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Is it normal for fibro pain to stop and start?

Dec 09, 2014 3:38 PM

My pain comes and goes

Dec 09, 2014 4:40 PM

Yes it's normal. Most people with fibromyalgia have a baseline pain, a mild pain that never leaves, and other pains that come and go without reason. For example; the weather is getting warm where I am and then dropping back well below freezing by Saturday, and this weather change is making all my joints ache more than usual and my hands and feet are cold and burning. This extra pain will go away when the weather decides to be more steady and I'll be left with my normal back, neck, shoulder and face pain and the headache that never ends.

Dec 09, 2014 4:45 PM

I suggest checking out some fibromyalgia websites. They will give you a better overall picture. WebMD is out of the USA and they have a lot of info there.

Dec 10, 2014 8:09 AM

Yes- I am at a mild to moderate level all the time. The mild feels more like a light burning or electricity in parts of my body. Also the pain moves around day to day, hour to hour.

Dec 10, 2014 2:59 PM

I agree the weather extremes cause major changes in my pain levels. Right now it's way too cold for the SE. And every part of my body is sending messages quite clearly that I should move to a more neutral climate!

Dec 10, 2014 10:52 PM

Same here. Fall is always a bad time for me. Once the weather evens out it usually eases up a bit. I don't think it's the temperature, but the barometric pressure.

Dec 11, 2014 3:16 AM

Some days I feel good and will do something stupid because I feel good...but I KNOW I will pay for it sooner or later! I use a tens unit to control my pain and I could not live a day without it!!!!! I wear it from the time I get up till I go to bed!!!!!!! I was at a doc apt wit husband...started hurting really bad ad turned the unit higher, which I knew was going to hurt me later and IT DID!!!!!! Heating pad all day and I was back to my Norma pain to where I could just wear my tens unit again!!!! :-) :-) :-)

Dec 11, 2014 7:12 PM

i have been dealing with severe pain for years. there are levels of pain daily hour to hour. wheather is abig factor. the pain never goes away. i am pretty much in pain all the time. i wear a tens unit at times it is mild but when it is severe i have to take my pain meds and lay down.

Jun 19, 2015 9:28 AM

I have a base line too and then there are those flare-ups.

Jun 19, 2015 5:42 PM

My pain levels change for no apparent reason. Pain strikes in various parts of my body before disappearing to appear elsewhere. Pain levels vary from mild to severe.

Jun 23, 2015 4:30 PM

That's the fun of fibro pain... Always a guessing game. I too have a certain baseline of pain that is always there and the variable pains that move around. I also have allodynia. Being cold or something cold touching me is really painful. Paresthesias... Burning, tingling, even itchy sensations in different places at different times. My skin hurts a lot. It is painful to be touched sometimes. Just ache and hurt all over. I am managing now with a primary care physician, a rheumatologist and a psychiatrist. With all working for me, we have arrived at meds that actually let me get some sleep most nights. That is a really big thing for me. But I stink at trying to pace myself and not feeling like I have to do everything!! It is a never-ending struggle. I really like being able to read others' posts. We're all in the same boat. Nice to have a whole community that understands that you can't always see pain.......

Jun 23, 2015 4:34 PM

But it certainly is there.

Jun 23, 2015 4:36 PM

Yes and I find our weather changes to really affect me.B

Jul 09, 2015 3:34 PM

Cold, rain, barometric pressure is a big factor. Mild constant pain, but then pressure changes are definitely not my friend. I fell from a slide back in first grade many years ago, (they are not allowed that big now), I was sent home with parents who did not take me to a doctor. I layed around about 2 days, then was made to get up and act like nothing ever happened. As an adult was told that probably caused my issues. The horror stories of growing up with this and how people treated me still causes nightmares .

Jul 09, 2015 6:45 PM

Yup. Same as they say. An hour with pain only at a four or five is like a mini vacation.

Jul 10, 2015 2:35 AM

I wish I could get an hour with a pain level of a four or a five... I would dance with joy!!! I love with pain levels of 8-8.5/10 on medication. It is a very rare occasion that I can get it lower than that. I've had my medicine changed so many times trying to find a combination that works. There was one medication that helped me a great deal and that was the Actiq Lollipop 1200mcg and I was able to use 8 of them a day for breakthrough pain. When I used that it kept the meds I was on working a bit longer and also helped take away a bit more of the pain. Because they are so expensive ($25k/month) the insurance companies will not cover them any longer. I've not been on them for 8 years. They have only been allowed for RX distribution to cancer patients. I find that sad because our pain is just as real and as bad as several cancer patients suffer with. Hope you feel better.

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