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intersistial cysitis

Feb 20, 2015 9:52 PM

I'm new here and was hoping to get some feedback about this illness. I was just diagnosed this week after 5 years of chronic pain and no one being able to pinpoint the issue. Any advice on how to help with pain? Specifically low back and the bladder pressure.
Thanks

Feb 20, 2015 10:19 PM

Interstitial Cystitis***

Feb 21, 2015 1:53 PM

Hi Torianne15. I have had a mild case of this. I didn't have the pain associated with IC but the frequency feeling and feeling of a full bladder etc... I have fibromyalgia and chronic back pain. I know that it is associated with other health conditions, autoimmune and fibromyalgia among others. I have a real good urogynocologist. After he ruled out that nothing was physically wrong with my bladder, he suggested I try bladder 'training'. He told me that when I get the urge to void ( medical term for urinate), to hold it for X number of minutes and then increase the number of minutes (could be 5, 15 etc) every few days. I have to say that it was successful for me IC has gotten way better where I on,y get up once or maybe none at night (down from 2-4 times). I have heard that a TENS unit may help for this, although I haven't tried mine there. Sometimes if you can get control of the underlying condition, you can in turn improve the IC

Feb 21, 2015 2:13 PM

I haven't been diagnosed IC but my Mother had it and bless herLleartit was so painful for her. I do have incontinence and before my GVS surgery in 2013 it was so bad I Had to wear diapers, but after my surgery it has gotten a lot better, I asked my Dr and he said it was probably all the fat pressing on my bladder. I don't have to wear a diaper anymore just those pads from'm poise. I ha ent really thought about Keglier exercises but they may help, I'll have to give them a try. Thanks for the information. I'm like you I just recently joined, and it's great having people to talk to that are going thru the samethings that I'm experiencing. That maybe something I or someone else is going thru or been thru can help someone .

Feb 22, 2015 2:09 PM

Thanks for the responses! I've heard IC is commonly accompanied by other conditions particularly fibro but my primary Dr doesn't really believe fibro is anything more than depression which is a joke. I've had several drs mention fibro to me which would explain the symptoms not associated with my bladder. But he doesn't seem to want to address it and send me to a rheumatologist..very stressful. I'm 22 and have dealing with this pain since I was 17 and really just wish I could find treatments that help...

Feb 22, 2015 2:55 PM

I had a quick fibromyalgia diagnosis last fall. And thought it was good that I got that. But then a friend told me how her doctors had been trying to diagnose her with it and she won't let them. Because she's seen over and over as a nurse that once a diagnosis like that -without a treatment plan- doctors tend to stop looking for what IS wrong; What is causing the fibromyalgia.

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