Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Introduction

Oct 29, 2015 12:47 PM

Hello everyone, my name is Tonia. And I have Fibro, chronic pain, PTSD, anxiety, panic , IC along with vit def. I hmhave been diagnosed with fibro , depression and PTSD since my 20's. I am at a point in my life tonguve up completely. I have nor get pain medication. I lay and stay wrapped up in heating blanket. If indonhave a decent day and do things then I'm down for 3.
Anyone with anybof these issues ??? And all at once ???

Oct 29, 2015 2:31 PM

Tonia, first I want to say welcome to our community family. I am sorry that you are suffering so badly. I had anxiety and depression long before I was diagnosed with fibro and about 12 other diseases that cause chronic pain. The emotional stuff gets worse with all the pain when you can't get rid of it. I would recommend that you find a rheumatologist and neurologist if you don't already have them. You may also want to look into pain management, biofeedback, meditation, acupuncture or anything else that your insurance may cover. Please DO NOT give up. I know that when you get to the end of your rope and can't find relief, it's hard to know what to do. Well, hold onto MY rope!! Know that you are not alone. There are many of us here with different issues and we are all here to help one another along. There is always someone here to help you when you need it. Nobody will ever judge you here for how you are feeling. We "get it" we've lived it and many live it every day. Hang in there and let us know how you are doing. I am sending you gentle {{{Hugs}}} and prayers to help you get through and get some rest.🌻🙏🏻

Oct 29, 2015 6:49 PM

Hi Tonia, welcome to the community family, Alwayz always says it perfectly.

There are a lot of really good people here to talk to and that have a lot of knowledge and wisdom.

I too have PTSD, was diagnosed as a child, I have not officially received a diagnosis of Fibro, I've been fighting for 22 years to get answers. I have just recently found the right doctor and things are moving along.

I understand the urge to give up, when the physical and mental pain feel too much to bear. I was put on a 72 hour Suicide watch in 2011 after my pain specialist told me my pain was all rebound pain because I took some excedrin with Advil and it helped my headache. He fired me and I went down to the river with all of the pills I had left and a 5th of Jack. Luckily someone found me. I woke up a day or 2 later, they had intubated me. Afterwards my therapist fired me for it. Said she didn't want to deal with that.

It wasn't meant to be for me to die, 3 months later I got pregnant with my youngest child. Who has brought so much to my life.

Please don't give up! If doctors will not listen, find a new doctor until you find the right doctor for you. There is one out there.

I am so sorry you are suffering with so much. I am here to talk anytime. I only sleep a couple of hours a night. We know what you are going through in the sense that we all live with pain. I just got reinstated on pain meds. You are your best advocate.

When you go to the doctor, keep in mind that you are the reason they're getting paid. They work for you. I'm just learning this.

I'm praying that you can find relief and a good doctor. Rheumatologist and pain specialist.

Blessings to you and please reach out were here for you!

✌️💜

Oct 29, 2015 7:10 PM

Welcome to our community, Tonia.

I have depression, anxiety, PTSD, fibro and a whole lot of other things that are painful and those who don't have it, "don't get it l".

You've come to the right place to find people to support you through your hardest moments. And hopefully to see you through this fog of pain to finding a good doctor who will help you in your journey.

Please don't lose hope. I know how much easier it's to say than to do. But there's a reason why you were lead here and I hope that you can find some sunshine from us to help get you through all this.

I can personally attest to the support this group has given me and I only hope that you can find friendship and hope here as well.

Anonymous, I am so glad that someone found you before you left this mortal coil. You have so much hope and kindness to share.

Alwayz, so glad you are here as well. You have so much to share with our community. Thank you!

Thank you so for being here. Tonia, I hope that you don't give up hope. I remember when I was all alone and desperate for help or some kindness, please leave the door to your heart open.

