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Is fibromyalgia hereditary?

Jul 07, 2015 7:52 AM

I suffer from fibromyalgia and I wonder whether my kids will suffer from it too or not?

Is there anything one can do to prevent getting it?

Jul 07, 2015 8:07 AM

I've read that fibromyalgia isn't passed directly from parents to children, but the disorder does appear to cluster within families. Some researches have found some genes which could help explain why fibromyalgia seems to run in families. In my family there is no one else who suffers from fibromyalgia or any other chronic pain condition.

It would be great if all our community members could briefly tell us if they are the only ones or if there are more fibromyalgia cases in their family.

Regarding prevention, my doctor told me to do the following things:
- get adequate sleep
- reduce emotional and mental stress
- get regular exercise
- eat a balanced diet
- treat any pain condition as quickly as possible. Don't try to be brave and sit through the pain. The longer pain persists, the higher the chances are it becomes a chronic condition.

Cheers, Daniel

Jul 07, 2015 8:08 AM

Lorenzo, I've been told it's not really a hereditary issue. Another doc said when one family member has it others could to. I have a cousin on both sides with it and I've had it since '08-'09. My oldest sister just got diagnosed last year. Hereditary... Hmmm? I think so. I'm pretty convinced my grandmother had it but they didn't know what it was back then. I don't know of anyway to prevent getting it. I've just prayed and asked God to keep my children and grandchildren healthy and let me be burdened with sicknesses instead. If my children & grandchildren have healthy lives, then all my suffering will have amounted to something.๐Ÿ™๐ŸŒผ

Jul 07, 2015 10:52 AM

My mom and I have it. My mom's extended family also has a lot of autoimmune problems. As much as doctors say it isn't autoimmune, progressive, genetic and all that crap I disagree with them. I think there is a genetic component and it's just waiting in the background for us to run ourselves into the ground so it can rear its ugly head. I also think it's progressive, we can slow the progression down but there is no stopping fibro. And I think it's autoimmune, too many overlapping conditions and not enough research for them to say with any certainty that it isn't.

Jul 07, 2015 11:10 AM

In my family my male cousin has it, my mom had symptoms of fibromyalgia but passed away before diagnosed with it. I have several cousins with Lupus which is similar ( what I been told) .

Jul 07, 2015 11:42 AM

Gotobef, I agree with you that fibro may be autoimmune connected. Having just been diagnosed with Sjogrens and hypothyroidism mad me think it even more. ๐Ÿ™๐ŸŒผ

Jul 07, 2015 2:14 PM

Based on gene mutations I'd say that yes fibro could be hereditary, but it also depends on lifestyle, and trauma. If I have a child, I expect that they would develop chronic pain/illness/nausea.
I tend to clump most chronic issues together because many have the same symptoms and are not very specific.
My dad has also found research about a receptor TLR4 that may contribute to inflammation.
So far as overall chronic issues being in different generations goes, well. ...

Dad's side:
Dad: chronic migraines, dystonias, tendonitis, MTHFR C677T gene mutation
Grandma: allergies, osteoporosis, fatigue, injury from car accident, MTHFR C677T gene mutation, POTS, perros more painful than child birth
Grandpa: arthritis, fibro, ADHD
Aunts: Fibroids, ovarian cancer, hypothyroidism, MTHFR C677T gene mutation double copy, chronic nausea, youth chronic vomiting, allergies (soy, wheat, metal, chemicals), high functioning autism, infertitiliy, anemia
Uncles: allergies, arthritis, asthma
Great Uncles: Williams Syndrome, allergies
Great Aunts: arthritis
Great grandparents: allergies

Mom's side:
Mom: early onset arthritis, bipolar, cancer, heart defects requiring surgery, metal allergy
Aunts: allergies, hyperthyroidism, asthma, fibro, CRPS, ADHD, neuropathy, dystonias, early onset arthritis
Uncles: down syndrome
Grandma: arthritis, trembling
Grandpa: arthhritis
Great grandparents: arthritis

My sis, cousins and I: arthritis, CRPS, chronic nausea, POTS, autism, ADHD, absent seizures, double copy MTHFR C677T gene mutation.

Roommate's family:
Roommate: chronic nausea,
Roommate's mom and sis: chronic vomiting, fibroids

Low Dose Naltrexone could be a potential prevention method of autoimmune diseases.

Jul 07, 2015 2:46 PM

My grandmother has Sjรถgren's, my aunt on my mother's side has Fibromyalgia, my mother has osteoarthritis, and I believe I have Fibromyalgia.

I believe this COULD be gene mutations that occur. It seems to occur randomly, and not so randomly in families sometimes.

Jul 08, 2015 6:55 PM

I believe my daughter is getting fibromyalgia. And it scares me, she has the anxiety, poor sleep, muscle pain, memory problems, low energy. I also believe my mother has it also. But she is a whole different story.

Jul 14, 2015 2:48 AM

I think it is hereditary. I have Fibro, my sisters , my Mom , and my grandmother did.

Jul 16, 2015 2:45 PM

My mom. My aunt, my brother, my niece all have fibre.

