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Is this day gonna end...ughh

Feb 09, 2016 12:30 PM

I feel so horrible ..I know I'm not alone. The feeling of helplessness is frustrating. I'm sad frustrated and hungry. Honestly I just want eat. I don't care what it is.. I want to rip this sick heavy she'll off and step out into a lively open fun and fast life. The sun it out but I still feel horrid. Still have a light fever. And just wanted t to sleep.

Feb 09, 2016 12:39 PM

I feel exactly the same way. My body feel like it's weighed down and my legs and back is hurting so bad I can barely walk. And I stay with a low grade temp.

Feb 09, 2016 12:41 PM

I'm sorry you have go through this. I know it hard. Learning how to navigate through days like this I'll never understand. I made myself go out today to get some errands done get meds but I'm exhausted. I feel like I should be doing more doing something but I'm just laying here. Feeling like I weigh a million pounds.

Feb 09, 2016 1:02 PM

Yes, I am watching my niece everyday and it's like hello I would still be working if I could deal with kids. She is very busy and will be 2 on the 26th so just imagine trying to chase her down when our body feels so weighed down. And the only thing for pain is tramodol and it doesn't work for me. I just started plaquenil so add a bad headache and naseua.

Feb 09, 2016 1:07 PM

I'm on tramadol too and yes it offers minimal relief. I've got my elderly father to look after although mom is here and she does most of his Dr visit because I can't handle lifting him. But I do the cooking and shopping for the family and yes .I was a teacher for 9 yrs a d a nanny for 6 and I know how hard it is to tend for a child with a healthy body. Trying to do it now. Oh LORD.... I wish the LORD could open these Dr eyes so they can see how much pain we r in a d give something to help us live our lives.

Feb 09, 2016 3:24 PM

It feels good to know I'm not alone or crazy.

Feb 09, 2016 3:25 PM

Oh no..your not crazy and we r all here for u.

Feb 09, 2016 3:28 PM

You feeling any better? My aunt called when i was crying said get dressed im bringing you out now normally i shut down say no and continue feeling my pain ..it just shuts us down so hard ..i had a dream last night that i woke and it was so nice no pain than i woke which made my mindset worse..i feel little uplifted now i wish it didnt take so much out of us to get a life!

Feb 09, 2016 3:28 PM

But now i have to take a pain killer :(

Feb 09, 2016 3:31 PM

Oh..yes..I know the feeling. My boyfriend did those things for me but now he is so far away and now having car trouble so hesis stuck there and I'm stuck here. My life is just drs appointment after Dr appointments. I've been trying to drag myself out. Now that I got my car running. It had sat so long the battey died. So I say I have to csr for my car by moving it.ha..lol crazy I know... But its working for now. But today the pain. And the halo fatique is awful.

Feb 09, 2016 3:37 PM

Do you feel better when youre able to go out even when it hurts or am i crazy?

Feb 09, 2016 3:45 PM

No..your not crazy either way...ha.... But yes..I do feel better to a degree.. I don't think I'd be able to do much more or longer times. But I do feel better because at least I tried..at least I showed up to the day.

Feb 09, 2016 3:47 PM

Trying trying trying ! No body understands how gosh darn hard we try..bet they couldnt handle it ..we are seriously warriors..broken down pained sad warriors lol

Feb 09, 2016 3:49 PM

Oh yes..we r.... My mom still don't get it .why I got so upset with her one day. She talked me into getting dressed to go with her to the store a d once I got my shoes on she comes in and says she changed her mind. I darn nesr cussed her out...

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