Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

introduction

Feb 06, 2015 1:02 PM

Hi, just wanted to introduce myself to this community. My name is Claudia, & I'm also a member of a few terrific Facebook support group's for RA, fibromyalgia and breast cancer.

Feb 06, 2015 11:50 PM

Hi, I am new here as well. From the posts I have read so far there seems to be a lot of good info here! Welcome!! 😉

Feb 07, 2015 7:22 AM

Hello Ladies! Welcome!

Feb 07, 2015 7:59 AM

Hello welcome to the group

Apr 12, 2016 9:44 AM

Hi my name is Melissa howard and I stay in pain all the time

Apr 12, 2016 10:59 AM

Welcome

Apr 12, 2016 2:44 PM

I'M new here too, I wasn't aware there are fybromyalgia support groups on Facebook 😕

Apr 14, 2016 3:28 PM

Hi i'm new as well. The hard thing is that I don't have a diagnosis. My pain is located in my legs and I have loss of feeling in both of them. But I keep positve.

Apr 14, 2016 8:18 PM

Hello. I'm new too. Feeling sad today

Apr 14, 2016 8:29 PM

Hello everyone!
I'm happy to see you here, there's a lot of good support.

Apr 16, 2016 8:00 AM

Welcome to you all! I hope you can find support & help here, and always know you are not alone! Since joining I've learned many new things that I'm trying to incorporate to lessen my pain; diet, relaxation, otc meds, vitamins, books & websites of info, etc. Hugs & prayers for better coping methods to all of you! 🙂💕🙏🌼

Apr 16, 2016 7:03 PM

Hi my name is Michelle Hays and I have suffered so long with all this pain that I am so done with it o wanna die so bad and will

Apr 16, 2016 7:15 PM

Shehaze67 I'm new to my di but it will be ok with gods help

Apr 16, 2016 9:04 PM

I know what it is to be in so much pain all the time that it just doesn't seem worth it... But I hope for relief and enjoy any bright spots a moment at a time. Hang in there all & keep coming back.

Apr 16, 2016 9:13 PM

Welcome to the Howdy! There are alot of great people here and alot of information and if you can't find it, I'm sure one of us here are able to help. We all have different Chronic Pain and different diagnosis. I hope that you find the support and information you need. Welcome again!

Apr 17, 2016 4:13 PM

New to this app.
I have been in dibilating Bone and Spinal cord pain for over 5 years as well as Arthritis. They will not do the surgery because of the Arthritis in my thorax as well as the rest of my body. Doc said to document my pain and change my diet, taking away Gluten n sugars. Will start pain management soon.

Apr 17, 2016 4:37 PM

Kamel, a few of us have been discussing spinal cord injuries and pain over in the T7-T8 thread. Come read and join us if it will be helpful to you!

Apr 17, 2016 5:02 PM

Thanks
mine starts at c1to l2 then l4-l7 and a few of the s. The disc are blown bulging and spurs attacking the cord as well as closing in around it in the T's. Doc says I have a better chance of letting nature take its course than surviving the surgery.

The nerves going to the heart lungs bladder and bowel get pinched from time to time, and you can figure out what happens.

I have the burning tingling down all extremities and fall a lot. Doc says it must be from nerves being pinched in the spine.

Pain meds do not always help. Sleep deprivation and breathing issues don't help.

I feel it n theirs.

Apr 24, 2016 11:56 AM

Hi my name is Dee I'm 33 I have RA and just had a knee replacement!!!

Apr 24, 2016 12:04 PM

Hi howdy, I'm new here too, welcome :) I suffer from migraines and chronic back pain. I've only been here for a day and I've already found it helpful. Everyone is so supportive of one another and willing to offer advice, it's great.

Apr 24, 2016 12:30 PM

Welcome. Sorry you both battle Pain too. For me it's lupus and sjogrens

Apr 24, 2016 3:37 PM

Hello everyone, since this is the introduction thread: I'm new and live in pain daily. Multiple diagnoses sometimes it's too much to bear. I do run the whole gamut of pain though (heart, brain, legs, bones, muscle, etc). I hope this will be a great place to find support and resources as there are a couple of other symptoms that are not yet diagnosed. I wish you all luck on you pain management and hopefully full recoveries.

Apr 24, 2016 4:04 PM

Welcome and sorry you struggle too

Apr 24, 2016 7:07 PM

Hello all, I joined a few days ago and introduce myself in a " hello, new here " thread, but now found this one so just going to keep it simple.
Glad to be here, I am a fellow chronic pain sufferer with fibromyalgia, hypothyroidism, hashimoto's, reactive hypoglycemia, adrenaline fatigue, insomnia, sleep apnea, depression, anxiety, migraines, tinnitus, TMJ, asthma and lastly more environmental allergies then there is environment lol.

