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Interesting info on MS & CIS-clinically isolated syndrome

Feb 25, 2015 9:23 PM

Since several of us have doctors suspecting MS, after coming across this I thought I'd share the link.

Also, in testing for MS it mentioned having Evoked Potential Tests.

Feb 25, 2015 9:58 PM

Very interesting. Thanks for sharing.

Feb 26, 2015 7:44 AM

I pretty much read that website last week. haha. I am being encouraged by my friend (who has ms) to continue to seek out an MS specialist and continue down that road that the neurologist blocked off yesterday. I'm not close enough to a big city for this....sigh.

I really hope you have a doctor who's willing to do all the testing.

Feb 26, 2015 8:07 AM

Aliya, my neurologist said he could send me to the clinic w/o doing the lumbar punch, but most of the time they prefer all tests (that can) be done locally so they can focus on what's not usually available local. I hear many doctors say MS is one of the hardest DX to pin down because it flares & reduces so much until its full on. I'm not looking forward to the lumbar punch!

Feb 26, 2015 10:15 AM

Flappsy I have been having these episode's and my Dr's can't figure out what is causing it. In December I had one t hi is was my third I had a out 3 more but they didn't blast but a couple hrs. The left side of my body is always where the symptoms occur. The left side of my face , arm ,body all the way down to my foot. It starts tingeling, numbness, my face draws I drag my leg and foot, they put me in the hospital and run all kinds of test for stroke hut thank God its all ways come back negitive. The Dr's can't figure out what is happening to me and quite frightening to me.They keep saying they don't know that it's probably my Sringomyelia acting up. I intend to ask about this CIS. Maybe he will check in to it but when I ask he usually poopo's anything I ask him. I live in East Texas . Houston is about a three hr drive and I might be able to find a specialist that takes my wonderful insurance.

Feb 26, 2015 12:54 PM

Thanks for sharing this info, FlappsyLady. I'll read it through. I love that we can all share info and help one another. Hope you all are having a peaceful, light pain day.

Feb 26, 2015 8:58 PM

I'm glad I found it, and that I figured out how to copy & paste the link. I'm still reading up on MS because my neurologist seems to feel it may be what I have. The PCP on the other hand disagrees, saying that if a certain test comes back negative then that's that... The exact opposite of the neurologist says.

Feb 26, 2015 10:16 PM

I think your PCP needs to go back to med school!!!

Feb 26, 2015 11:58 PM

I think almost all of them need to go back to med school! And some sensitivity training too!!!

Feb 27, 2015 10:36 AM

AlwayZ & hornsholdmyhalo, I agree about the PCP. I'm going to find a new doctor soon, if insurance will permit.

Feb 27, 2015 1:44 PM

I'm with you Horns! Back to school to all of them!

Feb 28, 2015 11:06 AM

I so agree. I believe my ortho needs to go back and have some serious Sensitivity training. Damn.

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