Jul 19, 2015 9:07 PM

I have it, my cousin has it and my mom shows many signs of it but won't go to the doctor. I also have 2 sisters with rheumatoid arthritis and I also have RA and lupus. I think auto immunity is highly likely to be hereditary but some show symptoms while others don't do to lifestyles they lead. I.e. one more stressful than anothers

Jul 19, 2015 11:46 PM

I found out a couple of days ago that I have 2 great Aunts with Lupus, just another thing to add to family history.

Jul 20, 2015 8:51 PM

My mother, her sister and myself all have it...nnot hereditary?

Jul 20, 2015 9:51 PM

I believe there is a genetic connection. Mom has MS and several other immediate family members have some sort of auto inmune condition

Jul 20, 2015 10:27 PM

Fibro isn't a real dx. Its prolly lyme disease

Jul 21, 2015 12:56 AM

Leabea, I half age with you. I think Fibro is more of a symptom, and if they can't find a cause the doc needs to keep looking because there are so many possible diagnoses out there.

Jul 24, 2015 8:56 PM

I have been diagnosed with fibromyalgia for about 7 years and I also have chronic migraines to go along with it. So if one thing doesn't hurt the other does. I don't take any kind of narcotics. I try not to take pain medication unless I absolutely have to because it can cause bounce back migraine. So I'm damned if I do, and I'm damned if I don't.

Jul 24, 2015 10:51 PM

I understand exactly how you ferl. I take verapmile for my migraines plus get trigger point injections.

Jul 25, 2015 3:20 AM

I go get botox every 3 months and sometimes it works and sometimes not. Thank goodness my insurance pays after the deductible. I take tizanaden tizandene

Jul 25, 2015 5:09 PM

My mother had it. I have it and my daughter and grandson and one of my son's show signs of it. It's a nightmare!

Jul 25, 2015 6:24 PM

I have to go day by day on what I can do. I never know how I'm going to feel hour to hour.

Jul 25, 2015 6:51 PM

Me too. Can't never really make plans...just wake up and that's if you get to sleep...and take each day in stride.

Jul 25, 2015 6:57 PM

It is real dx and Drs are having to recognize it now. So tired of ppl not thinking it's real...if they walked a day in our shoes they would find out. Sorry I asm1 ranting cause of what I read in a post up here. I don't like ppl trying to blame out pin something else when they really don't know what we go thru

Jul 27, 2015 4:49 PM

I spoke to a nurse at my primary care physician's office today. I mentioned I have Sjogren's, lupus and fibromyalgia. As we were talking I asked him if he knew what fibro fog is? He said "I think I've heard of that." But this primary will keep giving me my hydrocodone At this point. I see her in a month. I'll have to ask her how much she actually knows about fibro, etc. Hmmm...that will be enlightening!!

Jul 27, 2015 4:55 PM

Most drs don't know anymore than the average person. I've had to educate a few medical professionals. You may have better luck being referred to a rhumitologist. They generally are more aware of fibro.
When I go in I bring the newest information I can find and focus on that rather than what they may or may not know. I also only see a p.a. because they still understand what it's like to be human. I wish you all the best of luck. ((Hug))

Jul 27, 2015 9:53 PM

Today I visited my grandma, and we had a discussion about whether chronic pain is hereditary. My grand parents were over all okay, except arthritis, gene mutations and a car accident.

Then, the next generation seemed a little worse off, and are in their thirties. Here we have autism, down syndrome, gene mutations, hypo/hyperthyroidism, fibro, and neuropathies. This all showed up in their 20s/30s.

My sis and I are one of a few for our generation. Quite a few of our Aunts can't have children from health problems, so we'll never know. But my cousin is autistic, and my sis and I are both pretty sick for being 12 and 14.

We have POTS, gene mutations, hip issues, CRPS, possibly Lupus (I have had the rash, but no doc wants to diagnose), hypothyroidism, chemical/scent/metal sensitivities, weight loss (to the point of scary), general chronic nausea/pain, etc.

We hypothesized that there were strange genes all along, but each generation gets worse,and at an earlier age. Obviously, there are a lot of other factors but it just seems interesting.

Jul 28, 2015 7:24 AM

SherryWallett, if you don't mind me asking, what did they put you on tizanidine for? Can you tell if it helps or not? I've had fibro with neuropathies since 2008-2009, but wasn't diagnosed until 2012. I was given nothing but Tramadol. Then this February a doc gave me gabapentin. About he time I started it and two other meds I began having hand/full body tremors, sometimes severely. An ER doc started me on the tizanidine and the neurologist kept me on it. I was taken off the gabapentin to see if it was causing the tremors, it wasn't. I went to Mayo by referral to see if they can find the cause of the tremors, dizziness & imbalance. I've been on the tizanidine since late March or early April. It may have helped some, but if I drive or use my hands all day I still have very bad tremors. I truly think any reduction is due to resting my hands and not driving much anymore. I was just curious to know if it works for whatever they gave it to you for. Thanks. ๐Ÿ™๐ŸŒผ

Jul 28, 2015 7:29 AM

I don't take it all the time because it does make me feel very dizzy and off balance. I take it for severe pain and when I have a really bad migraine.I take I with my migraine meds.