My thoughts & heart are with you as you go through these tough times. 💜💕💕💜

Oct 29, 2015 9:36 PM

Hey Tonia,
Welcome I'm new here too. The others have said it so well. Don't give up you're not alone. Just so you know a bit more you're not. I lost my bladder to IC 16 years ago. I still live with terrible frequency. I have ptsd and chronic pain that other then some osteo hasn't been diagnosed. It happened very fast so I'm new to chronic. To put it bluntly and I'm sure we all agree it sucks. Sending you gentle hugs.

Oct 30, 2015 12:52 AM

Hi Tonia you are amongst friends. With my cursed insomnia and pain I can't think too straight. But nice to meet you and a shout out to all the other new people that just joined too. Welcome home.

Oct 30, 2015 9:56 AM

Welcome Tonia! We hear you and understand! Other than the PTSD, I have the rest and then some. I have had OA, depression & anxiety for decades, but the rest has jumped on board since 2007, 3-4 this year. When I say rest, it's more than I can remember the names of half the time with the fibro fog. It's focused around pelvic floor & organ issues, spine, and multiple autoimmune diseases.

I fought accepting my illnesses or that I'd have to learn to live with it all for years. It wasn't until I accepted them, that I wouldn't magically wake up and it be a bad dream (last year), that I was able to start identifying my limits and choosing new ways to cope with it all. This community has been awesome help. I've got so many new friends, and all with wonderful compassion, experience, suggestions, and shoulders to cry on! I've been where you are twice in my life, and I hope never to go back again.

You mentioned vitamin deficiency. I have a genetically caused vit def, where my body doesn't absorb & metabolize B Vitamins, especially B9-folate. I'm also anemic (B12 & iron), and D deficient. I found out about how magnesium & D deficiencies affect pain, from others here. Please don't give up! You are just as worthy of help as we all are. Like AlwayZ said, hang onto her hand, or any of ours! (((Hugs))) & praying for strength and willingness for you to let us help you through. Acceptance of chronic illnesses is the first and hardest step, but it gets easier to cope. And hopefully with the right team of docs you're pain can become tolerable. 🙏🌼

Oct 30, 2015 10:07 AM

Hi Tonya, and welcome. Yes, we hear you and we do indeed get it. I also have ptsd, OA, facet joint syndrome, sacroilitis, MRSA(which is literally a pain in the neck as well), plantar fascitis(mercifully in remission), tentative diagnosis of endometriosis(not visible at laparoscopy), and many others at this point. Please don't hesitate to vent if you need to. This is a judgement free zone.

Oct 31, 2015 5:10 PM

I always found out yesterday that I will have to bladder distentions rest of my life and that my stomach issues effects my IC and worsens it and then when I have a spell of IC it effects my stomach. There's bo winning. He said inhave chrinic pelvic pain along the rest of issues. We live in small town and no one know nothing. I do have a Rheumatologist that insee in the 2nd. and we go from there as to who I see next.
I stay so depressed and constant pain. I just can't handle it anymore.

Oct 31, 2015 5:17 PM

I'll never be able to live a normal life this I know. Thank you all
Chronic pain is definitely Chronic pain.... Nothing to help either. I take no meds. I sleep with my lovely sleeping blanket. Thank God. Mybhusband has a hard time understanding and what friends I had R gone now!!!

Oct 31, 2015 5:21 PM

I always feel that Fibro, MS, Lupus and MS all have very similar symptoms!!!! My uncle has Lupus.

Oct 31, 2015 6:36 PM

Tonia, my heart goes out to you. I have to have hydrodistentions every 3 months for the rest of my life some none of the other treatments are working for me and then another one causes my fibro to flare. So my doctor is doing a hydro every 3 months to trt and keep the pain levels down. But whew that's a lot of stuff to deal with. And then I can only say how grateful I am to have family down here because I wouldn't have been able to make it through the last few years without my parents help. And a friend or two. The only couple of friends I have in the area.

Oct 31, 2015 10:36 PM

Hang in there Tonia! Hang onto us. All of our lives are forever changed, different than our hopes and dreams. But we still have a lot to offer reach other. Hugs & prayers for you! 🙏🌼

Oct 31, 2015 10:41 PM

Well said Flappys! And so true!

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