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It just keeps coming...

Feb 03, 2020 3:19 PM

Emory surgeon's RN called to say the doctor reviewed my last MRI (he ordered late December). And he says I do need surgery again on my neck, due to the pseudoarthroses (non healed fusions) & the many multiple pseudomeningoceles (little ballooned pockets of CSF), from C2- to T2-4. She said it would be a very extensive surgery down my back, with a long hard recovery.

I explained the necessity of full hip rplc in 2 wk & she said for me to give them a call when I have fully recovered, which she said will likely be months away. She said the doctor wants a consult to discuss what he found on the MRI. I laughed sarcastically and said I'd had hip surgery last May that never healed. I told her I will be in touch in a few months.

It was in no way what we expected to hear from that doctor (at the appt in Dec he stated the pseudoarthroses lone was not a reason for further surgery)! From what I've found out the pseudomeningoceles can come from surgery, injections or form spontaneously, and they can cause mild to severe physical & neurological problems.

I cannot seem to get a break & I'm just too tired to deal with anymore. Somebody please push the rewind button quick. Better yet, I need a genie in a bottle πŸ§žβ€β™€οΈ for 3 wishes...1-to be young again, 2-to be healthy again, & 3-to wish for unlimited wishes!
Poof! Oh crap, I just woke up ... such is life πŸ˜” I hope the rest of you are having a better start to the week, hugs love & prayers for all! πŸ’žβ€πŸ™πŸŒ·

Feb 03, 2020 3:29 PM

Hi sorry to here Flappy hug gently I’m deal with still my legs and back . The dr last week said I have thus Arthritis, muscle spasm, and joint pain and lumbar issues and disc degenerate thing.. Oh I have the Fibromyalgia also . He says no surgery for me and no injection Vogt me just pain management. So I’m on Advil , Tylenol and my regular medication... hmmmm if you need to chat let me know ok πŸ‘Œ.... hug Shore πŸ™πŸ™πŸŒˆπŸ€—πŸ€—πŸ€—β€οΈ I’ll pray for you and your family ... poof ,here you go more rest and medication))))) ......

Feb 03, 2020 4:51 PM

Lol, thank you Shore! You made me laughπŸ€—. I have all those things too, which is why having another surgery issue is overwhelming. I can deal with the day to day chronic issues I've had for 3 decades. But when they start throwing new surgical issues at me on something else before I can get another surgery done & over, yeah it gets frustrating. From what I read on the pseudomeningoceles symptoms are what I've had gong on.

Feb 03, 2020 7:18 PM

I'm sorry FlappysLady81 that they called you with bad news. I'm praying for you that everything goes smoothly on the 18th. I would give anything for this constant pain to go away.

Feb 03, 2020 7:37 PM

Aww I'm so sorry! That's horrible! I know everything will be okay though, like you've told me before. Remember, if you were to hit the rewind button you'd have to go through all of your worst days all over again. You've made so much progress, why restart now? You'll have bad days, but you'll also have good. Today definitely counts in the sucky category :(
Stay strong. I know that's easier said than done, but you've been doing this for a long time. I KNOW this wont bring you down. Nothing will. You've got this, okay? We're all rooting for you, let's kick this thing's a**! (Excuse my language)
You can do this!
-RecentlyFibroFighter

Feb 03, 2020 8:44 PM

AnimalLover2, the timing really sucks, but ironically my hubby has been telling me to call them for days. I appreciate the prayers & positivity from everyone.

RFF, I wasn't thinking of reliving through it...that's why I wished for the genie! Lol πŸ§žβ€β™€οΈ But yeah, there's no magic pill or otherwise to make it go away. And I will get through it, especially having good friends like you all to help me.

When my hubby came home we decided after talking to just put the neck issue aside and focus on my hip right now. I wish I understood why the pain is worsening so rapidly. It's becoming more difficult to dress (pants legs, shoes, socks etc), and now getting in & out of bed or the vehicles; the passenger seat is easier than the driver's side. They have me doing pre-OP exercises, which seems to aggravate the whole leg. But the glute muscle & outer calf muscles are especially painful at the end of every day, just being up moving around, whether I take a minimal 2000 steps a day or over 7000 steps (I Fitbit track to help me stay more mobile). It hurts to lift the leg with or without exercising, and gets worse daily. But with exercises the glutes tighten up so much they seem to be pinching a nerve off down the whole outside & back of the leg, all the way to the ankle & bottom of the foot; burns & stings like neuropathy but add cramped tight muscles in with it. Stretching nor ice helps. I've upped my gabapentin at bedtime because it's worse at night. Could the bone on bone be pinching a nerve in the socket maybe? I see the surgeon for pre-op Thursday & plan to discuss it.