Jul 28, 2015 8:35 AM

Wow, they didn't mention dizziness & imbalance side effects, or that it helps migraines. But Mayo thinks I have an inner ear vestibular problem. The ER doc gave it for cervical rediculitis. I have migraines, but surprisingly i haven't had one since starting this med. Thanks for your input. ๐Ÿ™๐ŸŒผ

Aug 01, 2015 11:02 AM

My father has Polymyalgia Rheumatica. Very similar.

Aug 01, 2015 8:10 PM

Found out my mom has seizures on top of everything else, brings questions about our history up. ... .not sure what to think anymore -_-

Aug 08, 2015 1:16 PM

I believe it can make you more susceptible to getting it. But I think there needs to be some starting point, even if you can't remember what it could have been. For me there was a catalyst and then things kept exasperating it. I had a bad fall in 1993, and another one in 1994. no health problems before 1993. I had a couple falls after Dad but I got pregnant in 1994 and had abortion after I was married I got pregnant unplanned in 1998. I was also in a very abusive marriage so I know the stress and strain made me worse my doctor warned me that with this pregnancy I could either get better and go in remission or I could get worse and I got much worse. I do believe the correlation between stress in your life can make things worse during different times of your life plus in the 1990s they weren't really acknowledging it and there was no treatment for it. but just so you know they are starting to do research correlating the effects of pregnancy and especially miscarriages and fibromyalgia. I had tried treatments like lyrica and cymbalts and it didn't help me. However 3 years ago I had a very physically strainful miscarriage. it was an unplanned pregnancy and I was not with that person anymore but that doesn't mean you don't grieve for your baby you lost. However, a year ago I have a miscarriage with my husband and we wanted that baby and I wanted that baby more than anything my life. I only have one son that was premature. Losing our child and the devastation and loss And grief has pushed my fibromyalgia as severe as it can possibly be. Trazadone is working for me. They put me on it after my miscarriage because it's an antidepressant. I was on 150mg. I am on the maximum of 400mg for my fibromyalgia. It's working well. I also do every stretch I can in the mornings in bed or while I'm on the couch or recliner. But especially when I'm in the bathtub. Stretching in the bathtub makes a big difference. Sometimes I'm in there over and hours or more. Try to find a pool therapy class in your community if you can go. I can't I have too many health problems. Don't try to get on the floor to exercise it can really hurt cause the floor is so hard. I pray this helped someone and encouraged any women possible. god bless you all and I'm praying you all find the correct answer for your body. just speak up for yourself and don't allow yourself to just be a guinea pig for whatever the doctor decides to have you try and if you're not feeling this working and you're having side effects get off of it no matter what the doctor is saying, or trys to force you to stay on it. read the information from the pharmacy very thoroughly and you can go on drugs.com and look up all the different side effects and possible medical interactions and there can be with the medication and any other medications your taking. Find your closest medical library and research all you can about your medical condition and fibromyalgia. I had a Dr tell me once you should know more than the Dr does about your illness. He was right. Thats the only thing thats truly saved me. Most everyone usually having fibromyalgia, especially the more advanced stages usually ends up having health issues in other problems and I know I do everywhere in my body now. best wishes to you all god bless you all and sending comfort and strength your way.

Aug 08, 2015 2:34 PM

My mother has ME. There are thyroid issues on my mothers side and mine is borderline apparently (untreated). My aunt has RA and again I have question marks around recent bloods (over the last few years) regarding RA. Again, I wasn't told this, I found out by getting my medical records.
I am the first with fibro but I'd say all these autoimmune diseases have connections.

Aug 08, 2015 5:21 PM

Shannonlubbock69, I'm so sorry for the loss of your baby. 8 lost my first baby and it can be devastating. They say low folic acid is the cause of many miscarriages. I lost my baby over 30 years ago. But I found out in 2014 that I have a genetic defect (MTHFR gene) that prevents my body from absorbing & metabolizing folic acid. After my first pregnancy my gym doc told me to go on prenatal vitamins 6 months before we attempted another pregnancy. I have 2 very healthy grown daughter's now. I hope and pray that you will be blessed with many yourself if that's your desired! And may God help you through the pain of loss. ๐Ÿ™๐ŸŒผ

Aug 08, 2015 7:17 PM

Thank you. I'm all over my blood work constantly now days. But I've only ever been able to take children's vitamins and i know that made a difference in my pregnancy with my son because I wasn't taking them beforehand and 18 years ago there was basically only Flintstone vitamins and they don't have all the vitamins your body needs. Now i get the most complete children's vitamins from the health food store but I still get anemic often. Thank you for your kind comforting acknowledgement of my loss. Try to pass this on to women. Also there is an amazing and thorough fibromyalgia support group. I think it's fibro.come they have so many offshoots of support groups but they have a miscarriage and fibromyalgia support group section. Like I said, this is new research. I'm the one that told my ob/gyn about it.But there's information online if you research it.

Aug 08, 2015 7:18 PM

I was speaking of an online fibromyalgia support group that is thorough and has a section on fibromyalgia and miscarriage.

