayers for you all! πŸ˜·πŸ™πŸŒΌ

Jan 02, 2016 11:02 PM

That is horrible Elqe. I have been blessed with dress who listen. I'm not sure where I would be if not I will not lie. I do not know how you did it. I'm very happy and proud you were able to get your nursing degree later in life! Although with everything going on in can't see how they expect you to go back. You're doctors should be fighting for you. I was in law enforcement and once I got the metal with the lower lumbar fusion and hip fusion I was unfit for duty. It broke my heart for 2 years but now I feel like it was a blessing in disguise. I also am on narcotic medications but for 5 years. I hate them, I hate the changes my body goes thru because of them but if I miss it I can't walk. My pelvic was pushed out of place so everything down in that area grinds it hurts to move. I can't bend at all I get stuck. I can't toe my own shoes or shave my own legs. I hate it but then I see those that are worse off then me and I suck it up and do what I have to do. I am blessed to have a great family who help me with everything. I don't even do laundry anymore my husband does and he works full time he's a Lieutenant in law enforcement so it's not like he's not busy. I feel very blessedβ™‘ I pray you get some relief and if nothing else they disable you. :( I'm here if you if anyone wants to chat or needs verbal support.

Jan 02, 2016 11:03 PM

Oh no dementia, hopefully your doctor is referring you to a specialist for that. Today was actually a good day for me, I was able to get quite a few things done today. Like grocery shopping, changing the oil in my car, took my big trash can out to the dumpster and put my new vacuum cleaner together. I did all of this while I feel good today because I can feel an "episode" coming on, the nervousness is building up, the feelings of not Wanting to go out in puplic and the odd aches and pains working their way in.

Jan 02, 2016 11:11 PM

I'm so sorry Flappsy
I can only imagine adding other serious conditions to fibro. :( I hope you have good days more then badβ™‘

Jan 03, 2016 9:54 AM

I feel like I'm in that group too my fibro started after surgery now I feel like I'm 90 and I'm 51! I have depression it just sucks it just plain sucks I have to work full time I hurt so bad some days when I take the medicine and it makes me feel like I'm you know half out of it I just hate it

Jan 03, 2016 8:23 PM

Oh Newty I know! I've been disabled be 2010 I'm 38 now and my hair is almost completely white. I don't know if it's the meds but it's horrible. My pain level is constant is just whether it's a 5 or a 9 when is a 10 I go to ER.

Jan 03, 2016 8:28 PM

Right there with the both of you, I'm 44 feeling like I'm 80 trying to keep up with a 16 yr old kid. I guess he keeps me going because I have to get out of bed to get him out of bed.

Jan 03, 2016 8:31 PM

Oh I know we have 3 at home one 20 year old boy moved out a few years ago. 18 year old girl goes back to college end of January, 15 year old girl, 11 year old boy. Just their sports alone wear me out!

Jan 03, 2016 8:37 PM

No kidding, my boy is into motocross. Talk about nerve racking. Just last year he broke a vertebra in his back and already back on his bike. That doesn't do much for my nerves. Lol. My daughter just got married last month on the fifth, thank god I was having a good spell. Oh I also had to do a forced retirement just to pay bills because I haven't been designated permanent stationary yet.

Jan 03, 2016 8:45 PM

Lvnhurt, I'm under a psychiatrist & psychologist & rheumatologist, and they can tell I struggle, and they're very supportive. But the PCP says because Mayo didn't think it was dementia I don't have it. It's so bad that now my hubby is able to fill in the blanks. I'm trying not to stress out about it even though my 85 year old Dad has Alzheimer's, & so did his mom. Why borrow trouble from tomorrow, when it takes everything I have to get through today?

Daniell77, I do seem to have more good days than bad, after starting the Plaquenil. But when the bad days come they take everything out of me. Compared to so many of the community, I feel like I'm the lucky one. With so many medication allergies I'm unable to rely on meds a lot, so I feel blessed to have a high tolerance. Or at least I feel like I have a high tolerance. My hubby says he can always tell when I'm having a bad day. I'm blessed he's so understanding. I couldn't ask for a more devoted spouse, father, son, or friend for his family members & friends.

Wishing you all a blessed night/day of less pain! (((Hugs))) & prayers! πŸ˜·πŸ™πŸŒΌ

Jan 03, 2016 8:51 PM

I just hope that my pain tolerance keeps like it is, like you I feel blessed that I am able to do the things I do even when I'm having an "episode".
Keep up with your PCP as a nurse you know how important that is, maybe that's why you and I have had good luck with doctors being that we know how to talk to them and tell them specifically what is going on with our bodies. Stay well Flappy I'll keep you in my prayers.