On the upside, my queen adjustable base was delivered today, and the mattress is coming tomorrow. The base was in storage and rather than risk family members getting injured (the thing weighs a lot & needs strong people), or being exposed to sickness (flu & other stuff spreading like crazy in GA), my hubby paid professional movers to deliver it as a surprise...he's so sweet. I can't wait to be able to use it! Maybe being able to elevate my legs some will help. Maybe I'll catch more zzz's too...and dream about that genie! πŸ˜‰ Wishing everyone a good night, or day if you're in the opposite time zone., with hugs love & prayers!πŸ™‚πŸ’žβ€πŸ™πŸŒ·πŸ˜΄πŸ§žβ€β™€οΈ

Feb 04, 2020 10:34 PM

Wow FlappysLady, I’m blown away! I’m glad that you and your hubby decided to focus on your hip surgery and recuperation. I was ticked off to hear that the doctors office knowing that your going to go through major hip surgery would dump that on you. RecentlyFibroFighter was right. NO rewind for you!! Man no body would want to replay what you’ve been through these past few years!
Wow your queen size adjustable bed how wonderful. Hope you will enjoy it.
Well no Genie πŸ§žβ€β™€οΈ or magic pill πŸ’Š just the love πŸ’— of your family and friends will help get you thru it.
The most important magic is within yourself. Your ability to rise above tragedy, face reality head on and the perseverance to see you through all things. Where do you get this magic ? You’ve had it all along β€œyour faith in God and yourself.” Face and overcome one crisis at a time and move on maybe to the next crisis but maybe not. I know what ever crisis your life gives to you as Fibro Fighter said you’ll kick it’s aβ€”πŸ΄! Wishing you the best always. Go get um girl you can do this! πŸ§šπŸΌβ€β™‚οΈπŸ™πŸ‘πŸŒΈπŸ’—

Feb 05, 2020 8:38 AM

Painwarrior, you really have a way of saying things that not only make me laugh, but eye-opening reminders that keep me focused. Thank you! Thanks to all of you!

It's so much easier to feel myself sliding into "whoa is me" at times like this, when so much is going on it's overwhelming. Two days ago I realized my sister has been gone a month, but it still feels unreal; I keep expecting a phone call or text from her, or want to make one to her...and it hits me she's gone. I feel like I've even had to put my grief on hold, to deal with everything else.

I just finished getting all my paperwork together last night that my hubby has to fax this morning; on my identity theft that I was made aware of 12/18/19. I worked all day at the computer desk & my hip & head were throbbing by the time I finished. And I still have 8 separate companies I have to notify by letter, providing them the same documents of proof of theft, police report, & my license and ssn card (they dont allow a third party to notify them). These companies prevent anyone from opening bank accounts or utility services, etc, using my info. It's horrible feeling emotionally & personally violated by whoever has done this!

I have 2 preop appts left this week & 3 more next week. And somehow in between I have to do our budget twice before my surgery, since I'm unsure if I'll be sent to in-house therapy or be released to home health therapy: middle of the month bills to pay 15th, & end of the month bills to set up to pay before surgery 18th. My hubby has always left the budget to me; when we married he was just writing checks and paying the overdraft fees from the bank because he couldn't keep up with his balance & they knew he had income coming. I can't live that way having been trained for financial responsibility & career! Lol He gets to do the cooking! Anyway, the stress of all this alone is enough to bear without thinking about the neck issues. My sister is praying for a miracle which would be a true blessing! Sadly, we had hoped to visit 4 very sick elderly aunts & uncles before my surgery, but it's just not looking achievable. My siblings are looking at moving & downsizing, so they're needing the twin beds & other smaller furniture from my Dad's & Stepmom's stuff in storage, and only I & my hubby have key access. So yeah, *sigh**πŸ˜” it's all draining me. But I know my strength comes from God, and He will see me through as always.