Aug 08, 2015 7:52 PM

Thank you. I'll check that out.๐Ÿ™๐ŸŒผ

Aug 11, 2015 8:20 PM

I know in my family it has been passed down through generations

Aug 14, 2015 9:08 PM

I have had fibro for about 15 years.nobody in my family had it except for me. I do wonder about my 29 yo daughter, as she seems to have allot of pain like I do. I can only pray not.

Aug 20, 2015 9:00 PM

My grandmother, my mother by birth, me, my daughter has it in the same places

Aug 31, 2015 5:27 AM

Im so sorry for ur loss shannon :( & i believe fibro is hereditary only
prob for me is i am adopted so no idea re: birth parents if they or there family have, i too like u shannon waa in a horrible marridge but wasnt until my son started getting into all kinds of trouble it bit me on butt mine started i think about 12yrs ago got out of a car hurt my back and now have a s1/l5 buldging disc that has never settled just worse!! Pain from it of scale at times then 1 thing or another re son i started feeling real crappy as yrs gone on re pain,ostio of knee,s,astma,lower back & hip pain & burstitis boom!! & daughter is 20 & her back has started really hurting & shes shattered etc...time will tell i guess almost forgot started menopause at 38 ish has anyone else had theres "earlie"? My gp was fab!! Knew me & understood but he moved on so now have to start from scratch again with another gp witch isnt great really, & im fed up with having to fight for things like a op i needed and being told no as ur a chronic pain patient & wouldnt work 4u!! But i dont take any rubbish when its needed!! & had keyhole & ohhh ummmmm worse than they thought why dont some believe what u say & u know ur body etc so now have to prob go threw another op as i was refused new knee 1st time im not impressed!! I also feel more reasearch is needed into fibromyalgia anyway i hope u all have a pain free as u can sunday but its damp grrr the joys!! X

Sep 09, 2015 4:34 PM

I've been to 2 doctors that don't even believe it's real.. I never went bk.. kept looking for one that is trying help.

Sep 09, 2015 7:34 PM

Flappys, I have taken tizanidine for many years and it helps muscle cramping and pain for me, I've had fibro for over 20 years dx in 2002. I never found anything that helped me with the pains or any of it besides morphine. I hate taking any medications at all but when it became no life and living in tears or a modified life I grabbed it. I also have marinol which I wish I was more comfortable taking more often because it helps everything except fibro fog. I'm sorry I'm not replying to more of you but this is best I can do.

Sep 09, 2015 10:55 PM

Smilemom, we all take what works for us, and no two of us are alike in symptoms and diagnosed or meds. Like someone else said on another post, we don't choose to have a life of pain that requires the use of painkillers.

I do believe there a connection between fibro and trauma, whether it's one traumatic incident, or a multitude of many smaller health stressors that come together and deplete our bodies ability to fight off things any longer. ๐Ÿ™๐ŸŒผ

Sep 09, 2015 11:40 PM

I agree Flappys I was just trying to answers your earlier post. I've done years of research, experiments, and studies and the only thing I'm sure of is that chronic pain is not fun for anyone.

Sep 15, 2015 7:42 PM

My grandmother had it, none of her children have it but myself and two other grandchildren have it. One of my son's are showing signs of having it.

Sep 15, 2015 7:49 PM

My daughter is showing signs. Ive had fibromyalgia for over 15 years.

Sep 15, 2015 8:07 PM

Deb, in answer to your question. I'm only 34 and just beginning to suspect it. Going to specialist on Friday to get more questions answered. But yes night sweats, hot flashes, irritability, irregular cycles, the whole nine yards.

Sep 16, 2015 6:43 AM

My kids do not have this. But I have several cousins that deal with this.

Sep 16, 2015 8:50 AM

All the women in my family all suffer from fibromyalgia

Sep 16, 2015 11:38 AM

As far as I know I'm the only one in my family that has it ... I hate it! Im having a bad flare day..

Sep 16, 2015 2:07 PM

I have it and so does my aunt, but there is no blood relation. Both she and my mother are adopted.

Sep 16, 2015 4:26 PM

Smilemom, thank you. I believe the Tizanidine has really helped. I was suffering extreme pain from the sjogrens when I started it. The doctor told me not to expect a change for two months and then a change that would be my maximum limit around 6 months. When I went back for a recheck and she found out how well it relieved both my sjogrens and fibro she was very pleased and surprised. Since I can't take strong pain killers most take, I'm very blessed. ๐Ÿ™๐ŸŒผ

Sep 17, 2015 2:24 PM

There are many theories about Fibromyalgia. I am the only one in my family that has it, but I do believe in runs in the family for some people. My Fibromyalgia is actually what they call "Traumatic Fibromyalgia". I was in 3 auto accidents, rear-ended all 3 times. I have mild to moderate pain all over my body, and moderate to severe pain throughout my spinal area from neck to tailbone, some areas hurting more than others.

Sep 17, 2015 3:40 PM

I read a study that said 50% of your natural born children May be athe hi h er risk for being born with or developing fibro.