Apr 25, 2016 4:29 AM

MissM, you and I are competing in illness unfortunately! No fun, however I continue to limp on. I have been on an unsupervised detox because of all the meds I was on for depression and fibro .... on and on, etc. Needless to say I am a sobbing, neurotic mess with acute depression, anxiety and pain. Having an upper GI endoscopy in 2 hours to find out why I vomit everytime I eat or drink, or too many pills at one time, then to my psychiatrist. Wish me luck.

Apr 26, 2016 9:33 AM

Newty you got this! All will be fine. Hope you find a answer!

Apr 26, 2016 3:43 PM

Newty, I hear you hopefully thingswent well.
I tried the until supervised detox from antidepressants and what not back in Dec. Ended up spending 3 night in the dementia ward at the hospital, be carefull please.
I am only on Cymbalta now for depression and still trying to get a handle on the anxiety.
For the rest of it pain killers, anti-inflammatories and I am trying to change my life to learn how to live with and minimize my symptoms. I am having a bad day today with dull migraine pain, all over ache and that tingly-burning-itchy skin sensation.
When I left work on short term disability last Sept I had no idea as I strugled to find Dec and help that things could get to this point.
I still want to believe I am going to go back to work and resume my life and help pay the bills and feel like a contrbution to my family, but everyday at some point I hit that point in my day where I think how can I ever go back to my high stress, mentally challenging constantly changing corporate job if I can't sit in one place for 15 mins without some symptom causing me to curlover in pain or fall a sleep or itch until I bleed or something. Frustrating
Yesterday was my appointment for psychological testing, they think my memory issues are just because I can't be invested in thought with all my other symptoms. Good news sort of, but as I get closer to relizing I may never go back to my 15year career I realize I have to have Dr. Behind me who also think I can't get better to get SSI disability.

Apr 26, 2016 3:50 PM

I have bulging discs and one (something) cracked can't remember. It causes pain in mid lower back, neck and upper back around bra strap. What kind of doc treats this... Aak, my memory
:-(

Apr 26, 2016 6:07 PM

7autoImmunes I'm hearing you loud and clear. I have disc damage, burst vertebrae and compression fractures too. I was treated initially by a spine surgeon with pain medication and bed rest 3 months. Since then I have been doing Physio 2 or 3 times a week and chiropractor 1 a week. My local dr is monitoring my progress (plateau at present) and I've been referred to several pain clinics. I had the most relief from a specialist spinal/ pelvic Physio and would recommend that. They were able to show me how to improve my posture and relax muscles that were over working to protect the fractures and turn on core muscles that needed to do more work. There was quite a bit of brain training during those sessions too. I'm by no means pain free but it did relieve my situation a great deal.

Apr 26, 2016 7:25 PM

Well, I received a call from my PC Dr., they found something in the scan below my esophagus and saw my esophagus spasms as I drank the wonderful aND tasty barium. I am vindicated! ! I am not losing my mind, well maybe :). So I have a positive outlook today as I wait for the EGD Dr. Call me for the 1st appt. I asked my PC for something for the breakthrough pain I am having, no such luck. Why should I feel like a guilty drug addict? Not fair. I hear there is a petition going around , not sure where to look about opiate prescribing?

Apr 28, 2016 9:46 PM

All we want is solutions not patches and a quality of life with less pain better still no pain. 🌈😎💤

May 08, 2016 9:48 PM

Today is a cold and rainy one therefore I am stuck on the couch with very few pills to take. It does however make me grateful that there are support groups out there

May 08, 2016 10:20 PM

Apologies all, I've been caught up in panic zone lately. Haven't been able to think about any one's pain because it upsets me so much. I know i dare not watch the news, but now even youngsters playing gets me shaking, short of breath and mindless. Symptoms of PTSD showing up again and I don't know why. Doesn't always seem connected to extreme pain.

May 09, 2016 6:43 PM

Hello to all my old friends and Welcome to those who are new I am glad to meet your acquaintance. Now as I was reading down there were a few greetings and comments that were concerning so I absolutely can not ignore them and I am not sure they were acknowledged. First does anyone find using Adult Coloring Books Useful? Melissajody I am sorry you are in pain most of the time. Most of us are too. So this is a good place to hang out and get ideas for relief. Jenke1981 how do you stay so positive? Shehaze please explain your comment/ post. I know there are days I feel like I can't take another step because my pain is so bad. If I take another step I will fall over and dissolve into salt but that's just they way I FEEL. What about you? You don't have any plans do you? 7autoImmunies no need to apologize I hope you are feeling better sooner. We all have our struggles and sometimes that might switch up on us...keeps us guessing. I think I just wanted to gamble! 😄

May 09, 2016 9:14 PM

I use Adult Coloring books, helps with the stress, until my hands freeze up :)

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