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Intrathecal device (pain medication pump)

Jan 18, 2018 6:53 AM

As I've said in the past, the doctor I'm seeing doesn't believe in in pain and won't prescribe pain medications other than low dose Nycenta. My pain is the worst ever in years and this is due to the lack of pain meds. To put things in perspective, I was taking 75mcg/hr Fentanyl and oxycodone 20mg X 4 a day. Low dose Nycenta barely helps but is non-addictive Anna has no withdrawl affects. He's a complete A******. Saying things like "just pain, won't kill you" and "are you hurting as much as you say or drug seeking?"

Honestly I don't care for meds. But my options are limited at this time. I've tried all sorts of beta blockers and nerve meds with no results, acupuncture, dry needling (idon't recommend for anyone with CRPS, makes pain worse for 2-3 days then better for a short period), meditation, yoga, stretching, gym, walking, CBT oil (without THC), Cognitive Behavioral therapy, tens, dissection of nerve, oblation, hardware removal, 3 spinal cord stimulators, reprogramming, brain retraining, support groups, and much more.

Thankfully I was able to reach out to the surgeon's office (SCS implant). They're willing to help but 12 hours away. He said we have exhausted all options and recommended pharmacological solutions and pain pump (bc of very low side effects). Now I'm looking for someone to help me with next steps, pump. It'll allow me to function without being groggy. Especially because I work with the public.

So here is my question, how effective is it for those who may have it? Do you have one? Which brand (heard about Medtronic). Any suggestions?

Jan 18, 2018 8:27 AM

I have never used an intrathecal pain pump, so I actually had to research about it. There are 3 FDA-approved pain pumps available in the US which are the Medtronic SynchroMed II, Prometra, and MedStream. Unfortunately most studies on the use of intrathecal pain pumps were done on cancer-related pain, and the studies for non-cancer related pain show only a very weak decrease in pain. Keep in mind that each person reacts differently so even though study participants didn't have a significant decrease in pain, you may have a large decrease in pain. Ultimately, the doctor who would implant the pump into you, would be the best person to get information and learn the expected benefits from.

Jan 18, 2018 8:40 AM

Thankfully, you'll likely get an opportunity to "try" the intrathecal device before it's surgically implanted. On a separate day before the surgery you will go into the clinic or hospital, you will be taken to an x-ray room, under x-ray guidance the physician will place an epidural similar to what women receive during labour. A thin tube is left in you're back and the same pain medication that's used in the pain pump, is injected through the epidural tubing. You will be asked to rate your pain levels before, during and after the procedure. After the trial the epidural is removed, and you will usually be kept in the PACU (Post Anesthesia Care Unit) for a few hours afterwards.

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