Sep 17, 2015 7:16 PM

Liya, that's very interesting. Do you remember where you saw it? I'd like to read it. I'm praying every day my children don't get any of my problems, but instead take after their very healthy dad. So far so good! ๐Ÿ™๐ŸŒผ

Sep 17, 2015 7:16 PM

I'll try to find it

Sep 19, 2015 6:56 PM

Well it started with arthritis in my jaw, then colon cancer, then non Hodgkins lymphoma, then osteoarthritis, then rheumatoid arthritis, now I have new syptoms in my chest, and back. I believe I have fibromyalgia now. My sister and mom have it also. I have had 9 surgery from 2/15/12 to 2/15/15 in three years. I'm was feeling good and now I get new pains. I go to curves 3 times a week and eat only clean foods, I juice and take vitamins. I think everyone has a little or more than others. God bless everyone.

Sep 19, 2015 9:45 PM

God bless you too Angelica, and everyone! ๐Ÿ™๐ŸŒผ

Sep 19, 2015 9:57 PM

Thank you have a goodnight with no pain.

Sep 22, 2015 3:50 PM

My mother always complained about back pain, knee and leg pain, headaches, and said she could always tell when the weather was changing by how much pain she was in. She was never formally diagnosed, but back when she had pain, fibromyalgia hadn't been heard of. I hope and pray that it is not hereditary, but unfortunately my daughter, at 19 is already showing some symptoms of this bear of a disease.

Sep 23, 2015 2:07 AM

I'm the only one in my family that has fibromyalgia

Sep 23, 2015 5:31 PM

I thought I was the only one until I met my gran aunt. However age isn't on her side and she also suffers from rheumatoid arthritis.

Sep 23, 2015 5:50 PM

I have RA and non Hodgkins lymphoma.
Recovery from colon cancer and I have my days. I just started lyrica today. I was on it before and I stopped it wish I never have stopped Now my fibo seems worst. It just seems we are always the only one. You wouldn't believe how many people out there are so sick. Good luck and god bless you Nina

Sep 25, 2015 2:36 AM

I was told by my PCP that it is heredity. In my family it has hit three generations that i know of. Now my cousin and I have it so far and we have it bad.

Sep 25, 2015 9:32 AM

Rabel I also have traumatic fibro. I have had 7 surgeries in 8 years. I was diagnosed with fibro after the first surgery.

Sep 25, 2015 10:39 AM

What kind of surgery did you have.

Sep 25, 2015 10:05 PM

Both my mom and my sister have it, & both my kids that are now adults are showing signs. One w/more of the fibromyalgia and one with more of the narcolepsy & hypersomnia end of it. I also have a few Aunts that have fibromyalgia ad well. I absolutely believe it runs in families.

Sep 26, 2015 6:22 AM

I believe so... I am the ethics generation in my family to have fibro symptoms start in their late 20's. The same meds help my aunt and I too... Fibromyalgia is a syndrom so the underlying causes are most likly hereditary.

Sep 26, 2015 6:22 AM

4th* generation

Sep 29, 2015 10:27 PM

My oldest will be 29 on Oct 2nd he was diagnosed with it when he was 16 shortly after I was

Sep 30, 2015 10:41 AM

Given that I have it, my mother has it and my grandfather had it. I am a believer that it is hereditary.

Sep 30, 2015 1:15 PM

As far as I know, I'm the only one in my family with it. But my mother is bi polar, and so am I.

Sep 30, 2015 9:19 PM

JG, I wonder if bi polar and borderline are passed/not down like autism, and things like lupus, fibro, CRPS, ADHD, seizures, etc. My mom is (I believe) borderline, has seizures, fibroids/cysts, heart problems, asthma, allergies. Her twin has CRPS, her little sis has MS, her brother has down syndrome, and her family has "early onset" arthritis. Makes me just want to clump everything together, but they might not even be related. ๐Ÿ˜…๐Ÿ˜ฎ๐Ÿ˜ฐ

Oct 01, 2015 12:19 AM

I have it, and im in pain 24-7 and a brother has a mild case of it so far. It's a horrible thing to have. I really don't want to deal with this pain the rest of my life. I often wonder what I ever did to deserve it? Why I'm being punished for life.

Oct 01, 2015 6:35 AM

Ferretbandit, that's interesting. I know mental illness can be a symptom of fibro

Oct 07, 2015 3:44 PM

My mom has it to plus chronic pain too

Oct 07, 2015 6:04 PM

I'm 46 and there is nobody in my family that has it. But with that said My father and sister have lupus. I thought that I did way back when cause I have almost all the same symptoms. But they have said mine is Fibro

Oct 07, 2015 7:10 PM

My aunt had, rip n my daughter has unusual pain she is only 17

Oct 09, 2015 1:51 AM

@ Flappyslady81- I feel the same exact way about praying that my kids and Grandchildren don't ever have to know what any pain or sickness is, Even though it's extremely hard living and dealing with this everyday I would still gladly take on all of it at its worst so my kids and grandchildren never have to feel the pain and emotional garbled mess and fatigue that comes with having fibromyalgia. I pray always that none of them will ever have to feel an ounce of pain or anything. None of my family has this but me.

Oct 09, 2015 2:05 AM

My mother,sister,grandmother and I have it

Oct 09, 2015 2:26 AM

Hi I was told it wasn't hereditary when my mum first started 30 or so years ago. But here I am with exactly the same problem as she had when she first started.