Jan 03, 2016 9:35 PM

On no Lvnhurt there would be no way I'd be a wreck and after that type of injury that bike would have been sold :( scary

Jan 03, 2016 9:41 PM

That is awesome Flappy I truly feel like that is the make or break between so many. Having a supportive person one who knows when your down and out one that just knows ya know. When my pain level is really high my face friends bright red. So there's no hiding it although I will try Lol I hate feeling so helpless. It kills me to need help shaving, I swear if for nothing else I love winter because I do not have to degrade myself to ask for assistance shaving my own legs. I just buy shoes that don't need tying now I wish the legs had a quick fix also.

Jan 03, 2016 10:37 PM

Hello everyone, I'm so sorry to each of you for going through all that you are. It's so difficult to talk to anyone who truly don't understand what is going on and how to deal with it.
I started seeing a therapist through my employer, who has recommended different ways to cope, the latest I've done was Journaling and color therapy .
Sleeping is non-existent this entire holiday weekend, and not by choice. If I had 3 hrs a night that was alot. Naturally no sleep = increased pain.
I haven't been declared disabled, but I do have the handicap placard from motor vehicles, I don't use it as often as I should.
All mine started from a tick bite.

Jan 03, 2016 10:44 PM

Oh noooo, damn ticks. I hate those little buggers. I haven't been declared disabled either, I see that dr on the 20th. I don't know if I even want a placard for my car, you know that whole I'm not that disabled thing going on in my head. Although there are those days where it would be really nice to be able to park a little closer.

Jan 03, 2016 10:47 PM

Danell77, I have no choice my ex husband bought it for him and continues to take him out. Plus being a mom of an motocross rider I know he would find a way to ride even if I didn't let him. So being the responsible parent I make sure he has medical insurance.

Jan 03, 2016 10:56 PM

Lvnhurt, I felt the same way you did, and it took me 3 years to ask forbit, as well as using a cane when I need too. I don't use the either as often as I should because of that thought process in my mind. My dr scolds me for not taking care of myself since I do that

Jan 03, 2016 10:59 PM

I think what gets me mentally is I have the awesome wonderful great days that I'm sure I can return to old my old job then...BAM it's all I can do to get out of bed. What I commonly refer to as my episodes.

Jan 03, 2016 11:01 PM

Yes! Though my wonderful days lately are far & few now. Especially with the winter now here. Don't hurt yourself more, if you have all the pain, talk to your dr about it.

Jan 03, 2016 11:02 PM

I plan on talking to both my PCP and my workers comp dr about it this month.

Jan 03, 2016 11:04 PM

Please do. I had to go to a specialist as my pcp wasn't as understanding or in my opinion knowledgeable about it

Jan 03, 2016 11:08 PM

My PCP was the one who brought it up first but then we noticed that I had low iron levels, so both he and I presumed my episodes were because of that. But even after the iron infusions I still had pain. Also doing research I found out that some people with fibro have low iron levels.

Jan 04, 2016 11:35 AM

I gave in, swallowed my denial & pride (@ 54) and asked my pcp for disability parking six months or so back. I was no longer able to walk through Walmart or a grocery store, get my items and get back home, due to all the walking. I'd give out of breath and energy. I have a permanent tag plate now because my doc said I need it. And I ride an electric cart. I've had too many people see my tremors and ask if they can call someone or an ambulance, I guess thinking I'm diabetic of something. Needless to say I no longer shop alone, I give out. (((Hugs))) to you all! πŸ˜·πŸ™πŸŒΌ

Jan 04, 2016 11:55 AM

Yeah, I have those days where I should have stayed home. I usually have one of my kids with me. Thankfully those days are few and far between for me right now. I had one day that it happened while I was driving. Scared the crud out of me.

Jan 04, 2016 8:06 PM

Went to my PCP yesterday and talked to him about my symptoms, got a bunch of labs done and scheduled an ultrasound on the bump on my head that swelled up within the past few days.

Jan 05, 2016 4:45 PM

I scared myself while out alone too... Not fun! Praying your tests show needed answers. πŸ˜·πŸ™πŸŒΌ

Jan 07, 2016 3:56 PM

Ok sooooo, I've been doing my yearly check ins with my PCP. Got labs done Monday, here it is Thursday and no results yet. 😳 Plus I got this interesting new bump on the top of my noggin what the heck is this. 😱 Took my usual two hour drive I have to do at least once a month to see my workers comp dr only to wait two hours to spend five minutes in a room with him to update him on everything being the same. Then a little light food shopping and make the two hour drive home made it home achy and cranky. Today started another day on medical appointments dentist which went great only a little plaque buildup, then an hour wait to get this bump ultra sound done, now a three day wait for those results. The joys of living in a rural community.

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