But today is my surgeon pre-op, and we are focusing on things we need to cover with him: why my pre-op exercises are worsening the hip & glute pain; my increased pain in general that has me already taking tramadol and additional gabapentin (y'all know my sensitivity to meds & how I hate taking more, & this is unusual for me!); what he's going to prescribe immediately post-OP versus the tramadol after 3-4 weeks (dilaudid given at 5/2019 surgery made me itch & didnt really help the pain, but a pain patch [can't remember name] given for my cervical fusions that was changed weekly worked better); and the lifting restriction & post-op status of my hubby, and if that determines where I'll be discharged to; how long my recovery might take given all the comorbidity factors; what's causing the new onset stiffness & neuropathies of burning & tingly feeling from my hip to toes; if he's willing to prescribe something to counteract the increased Sjogrens/Fibro pain that I know will occur as a result of having to stop the plaquenil (bc of surgical bleeding risk), it'shappened with my last 2 surgeries, and the 5/2019 episode lasted 6 weeks. If any of you have suggestions for other questions please let me know. My appt is at 1pm today.

Hugs love & prayers for everyone's day to be pain tolerable or reduced, and little to no stress, with strength to get through whatever challenges you may face today!πŸ™‚πŸ’žβ€πŸ™πŸŒ·

Feb 06, 2020 11:00 PM

Everybody has those β€œwhoa is me” times when we become self mired in pity. You just pull yourself back up by your bootstraps and move on.
What kind of cretin steals someone’s identity? Boy that irks me to no end. I was in the Internet a couple years ago on a new laptop. I was hacked somehow. They were able to get my one credit card which my local bank called me on and cancelled it immediately. Never returned back on that laptop even though it was scrubbed squeaky clean. Your right FlappysLady it violates you. I do not keep any banking info on my phone and if I purchase something by credit card I enter the info only once and do not store it. It’s sad that some people make a living like that and have no conscience at all. Sorry FlappysLady you didn’t need this extra stress and all the dang paperwork either.
I have to stop my coumadin for a procedure I’m having done next week for the same reason( bleeding/clotting issues) . I hope your body allows you to take whatever meds you will need in order for you to recouperate. I’m a little late for suggesting any questions. Sounds as though you’ve covered all your bases. Wishing you the best and a progressive recovery with great outcomes for you.πŸ™πŸ€—πŸ¦†πŸ¦†πŸ¦†πŸ¦‹ ps: got your ducks in a row πŸ¦†πŸ¦†πŸ¦†Lol couldn’t help it .

Feb 06, 2020 11:09 PM

hi gl pain warrior and hug to all and Flappy . Shore πŸ™πŸ™πŸŒˆπŸ€—

Feb 07, 2020 8:37 PM

Hi Shore, hugs to you too!

Painwarrior, I have no idea where or how they got my info, but it could be from 5 different data breaches that I was notified about. I dont store credit or debit card info on any site either. I hope your procedure goes well, without any complications. I'll be praying for you! πŸ™πŸ™πŸ™

As for my ducks in a row...they got shot, literally! I'd laugh but instead I wanted to cry today...I refuse to give in to it though.
To say I'm stressed is an understatement. Today I got a call from my surgeon's office & I'm being referred to an infectious disease specialist, because my hospital pre-op (yesterday) blood work inflammatory markers came back abnormally high. They want me to see her instead of my normal rheumatologist in case it's something other than a rheumatology influenced inflammation issue. That has me worrying my rheumy doc has missed something, or that it's something really bad. My Dad's family is eat up with various cancers; and my hip socket deteriorated abnormally rapid from May to December, so much so the doctor was very surprised. Im praying this gets under control & doesn't delay my surgery the 18th. I'm in so much pain in my whole leg that I'm taking pain & neuropathy meds I don't generally take at my maximum dose & it's barely helping. My surgeon told me to so I can try to keep my pain reduced. He could see the pain in my face & the fact my BP was high..I'm normally low. I'm getting so frustrated, and I'm so tired, I'm ready to throw my hands up and say why bother fighting. But then I see my hubby who's so supportive, and my daughter who's coming to clean my house tomorrow, and my other daughter's moving to a bigger place right now (waiting for us to come visit), and my grandkids...and they're worth fighting for a better quality life! And I've never been a quitter. I'm just so tired. Hugs love & prayers for your procedure next week, and everyone else!πŸ™‚πŸ’žβ€πŸ™πŸŒ·

Feb 08, 2020 12:28 AM

Oh FlappysLady, I’m so sorry about all that’s going on in your life. Hey, a positive thought πŸ’­ maybe it’s a good thing they found that in your bloodwork. Maybe it will be something they can look into and it will help you in the long run. I can only imagine how frustrating and exhausting all of this has been on you. It’s really wonderful that you have a daughter that can help you out around the house and a supportive husband. They both will be much appreciated in the coming days. Don’t give up my friend. Let’s pray for better days ahead. Remember a rainbow 🌈 always comes after the storm β›ˆ. Better days ahead God willing. I know you definately are NOT a quitter. Just tired πŸ˜“. Sending you gentle hugs {{πŸ€—}}, love πŸ’— prayers πŸ™ and hope πŸ¦‹.