My older sister has complained about pains but that could be due to thousands of other issues. Same goes for my younger sister.

I'm more concerned for my 16 year old daughter. I was very active just like her. Ran everywhere. Ate healthily and looked after myself. But when I turn 16 I had a really bad episode with my legs and missed most of my Christmas. Things settled and only when I was 29 the pains kicked in. It took a further 8 years to get a diagnosis. I don't want that for my daughter. If she does have it the sooner she is diagnosed the better. I know I can't stop her getting it but I can help her along the way if she does.

Oct 09, 2015 6:15 AM

Although I was not "officially" diagnosed with Fibro, I was told I had it from 2 docs. Then 2 docs said doesn't exist. My younger sister has been diagnosed officially. I am worried about my eldest daughter, she is 22 years old and is debilitated with headaches and very sore muscles in upper back, neck, certain spots on arms and legs. She is the same age I was when my pain became chronic. Currently she has no health insurance so she cannot go to a doctor. Soon though!

Oct 09, 2015 7:35 AM

Someone needs to do a chart/study based on what everyone has said here. Some of the criteria could be:

1. All of your symptoms
2. All your medical conditions and the age of onset
3. All your immediate family's medical conditions and age of onset
3. Medications you r taking & the condition they r supposed to treat
4. Medications your family is taking & the condition they r supposed to treat
5. Ethic/Racial background - There have been studies that have shown that certain ancestry's carry common conditions.
6. Where is your family from, & where have you lived? Is it possible that certain conditions originated in certain places on earth, like how Lyme Disease came from Lyme, CT
7. Anything else that might be relevant?

I wonder what lines would intersect, if any. Anyone interested?

Oct 09, 2015 7:36 AM

Oh! Also:

7. Traumatic injuries
8. Surgeries

Oct 25, 2015 10:47 PM

My mothER has fibromyalgia and I do as well so in my opinion I think it's possible

Oct 28, 2015 7:16 PM

I've been diagnosed with fibro for 3 years I've really had it for 6 it just took 3 years to diagnose, my mother has it, my aunt and a cousin of mine and that's just the people I know about in my family... I've been told it's hereditary by doctors but if that's a proven fact I'm not sure all I know is it seems like every time I turn around someone else in my family has it! I'm terrified for my son when he gets older!!

Oct 28, 2015 7:59 PM

My aunt has fibro ...I was surprised. ...

Oct 29, 2015 4:34 AM

Amoeleblanc that would actually be really interesting to see what would intersect between illnesses!

Oct 29, 2015 10:00 AM

Fibromyalgia, lupus, hypothyroidism, sjogrens RA,, they're all inflammatory processes, autoimmune issues. It stands to reason if one family members has any of these, someone else could also. Like many others my symptoms are exactly like my mother and grandmother's. But fibro was unheard of back then. My grandmother died in '85 at the age of 72; my mom in '99 at the age of 65. I'd love to have had a doctor of today's education examine them back when. Both had diagnosed RA, and my mom OA. Hypothyroidism runs in my family, and so does fibro. I pray my children nor grandchild ever gets any of these. But if they do, at least I'll have experience on how to deal with it. May you all have a blessed day! ๐Ÿ™๐ŸŒผ

Nov 24, 2015 6:34 PM

I have At least four blood members with fibro two who like me also had lupus one who lime me also had RA. Some of my cousin's I don't have much contact with due to distance so it could be higher. My mom had degenerative arthritis.

Nov 24, 2015 8:57 PM

Lorenzo as for me my twin uncles both have it which is my mom's brothers. I dont know of any other direct family members who have it however I do have a cousin who is showing signs of having it but she technically adbopted. I hope this helps you

Nov 24, 2015 9:16 PM

I have fibro, my aunt (on my mom's side) has fibro and lupus, my dad has weird aches and pains that come and go (not fibro but we don't know what it is). I think the predisposition is hereditary not the illness itself.

Nov 24, 2015 11:01 PM

I think there is a heredity factor somewhere, my daughter was diagnosed last year๐Ÿ˜ฐ. I feel so guilty like I did this to her.

Nov 24, 2015 11:03 PM

@lann..I know you may feel that way however it's not your fault. Not at all.

