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CatchMyPain Community and Pain Diary App to manage chronic illness

is it just me?

Mar 13, 2015 8:07 PM

I have taken a break on tracking my pain. I still check in all the time to the community board. Don't get me wrong, I'm still hurting every day and I think this is a great app. It was just getting depressing filling it out daily if not 3 to 4 times a day. Having to feel the pain is depressing enough but then having to mark it out and describe it almost makes it worse sometimes. I'm sure I'll start up again soon, just wondering if anyone else feels this way.

Mar 13, 2015 9:46 PM

I do JayS77. Some days, like today is easy with 1 entry. Other days where the pain keeps changing makes it much harder.

Mar 13, 2015 10:21 PM

My depressed feeling has been a bit worse lately. I think it's the fact that I'm finally realizing that there is not a quick fix and things I have always done and taken for granted, I can't do anymore. So maybe taking a break from tracking everything for a bit will hopefully help my mood a bit.

Mar 13, 2015 10:35 PM

JayS77 it's gotten to that point for me also. It seems that the pain hasn't been jumping all over the place. It seems to be redundant to do the same thing over and over. I think I'm just going to do in morning and evening .

Mar 13, 2015 11:27 PM

Jay, that's exactly why I cut back on the pain diagram. Sometimes I go through and load the weather for my migraines or I use the stress, fatigue, happiness icons. And put a super quick note like .. Back stiff, tender on spine pain 5..,no Costco this am. .

I felt like I became too obsessed over the diagrams and it wasn't healthy for ME. I totally understand how for some it is a necessity and also gives them and their docs a good view of their pain and abilities.
I de frequently check the forums. But other than that for me at this point 1-2 a week on the rest is best for me. 😊

Mar 14, 2015 1:07 AM

I noticed I have been generalizing the body chart and making a daily overall how the day went entry in the notes and document anything that changed. Sometimes using the same body chart 3 to 5 days.

Mar 14, 2015 1:30 AM

That is pretty much what I do. I copy the last pain entry. Maybe update a few small things if I have something different going on, but for the most part I just make an entry once a day and take notes on what is different than usual pain or activity wise. Example: today I colored the head and made a note that I had been fighting a bad migraine.

Mar 14, 2015 2:19 AM

Sometimes I just don't have the mental energy to do a full diagram. Sometimes I just draw one aspect. Like maybe I wake up particularly stiff or I have a new level of pain somewhere so I draw that and note that I didn't draw everything.

Mar 14, 2015 8:49 AM

I started cutting back on my updates as well. This crazy weather had me in all sorts of fits. From pain to vertigo and back. Just didn't have the energy to make updates. I wanted to, but it was like my brain was letting me down.

Mar 14, 2015 9:01 AM

Like weezie mentioned, I've only been updating 2x a day; when I get up & go to bed.

Mar 15, 2015 2:30 AM

Jay, yes, I have felt that way myself. I used to track every 12 hours or less and lately have been doing it every 1-1/2 to 2 days. It can get very depressing as you said, feeling the pain and then making ever changing adjustments to my pain chart. There are days the pain is just so overwhelming and the Fibro Fog kicks in and I'm too exhausted to bother. I do, however, always check in to see how you are all doing. I think that giving words of encouragement, sympathy, humor, etc. to help uplift others helps me to not focus on myself and hopefully makes y'all feel a bit better. It makes me feel blessed that when the time happens that I need some help, I have so many wonderful people that come to my aid without hesitation. It's 3:27am and I'm still awake because of my pain levels from the last couple of days. My head hurts so badly right now, it's making me sick. I sure tomorrow I'll be so wiped out, hopefully, I'll get to nap at some point. The saving grace is I don't have any errands to run or anything I have to do... Should be ok. Bless you all!!! 💕

Mar 15, 2015 11:20 AM

I try to use it as a tool- I look for trends that could be related ro my pain. Someday I have 4 charts for one day. I try to not look at it as dwelling on the pain and use it more to see if I did something and my pain went down. Unfortunately the weather seems to have more control than I do. I have noticed I had far less muscle pain and felt better when I take b12 with CoQ10 glad I noted that change, so I can do it again. I also add notes when I try any new med or herb, for me tumeric did nothing. But I had to write it down and review it after I gave it a fair chance. I think it depends on how you look and use the journal. Try changing how you view it and look for good trends.

Mar 16, 2015 7:06 PM

Like most of you, I'm feeling the same. I rarely update, I work on a computer all day with my work and so by the time I have the time to do it I just don't want to bother. I like the forum posts though. I will probably update again soon, I'm hoping it's just a blip at the moment.

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