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Is not knowing why you're in pain better or worse than knowing?

Jan 08, 2015 3:09 AM

Hi All,

Should my faith in medical knowledge of any kind be diminished by so many people not knowing why I am in pain? I'm diagnosed as having 'Chronic Widespread Pain'. Been through so many tests, scans, consultants and alternative therapies I could probably write a book, assuming the left side works well enough to allow me to pick it up! Effectively I get random pain that ranges from 5 to 9 (out of 10) anywhere on the left half of my body. Today the left hand has decided that my leg has had too much attention so far this week and is in a competition to see if it can hurt more than the leg. Unfortunately it can, but the leg is fighting back.

I've been reading the posts from others on this forum and it resonates so well with me and I wish all of you luck and a miracle of medical science if a cure is not currently possible.

A 'warped' sense of humour is my defence mechanism and I'm going to be trying Cognitive Behavioural Therapy (CBT) next. My take on this is - "there's no physical cause of the pain so now tell your mind to stop telling you that your body is in pain." Like I want to be in pain and am telling myself to hurt for the fun :)

Favourite song at the moment is "The Drugs Don't Work" by the Verve. Never fails to bring a smile to my face and pick up my mood a bit. Not sure my drugs are making the pain worse, but it's a close run thing between the side effects and a higher background pain level.

I'll finish by asking you all to never give up - apparently I'm a stubborn so and so, which can be a negative but when breathing hurts, do I have a choice?

Keep smiling!

Jan 08, 2015 8:18 AM

Welcome to our community barnabybear. I can sense your humor and its actually refreshing. My husband and I have learned to laugh at most of my fibro fog moments. Laughter helps, even if its from sarcastic humor. I completely understand what you are saying.

We know our bodies more than anyone else. I know something is at the root cause of my symptoms besides just fibromyalgia, but once any diagnosis (DX) has been given, most doctors brush us off. I can't decide if its because they don't want to be bothered with a chronically ill patient, or if they're afraid they aren't smart enough to figure it out and they don't want us knowing it. Hmmm? Bless you with a good day!

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