Nov 25, 2015 12:07 AM

Iann4963, please try not to feel guilty. I can tell you that even with a disease that is hereditary, it's NOT your fault that your daughter has been diagnosed with Fibro. You certainly didn't set out to pass on this horrible disease and I am sure your daughter does not blame you. In my family, looking back, my Dad's Brother had RA very badly. I also had other Aunts and Uncles and Cousins that have some form of degenerative arthritis. I never thought anything about it until right now and perhaps it IS hereditary. I don't blame anyone for my condition(s). When my Mother was pregnant with me, she had a blockage from a huge benign tumor in her intestine. She became very ill and the doctors told her that if she didn't have surgery (She was at about 5-1/2 months). That she would lose me and she would die because she was becoming septic. They said with the surgery there was an 80% chance that she would miscarry me and that she would be in ICU for several days afterwards to keep us under observation. (Doctors told her that if I died, there were no worries because she was young (30) and she "could always have another baby" (Real sensitive, right?). At any rate, all went well and I came screaming into the world on November 9, 1965 and the entire Eastern Seaboard had the worst blackout in history. (They must have seen me, said OMG, what the hell is that and shut down all the lights.... LOL!!!) When I was 10 months old, I had bronchitis, was put down for a nap by Mom and I choked on mucus and choked, stopped breathing and turned blue. I was in the NICU for 4 days in an oxygen tent. As I got older (High School), I began to have pains in my knees and was having a lot of pain trying to function. As years went on, other stuff started to happen that caused more and more pain. I don't think that they thought it was nothing more than "growing pains". So, I guess I've really been in pain more than the last 22 years. I'm not sure how I got off on this tangent and I'm sorry... I think I ended up with these diseases that have been causing me chronic and irretractable pain. I pray that your daughter is able to get help and some relief from her pain and you are as well. Please hang in there and try no not blame yourself.
I hope your daughter gets treated and gets relief from her pain as well as you getting relief from your pain as well. I am sending you gentle {{{Hugs}}} for you and your family. ๐Ÿ’•๐Ÿ™๐Ÿป๐ŸŒป

Nov 25, 2015 11:17 AM

I also have genetic health issues going back generations, but don't blame yourself. It probably goes back waaaay further than we could even imagine, because some chronic pain diagnoses don't kill you early, and with a shorter life span, it's possible having pain later in life would just be "normal",and just goes back to unnamed ancestors.

I can't blame my parents for health issues, but also realize that you and your daughter share something that while not enjoyable, might bring you closer, and also that so many of us wish there was support through figuring out our health, limits and bodies.

Having an ill family has given me ideas about what meds do/don't work, what side effects I really need to watch out for, and a group of people to talk to about life (which is really nice as a teen in a school of mostly people without pain).

Nov 25, 2015 2:23 PM

It's so hard not to feel guilty. I look at this beautiful vibrant human being that God gave me and feel so grateful. Then I see her suffering and it's so hard. I love both my kids fiercely, it just sucks. I would rather be in double the pain than see her hurt. Thank you for all your kind words, part of loving deeply means sometimes there is pain. It's part of what makes us human. I wish you all light, love, and a thanksgiving filled with reasons to be thankful

Nov 25, 2015 3:54 PM

Flappys, you forgot one. Endometriosis is also an autoimmune disease that is also hereditary.

Dec 05, 2015 7:19 PM

I'm the only one in my family with fibromyalgia. I'm convinced that my 24 year old daughter has it. So far she hasn't been diagnosed. I pray not.

Oct 20, 2016 10:28 PM

Yes fibromyalgia is a hereditary condition

Oct 20, 2016 11:12 PM

I have DDD, hypothyroidism, endometriosis, OA, severe neuropathy, chronic pain syn. And now fibro. Also allergies & eczema. Chronic sinus infections. My Mother had severe RA & allergies. My Dad had "back trouble" & eczema. Both of my brothers have bad back trouble. They are disabled. No fibro in in them, but autoimmune issues. Dad had rheumatic fever as a child that damaged his โค๏ธ

Nov 04, 2016 10:11 PM

I think it's hereditary my niece has fibromyalgia , another lupus ,I have fibromyalgia my niece's are sister's . There is some link to what don't know

Nov 04, 2016 10:16 PM

From what I've read all autoimmune has a hereditary component. Recessed genes activated somehow. I read somewhere that a child of someone with autoimmune will have a 50% chance of also having it.
I get my fibromyalgia from my mom's side of the family. All of them have some kind of medical issue including lupus ms and parkinsons, except for my 96 year old great grandmother... she is healthier than the rest of us.

Nov 04, 2016 10:21 PM

I can say that once I was diagnosed I found out my uncles have a fibromayalgia also. They suffer in different ways but we have a lot of similar complaints. So I don't k owmif the science backs this up but I do know for me it seems to run in our family.

Nov 04, 2016 10:30 PM

My niece also has ms and my aunt had Parkinson's so there is some link I believe it .

Dec 03, 2016 10:29 PM

I've been told it is genetic and my birth sister and birth mother have it

Dec 06, 2016 11:46 AM

I have it, my mom does too and so does my 2 of my second cousins on my mom's side and they are sisters

Dec 06, 2016 12:34 PM

My sister and I have it and my female cousin. As much pain as my mom had I wouldn't be surprised if she had it.

Dec 07, 2016 1:11 PM

There are many autoimmune illnesses spread across my family, my 10 year old daughter was dx type 1 diabetic this August. I was told the night she was dx that my paternal grandmother had type 1 as well plus on my mums said there are autoimmune on both my grandparents sides.
My son's dad has not long been dx with fibro so I'm hoping that it'll pass him by but being as there's quiet a few on my side I'm not really sure.
Since my nan passed 2 years ago I've lost contact with that side and I can't remember which autoimmune there is.
There's also allergies, hayfever, asthma, IBS and food intolerance's to boot.....is there any hope that we'll have it easy????
The only thing to do is research, take one day at a time and find the blessings and joy in life and to laugh as much as we can to keep up our spirits xx

Apr 19, 2017 8:51 PM

I have been told it's not hereditary, but many people on both sides of my family have fibro. I was diagnosed almost 2 years ago and have had the pain for almost 3.5 years.

