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Is my pain actually bad

Apr 20, 2018 4:30 PM

All my “friends” keep saying I’m exaggerating my pain and there is no need for me to cry over my pain.
So I had a go at them and asked them if they had any pain and they said no. And it’s getting on my flipping nerves because they don’t know what’s it’s like to be in excrutiang pain and being told that you can’t have any medication.i can nearly walk and I’m 12 and they have probably never experienced my pain.
Sorry to rant on, I understand that a lot of you are so much worse than me and this post is pretty much pointless to others.sorry.
Hope you all have had a wonderful day

Apr 20, 2018 4:41 PM

I'm sorry you're in so much pain and your friends don't understand. It's hard for people that don't have pain to understand us that do. Does heat or TENS unit or anything give you a little relief? I'm so sorry you have to deal with this at such a young age. It's hard enough for us old folk.

Apr 20, 2018 5:01 PM

Your post is not pointless. I'm sure many (if not all) of us with chronic pain can relate to how isolating it is. I can relate to how you feel. I was 8 when I started having pain problems. My pain turned into chronic pain when I was 12. My family and doctors kept on telling me to stop faking or that I was exaggerating until last year when I turned 19.

As if living with chronic pain isn't hard enough for all of us with it, it's even harder when we begin to internalize the negative comments of people who don't understand and we begin to question if what we're feeling is actually real.

I hope that as your friends become older and more mature, that they will begin to understand that you're not exaggerating.

Apr 20, 2018 7:08 PM

You know more than anyone what your pain is like and your own tolerance. Pain is no joke and anyone who has never experienced CRPS cannot compare their lack of reference to what you feel. There are plenty of solutions available or there. You just have to find one that works for you. Hope you feel better soon.

Apr 25, 2018 10:36 AM

None of us (or them) can compare pain. It's relative to your experience. My worst could be tolerable to you and your best may be intolerable to me. Experience isn't just a pain scale but a pain history. I have had migraines since I was small....that was my worst pain until childbirth, although pretty close. The shorter nature of each compared to my never-ending fibro pain knocks them down the scale...if that makes sense. It's your reality and if you believe you are in pain you ARE! Only you can quantify it.

I've done a simple demonstration. Have them clasp their hands and with the joint of their thumbs have them bump the breastbone area. Over and over. It doesn't take much force or duration for them to stop from the discomfort. Then you can describe how you can't escape it like they just did. Pretty enlightening. Ignore stupid remarks and judgements if you can.

Apr 25, 2018 4:12 PM

Animal lover no,heat and TENS don’t work

May 09, 2018 8:44 PM

Have you talked with teachers about doing a class project on chronic pain, and on your diagnosis? There is no better teacher than researching and reading. As an old lady, I blog about my diseases. As my family peek at it their attitude has changed. Talk with your parents and school. Several of my friends have told me that their children have educated their class mates on their illnesses. And from them learning about the disease they help the students with a variety of needs.

May 15, 2018 12:13 PM

Zetarlov

That’s actually a really good idea 💡
You are amazing 😉
I will tell my mum about it tonight
And have a talk with my teacher tomorrow if I can

Best wishes
Painat12

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