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Introducing myself

Aug 26, 2015 1:21 PM

I'm nicknameless, I live in Nashville, have a pup and a wonderful partner. In January I had my first vestibular migraine and BPPV. So, vertigo for more than two weeks. By the time I got to into doctors (general, ENT, Neuro) the migraine had finally subsided and after all the test were run I was sent home with the basic instructions of hoping it didn't happen again, and if it did to take an Aleve.

By July my migraines had ramped up to 20+ days a month, presenting differently than the first (today my scalp is on fire). I wrote my Neuro and told her about the increase in migraines, and was blown off. Last week I had a bad BPPV flair so I went to the ENT for an adjustment, I told him about the migraines and the blow off from Neuro (same hospital). Turns out my original Neuro had left, and that's why I was blown off. He got me into a new Neuro this week who started me on anti-depressants to try to control the migraines and Valium for the vestibular vertigo.

After talking to a nurse friend about my migraines and my overall full body pain, for the first time in my life I was told pain was not normal (I'm 34). I have an appointment with my regular doctor to start testing why I have the pain, what can be done, and possibly for other referrals in two weeks. I hit my deductible with all the migraine test at the first of the year, so I figure it's the best possible time to test me for everything. As of right now I don't have a diagnosis outside the migraines and BPPV, autoimmune issues run in my family, so I guess I'm high risk or something.

My biggest issue with the pain is how it effects my thinking. I work in software, I've been a developer for almost a decade, and suddenly I can't remember code syntax, what anything is called, what project I'm working on. I loose words and trains of thought in the middle of speaking. I have started stuttering and saying "Um" every other word. I feel stupid and incompetent. Does anyone else have these type issues?

Aug 26, 2015 2:53 PM

I have migraines, vertigo, and forget things a lot.
I'm on so many meds, alternative, over the counter, and prescribed.
Pain definitely effects my thinking, and relationships. I stutter, and lose my thoughts. I also have ADD on top of forgetfulness from pain. It's sometimes called brain fog.
I've called the way I feel during a bad migraine floating, because I'm here and I'm not.

Aug 26, 2015 5:47 PM

I used to be a software engineer and then I came down with Adiposis Dolorosa (Dercum's Disease) which is very painful. Soon I started having problems with my code. I had a reputation as a very good coder but now I was having bugs that were not like me. Eventually, I had to go on full time disability due to the problems with cognition.

Aug 28, 2015 5:38 PM

Welcome Nicknameless. I have vertigo, imbalance & tremors that aren't yet diagnosed. I go to Mayo next month for tests. I also have migraines, cervicogenic headaches, tinnitus and TMJ, and the jaw joint is deteriorating. It all interacts off each other. In other words when one flares they all begin to flare up. I have fibromyalgia among other issues & I have the fibro fog that goes along with it. But I had two MRIs, two years apart, and the last one showed white matter changes in my frontal lobe. Mayo will be testing me to see if there's a connection. A local Neuro-psychologist says I have dementia, but the Mayo doc says he doesn't think so, he thinks it's something else.

The nurse was right that pain isn't normal, not without reason. Whether it's from working too long in the yard or lifting to much, or sitting too long at the computer looking down, or from a chronic illness, something causes the pain. Hopefully your new neurologist will be able to find out what's going on with you. I'll keep you in my prayers. I know how frustrating and overwhelming it can become, especially the waiting. 🙏🌼

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