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Is this still considered a flare?

Jan 05, 2017 3:02 PM

Since the beginning of September my pain has increased a lot. There was a combination of major stress at the time....

● My 10 year old daughter was dx with type 1 diabetes mid Aug
● I had a work fit assessment with the ESA benefits agency towards the end of Aug and got told I am fit for some work as I can stand, sit, walk and talk (they had even measured the distance from the waiting room to the interview room!), I got 6 points for social anxiety but nothing else was considered (I'm in the process of appealing, I'm waiting for a court date which the citizens advice have said if they're able they will send someone with me the the hearing).
● My ex husband sent a message to people in his messenger contacts and one of them was my cousin (my cousin had unfriended him but not blocked him). The message was sent very early September and went along the lines of....
Hi all, I'm going to go to Sarah-Jane 's mums pub soon and would like to know if anyone would like to join me and we can tell her what a shit person she is and how horrible she is for what she's done to me and the kids. We'll see the kids and say hi to them. She's still after me for money but I'll make sure she won't get anything.
(My phone died a month after that so I don't have the exact wording but it was along those lines)

Since that period my trigeminal neuralgia pain went from a pain level of 3-4 for most days up to a pain level of 9-9.5 for nearly every day since. If I'm lucky a good day now is a pain level of 8.5.

So I think what I would like to know is that 3 months on and still at a very high level of pain where I'm really struggling to function on most days, am I still in a flare or is this my new daily pain level?
I've also got increased joint and muscular pain and my fatigue is almost crippling at times. I'm not sure I can include vertigo to be linked as well because I've always had it on and off for as long as I can remember, especially at stressful times. The same with my tinitus which I've had constantly with no break since I was about 16/17 years old and I'm 37 in February.

I am seeing my GP next Wednesday and my mental health nurse on Thursday where I'll be asking both this same thing and I'll be pushing my GP to actually listen to me about it all and asking her to consider chronic fatigue and/or fibro because this is beyond a joke now It can't all be due to anxiety and depression or PTSD. Am I wrong for thinking this way? I'm just soo tired with all this and I want answers.

I hope you're all having a good day/night with as little pain as possible. Sending you all hugs xxx

Jan 06, 2017 12:53 AM

General practitioner not a good choice_ see a pain management specialist

Jan 06, 2017 3:31 AM

Hi Asm613 I'm under the pain clinic and I cant remember I can't if I'd asked her about it or not but I'll definitely ask her when I see her in February.

Asm613 welcomed to the community, everyone here is very supportive and friendly. We 7uare from all over the globe so sometimes you won't always get a response straight away depending on what time zone they're in. I hope you're having a good day/night xx
Good8

Jan 06, 2017 4:01 PM

Sezzy, it could be long chronic pain due to stress, or you could have something else causing it. A pain specialist is a good idea. I was dx and treated for fibro in 2012, but as my pain kept worsening I pushed for answers. Had my mouth not broken out in ugly patchy rash is no have gotten an oral biopsy that dx sjogrens. Where fibro hurts in the muscles and soft tissues, sjogrens hurts in my joints. The sjogrens treatment of plaquenil took me pain level from #8 to #3-4 daily pain. I'm hoping it's just the stress for you, and especially that the doc can get it under control. Hugs love & prayers! 🙂💕🙏🌸

Jan 06, 2017 9:50 PM

Flappys that is the frustrating part I've talked to my GP, my pain clinic nurse and my mental health nurse and all of them have said that it's unlikely that I have anything other than PTSD, anxiety and depression but everything seems to be getting worse so I'm going to be more pushy with trying to look for more answers. I'm hoping I do get some answers and that it'll be easy to fix or treat.

Thank you for taking timeout of of day to reply to me xxx

Jan 06, 2017 10:59 PM

Sezzy... I think that's one of my biggest pet peeves with doctors. They give you a diagnosis and then every new symptom you have - regardless of what it is - the find a way to cram it into the cubbyhole of your diagnosis. I hate seeing doctors who know my medical history. Everything is just chalked up to being fibromyalgia related and nothing is taken serious.

We just have to be tenacious with our medical team. Do our research and present them with possibilities.

((( hugs ))) somehow in all that we do take time to remind ourselves of the things we have to be grateful for.

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