Hello, I am new here. I have Interstitial Cystitis from 8 years ago, I have tried some medicines directly on my belly, I hace also tried Cystoscopy with Hydrodistension, and yoga and accupuncture. Everything got worse and right now I am waiting for my third Botox infiltration on my belly. The first one was very good and I had less pain and could live better during 4 months, the second one was terrible and I have been at the emergency hospital so many times, and now my specialist told me to try another way of putting the Bottox on my belly, so I am waiting for it.
I would like to know if there is people with IC and speak with them. And if there is a Doctor or any specialist, I would love to know them and their oppinion and advices of my situation with IC.
PD: I am Spanish, the English is not my mother language so if I make any mistake please, don't take it into consideration and ask me if you don't understand what I mean.