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Is anyone in the UK in particular up in the North?

Nov 28, 2014 12:28 PM

I was recently diagnosed with Fibromyalgia (although I'm not sure I agree with the diagnosis ) for the last ten years or so I was told by two consultant rheumatologist that it was Sero negative Rhuematoid arthritis.
I have now been on Gabapentiine for a couple of weeks, and so far all its done is dope me up, made me sick, made me even more depressed to the point I was seriously thinking of contacting Dignitas .. Yeah bad I know but I am thinking along those lines, I can't live with this pain level for the remainder of my life!
I was on Naproxen which helped with the pain but now that's been stopped because of a serious heart problem which was caused by the RA. I feel I am at a crossroad in my life and not sure I want to carry on like this but my consultant is adamant its Fib and won't even discuss it further for four more months!
Any help and advice would be greatly appreciated.
I particular any suggestions as to another consultant that might be more open to a possible fresh look at my medical history and a change of course. the GABA does nothing for my pain just ruins what quality of life I have left as 65 yr old man who was despite the RA and heart problems, I did enjoy a good active life.

Nov 29, 2014 12:05 PM

I think you need to ask your Rheumatologist to check for Lupus or any kind of Auto-Immune???? Bless you & hope you have some relief soon.
It took me 5 lllooooonnnggg years to get any kind of answer so please push 😈

Nov 30, 2014 2:54 PM

Thank you very much for your kind words, Lupus did cross my mind as well

Nov 30, 2014 4:36 PM

I have been diagnosed with fibromyalgia. I was on Gaberpentine for post operative pain. After my GP refused to give me any medication for fibromyalgia, I went to the Fibro clinic in Harley street and saw Chris Jenner. He has changed me over onto Pregabalin. I am on my secon week of building up to my full dose and it is making a difference to my pain experience when Gaberpentine wasn't. Look it up on the web and if you like what you research, ask your GP or rheumatologist to change to paregabalin. Fibromyalgia has been likened in severity to rheumatoid arthritis but without the sympathy. It's not a fun condition, very painful, debilitating and mind fogging but many people do not understand because of the past attitude of the medical profession in refusing to accept it as a physical illness. Typical doctors when they haven't a clue tell the patient it's all in their mind. It is a physical illness and there is a lot you can do to manage it so use the web a good start is www.myfoggybrain.com. Good luck.

Dec 03, 2014 5:14 AM

Thank you very much for the information, I will have a word with my GP re; Pregablin.
Just one more thing, I now have parted company with my Rhuematologist I'm currently without any consultant (apart from the heart man) I am going to find another consultant in the new year and start all over again.

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