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invisible pain

Apr 04, 2015 1:26 AM

I t has been a while since I started a new topic. I have a lot of different diagnosis and it seems to me that there almost all invisible, which makes me angry. there's always a chance if I see a different doctor or go to the emergency room that people are going to look at me funny or treat me like I'm drug seeking.

these are my diagnosis. Gout, migraines, GERD, myofacial pain syndrome,fibromyalgia, high blood pressure which you can see and its under control, problems with both knees not really bad ones just like floating kneecap and I don't remember the other one, but both knees are painful especially since I gained 10 pounds, sciatica, lumbar radiculopathy rebound headaches, tension headaches, mild sleep apnea depression anxiety, and my newest one systemic inflammatory response syndrome. they did not even tell me about the last diagnosis I just happened to read my summary paper and found it I don't know who diagnosed it or when. I think my biggest problem is that I had gastric bypass surgery so I can't take any NSAID's. every great once in awhile they will prescribe me a very low dose of steroids. for the pain in my back the doctor said that I have a pinched nerve bone on bone and its herniated to the other side. he says that my description of the pain does not match what he sees on the MRI.I'm really tired hopefully this makes sense sorry. I take a lot of medication and it does not always help it's definitely never makes it go away I have to paint everywhere all the time. I've been out of work for almost 2 years I applied for disability 14 months ago and I've already been denied twice. my lawyer is filing for a hearing now there's so much related to all of this tiredness lack of energy weight gain sexual problems all these side effects just cause more problems stupid f****. I'm going to end this here cuz I'm tired and I can't think straight I really hope and pray that all of you feel better I know that none of us will ever be pain-free pray that you more functional and in less pain

Apr 04, 2015 8:18 AM

Have you ever been evaluated for Lyme? You might research that. Just know it isn't an easy process but if a list of symptoms sounds familiar it might be worth the fight.

Apr 10, 2015 2:57 PM

The problem with testing for Lyme is the disease is very sneaky and hide in your joints as spiroketes (check spelling). If you are not shading the virus it does not show up. The test they use is just a blood draw and it is not very accurate. There needs to be a betted way. I feel like doctors are to quick to dismiss this possibility. Just my opinion.....

Apr 12, 2015 12:44 AM

Your right about all of that but a doctor that specializes in or knows Lyme will diagnose based on signs and symptoms (a clinical diagnosis) and use blood or serum testing to back that up rather than make the full determination. There are also a couple of labs that specialize in Lyme testing including coinfections and not only do they often do a better job with the basic testing they do some specialized testing specific to things like the different forms and activity of the organisms that can be much more useful and informative. But having a doctor that knows what tests to do based on your symptoms is very helpful and can save you some money. Depending on the relationship you have with your primary or a specialist covered by your insurance and their relationship with the lab they use getting testing done by a special lab may or may not be covered. But if not it's well worth the out of pocket if a LLMD (Lyme specialist) feels it's worthwhile. That's my opinion anyway based on experience.

Apr 12, 2015 1:40 PM

DawnAngel1966 I have a simular diagnosis I have high blood pressure, gerd, sleep apnea, type 2 diabetes, fatty liver disease, I had Vertical Gastric Sleeve Surgery so I can't take Nsaid's, I have Syrinx, Syringomyelia, Osteoarthritis, Fibromyalgia,Migraines which have been under control by taking CQ10 3 x a day for the last 2 years. I have a herniated disk @L4 S1 with an uprooted nerve, I had anteriordiskectomy on C5,6,7 in 2005. I have fallen so much over the yrs that my knees and shins are shot it is too painful to try and get on them. I tried yoga earlier in the week but I'm not going to be able to continue because my knees and shins are still killing me, and I really enjoyed the class.

Apr 12, 2015 6:12 PM

Dawnangel, I have several of the issues that you are having and have been in pain for over 22 years and it is 24/7/365. It's definitely exhausting and you are correct, when you go to the doctor, they look at you like you are crazy and/or drug seeking. It is very hard to get a doctor to actually LISTEN especially after they look at your test results and everything seems to come back "Normal". It really is a very scary thing because you are describing what your body is telling you is wrong and just because the doctor can't see it (as you said, invisible pain), they think you're a hypochondriac and/or a drug seeker. Do yourself a favor and keep up on your pain diary and make certain that when you go and see your doctor (existing or new) bring your tablet, computer or smart phone with you and actually SHOW them your pain chart and explain the colors and they symptoms. I hope this is helpful. It is a difficult world at best, but to be in the situations that we are all in, it makes it all the more difficult. Somewhere along the line, however, I think that it somehow makes us stronger and also more empathetic towards others. It makes me feel better just to try to help others here get through their issues. I wish you all the very best of luck and hope that I can be of assistance if you need me.

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