Hello, everyone! My name is Elle and I survive a number of diseases that are chronic and most are incurable, just treatable.
Every day I awake waiting to see what the day holds. I hope for the good days but survive the bad ones with as many smiles and laughs as possible. Thankfully, my significant other is hilarious and keeps me laughing.
I am very glad to have found this app for it makes me feel less alone and that there are those who understand & can be there for me.
I'm exhausted from a very stressful weekend and dealing with people who don't understand the severity of my illness. I don't think I can make much more sense. I'm sure I'm supposed to tell y'all everything I've got but i can't remember everything.
I was in a really bad car accident 12 years ago, fibromyalgia, chronic fatigue syndrome, spondylitis, neuritis, severe asthma & severe chemical sensitivity, intersistial cystitis, adenomysis, hypothyroidism and I am certain I've forgotten a few. I do know that the doctors are still searching for more answers..... Or as many as we know, diagnoses that just lead to more questions.
One last thing, I don't know about y'all but when I began this journey and was finally "officially" diagnosed with the first diagnosis, I had thought it would give me closure but then i realized it only opened more and more doors to questions. I had though oh so naively that they'd do blood work find an illness and give me a pill and I'd be all better. Hahaha. It took years for me to realize that it's an art not a science. And what works for me may not work for another. But that isn't going to keep me down. That took a while to cultivate the hope i have and the joy of living. Even though I live this life that others don't understand and often think I'm making all this up. That just makes me laugh. It used to hurt my feelings now i laugh.
Anyway, thank you for letting me introduce myself. I know I may have gone on for a while. How this wasn't too long of a post ;) (and I don't get responses tldr= "too long didn't read" Hahaha)
have a beautiful day, hopefully it's pain free but realistically what we can all hope for is support by those around us and understanding. And hey "if you can't make it better, laugh at it," Erma Bombeck
Healing hugs all around :D