Feb 08, 2020 12:31 AM

Oh as for those shot ducks πŸ¦† πŸ¦†πŸ¦†their gonna slowly mend and fly once again. 🌈

Feb 08, 2020 9:45 PM

Girl you always make me laugh, thanks! It is very tiring for sure. And aswe have all experienced, fighting the unknown is scary, sometimes terrifying. My best friend has RA & had to stop her methotrexate because it was causing abnormal liver labs. Most recently she found herself where I am, with elevated inflammation markers. Sadly her's turned out to be leukemia.😒 She's chosen not to do a bone marrow transplant because of the dangers of the anti-rejection meds. She said at this point in her life she can afford to spend her bad days in bed & try to enjoy her good days. She told me to not stress and just focus on getting better, even if my surgery is delayed. Like you, she said it may be a blessing in disguise, to get a hidden problem dealt with first that might affect my surgery negatively. Having you say basically the same thing makes me see this with a new perspective. But try telling my painful leg that and it might try to kick someone...if only I could lift it high enough!πŸ˜‰ Seems like every day gets more & more painful. Thank you dear friend for your insightful & encouraging words! Hugs love & prayers your weekend is going wellπŸ€—πŸ’žπŸ™πŸŒΊ

Feb 09, 2020 2:28 PM

Your welcome. Take it easy. πŸ˜˜πŸ€—πŸŒΈπŸ™πŸ¦†

Feb 13, 2020 7:42 PM

My oldest sister found a breast lump last Friday, sudden appearance. She saw the doctor on Monday, had a mammogram and ultrasound Tuesday, and was back at the breast specialist office today for a biopsy. The doctor is 80-90% certain it's malignant, and there's a questionable issue with a nearby lymph node. On the Bi-rad score it's a 4+, very vascular abnormal lump, as well as the lymph node being vascular; bled profusely & abnormally during the biopsy per the doctor. The breast lump is over 3 cm and the lymph node just under 2 cm. She goes back for her results the day after my hip replacement, so I can't be with her. πŸ˜ͺπŸ™

Feb 14, 2020 12:39 AM

Oh I’m so sorry FlappysLady. This has to be particularly devastating news for you since the passing of your other sister. How many sisters and brothers do you have? I had 5 sisters and one brother. I now have 3 of us girls left and my baby brother. I will continue to lift not only you but your entire family up in prayer. What is your sisters first name if I can ask? Are you still scheduled for your hip surgery on the 18th of February? Is there any other breast cancer in your family? Take heart ❀️ sweety that you both are in Gods loving healing hands and that’s the best anyone can ask. Sending you gentle {{πŸ€—}}, lots of πŸ’œand of course πŸ™πŸ™πŸ™.πŸ¦‹

Feb 14, 2020 7:45 AM

I'm so sorry to hear about your sister. (((gentle hugs))) You both will be in my prayers.

Feb 14, 2020 7:30 PM

Thank you Painwarrior and AnimalLover2! Prayers are our glue right now. I have a baby sister 54 yo, Katrina is my oldest sister at 65, and our brother is the oldest at 67 this yr; I'm 58 & our sister that passed away just turned 61 in December. I talked with my brother today & he's really struggling hard, thinking he might lose Katrina & me. I told him God has us both & he won't let that happen. My brother's special needs & has pretty much always lived with someone. In 1999 he lost their dog, followed by our grandfather a month later, and our mom passed 4 months after that, leaving him alone. He's very afraid of that happening again. I assured him as best I could that we believe my outcome is going to be much better this time & that we caught Katrina's cancer quickly, hopefully. But whatever happens God will get each of us through it. I just wish I could be with her on Wednesday. Again, thank you all for prayers & support. Hugs love & prayers we all have a restful weekend! πŸ™‚πŸ’žβ€πŸ™πŸŒ·

Feb 18, 2020 6:20 PM

I hope your doing well post-op FlappysLady. Take the pain meds now. You can wean off them later but it’s important you take them so you can relax and heal. Take Care. πŸ˜¬πŸŒΊπŸ€—πŸ˜˜πŸ¦‹πŸ™

Feb 18, 2020 6:22 PM

Ps: please don’t feel pressured to reply. Just want you to know we all love you and are praying for you and your sister. πŸ’œπŸ™

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