Apr 21, 2017 12:25 PM

Fibrowarrior. It's all in your name. We have to be fighters and those who rest as well. Chronic pain is a bitch but each one of us finds their way of dealing with it. We are amazing people aren't we?!

Nov 25, 2017 2:19 PM

It terrifies me that my four year old daughter will inherit it. She already complains about her legs bothering her.

Nov 25, 2017 3:58 PM

My mum has Fibromyalgia, RA, MS, migraines and Essential Thrombocytopenia. Nobody else in her family has had any of these issues, as far back as we could trace which is into the 1700s. My brother has no pain issues. My sister has arthritis in her ankle from shattering it 12 years ago. I have chronic pain that doctors can't seem to diagnose but I am pretty sure I have either Juvenile Idiopathic Arthritis, Ankylogsing Spondylitis, or SLE.

Nov 25, 2017 7:40 PM

I have it. My mom and sister have it. My cousin and uncle have it.

Nov 25, 2017 7:54 PM

My Mum and I both have it. My mum was diagnosed 10 years ago myslef this year. I was told by my doctor that I was hereditary.

Nov 25, 2017 7:56 PM

My grandma had pain issues but no one else

Nov 26, 2017 7:33 AM

I suspect my mom had it. My cousin, sister and I have it.

Nov 26, 2017 9:03 AM

My grandpa on my dads side, my dad and i have it. Three generations right there. My boyfriends grandma and mom have it alothough he doesnt.

Nov 30, 2017 6:44 PM

Yes it is hereditary.

Dec 03, 2017 12:17 PM

Yes it is genetic. Both of my parents had it, and both my brother and I got it pretty young.

Dec 03, 2017 5:07 PM

I thought it was all in my head and also thought I was doing something wrong not enough exaerize

Dec 04, 2017 11:11 AM

I have chonic pain and I am sure my Mother had it, cause I am going through everything she did. But I was not called that 20 years ago.

Dec 05, 2017 11:16 AM

I have been told it is hereditary nor is it autoimune related. Howevere, my cousin and I both have it and asthma and RA run ramped through both sides of my family

Dec 06, 2017 1:36 PM

I have been told by all my doctors it is not hereditary. I come from a big family and no one else has it. I've also done a lot of research on fibro and never read that it is. X

Dec 06, 2017 1:43 PM

I guess we are juyst lucky. We can form our own support group. All kidding aside, it is nice to come from a family that understands what you are facing . The diwn side is they don't let you get away with anything either.

Dec 06, 2017 4:42 PM

I think it's hereditary. It lays dormant until triggered by something tho. I believe my youngest son has it, but he's in denial anyways, he thinks it's all in my head. I just pray my grandkids don't get it

Dec 06, 2017 9:37 PM

I agree. My aunt I were just discussing this. She believes the same thing. We were prone to this and it is triggered by physical trauma or mental stress.

Dec 09, 2017 8:02 PM

My sister and I have both been diagnosed with fibro and Iโ€™m sure if my mom and daughter got checked for it, theyโ€™d be diagnosed too.

Feb 23, 2018 12:38 PM

In Belgium they already did research. And there is proof of possible some DNA relation. Bit mostly with one genaration in between. Mother yes, daughther no, her daughther yes.

Feb 24, 2018 5:02 AM

I have Fibro, diagnosed in 2014 after a couple of year in pain. No one in my family has any of these problems or pain. I do believe that stres and traume trigger this condition, do not know if itโ€™s a dormant gene that gets triggered all I know is the pain and Fibro episodes get worse with stressful situations and trauma. I live in South Africa and the docters know very little and there is no pain clinic nearby.
Is there anybody that can give my feedback on eyes, my eyesight has rapidly worsen and someday I canโ€™t see , because they burn so badly and tears just flow.

Feb 26, 2018 4:09 PM

Sorry to hear of your troubles Fibroffighter. I have fibromyalgia too and my eyes do the same thing...I donโ€™t know if itโ€™s connected or not, I never put the two together. If anyone knows if these two are related please let us know. Thanks

Jul 09, 2018 9:00 AM

I have fibromyalgia and 2 of my cousins but no one else does we are all around the same age also.

Jul 09, 2018 10:37 PM

My mom and I have it she was diagnosed at 36 I was diagnosed at 12

Sep 12, 2018 8:23 PM

My two cousins and their mum have it as well as me

Sep 13, 2018 10:56 AM

I'm concerned my middle child has it, or some form of rheumatology problem. She is constantly complaining of pain in different areas, migraines, she's unable to concentrate for long and she has periods of time when she is in so much pain she can't walk. She was seen by a paediatrician who diagnosed vitamin d deficiency and alopecia. She is very similar to me in the sense that she doesn't like loud noises or bright lights. She's tired a lot despite me putting her to bed at a decent time. I'm taking her to see the GP tomorrow see if he will refer to a rheumatologist.

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