Since the beginning of September my pain has increased a lot. There was a combination of major stress at the time....
● My 10 year old daughter was dx with type 1 diabetes mid Aug
● I had a work fit assessment with the ESA benefits agency towards the end of Aug and got told I am fit for some work as I can stand, sit, walk and talk (they had even measured the distance from the waiting room to the interview room!), I got 6 points for social anxiety but nothing else was considered (I'm in the process of appealing, I'm waiting for a court date which the citizens advice have said if they're able they will send someone with me the the hearing).
● My ex husband sent a message to people in his messenger contacts and one of them was my cousin (my cousin had unfriended him but not blocked him). The message was sent very early September and went along the lines of....
Hi all, I'm going to go to Sarah-Jane 's mums pub soon and would like to know if anyone would like to join me and we can tell her what a shit person she is and how horrible she is for what she's done to me and the kids. We'll see the kids and say hi to them. She's still after me for money but I'll make sure she won't get anything.
(My phone died a month after that so I don't have the exact wording but it was along those lines)
Since that period my trigeminal neuralgia pain went from a pain level of 3-4 for most days up to a pain level of 9-9.5 for nearly every day since. If I'm lucky a good day now is a pain level of 8.5.
So I think what I would like to know is that 3 months on and still at a very high level of pain where I'm really struggling to function on most days, am I still in a flare or is this my new daily pain level?
I've also got increased joint and muscular pain and my fatigue is almost crippling at times. I'm not sure I can include vertigo to be linked as well because I've always had it on and off for as long as I can remember, especially at stressful times. The same with my tinitus which I've had constantly with no break since I was about 16/17 years old and I'm 37 in February.
I am seeing my GP next Wednesday and my mental health nurse on Thursday where I'll be asking both this same thing and I'll be pushing my GP to actually listen to me about it all and asking her to consider chronic fatigue and/or fibro because this is beyond a joke now It can't all be due to anxiety and depression or PTSD. Am I wrong for thinking this way? I'm just soo tired with all this and I want answers.
I hope you're all having a good day/night with as little pain as possible. Sending you all hugs xxx