Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

It tough to live with pains every day

Jul 03, 2016 7:38 AM

It is so hard to be positive and uplifting for others when you hurt so bad. I find it so hard to keep my false face on when all I want to do is cry because of the pain. What are some of the things that you do to get through the day and be around people?

Jul 03, 2016 7:47 AM

Hi Granny415, I hate to say but the only thing that helps with my chronic pain is my pain meds. I wish I didn't have to take them but I'd be in bed all day or laying on the couch if I didn't have them. Now I fear with all the news about the Feds getting involved in taking these meds away from the Dr's that prescribe them scares the heck out of me. It's not our fault that people with ACUTE Pain abusive them and for people with real pain have to pay the price for it.
I wish you luck in finding some relief.

Jul 03, 2016 8:59 AM

I have to keep moving to be able to move......sounds strange but I know most of you get it. I faithfully do massage and want2Bpainfree, I too hate I depend on them but I'd be toast without pain meds. I think that's why it's sad how pain clinics are run and it's so difficult to get meds even with the proper documentation.

Jul 03, 2016 10:19 AM

Granny, I find it hard to always keep an upbeat attitude as well and I don't always smile when I feel like shit. I do, however, ALWAYS find it easy to uplift others in pain. It takes the focus off of myself. I can empathize and sympathize and always give someone reason to smile even if it's just for a moment. It makes my heart feel joyful and my pain just a bit less if even for that moment. I always try to give of myself even if I don't think I have anything left to give. We all need to know someone has our backs. I love my pain family and I'll be here for all who need me. Sending love, gentle {{{Hugs}}} and prayers that you find some relief in your pain and peace in your heart.💕🙏🏻🌻😊

Jul 03, 2016 7:19 PM

It's people who don't need the meds and sell them, abuse them and otherwise become addicted to them that are causing the issues with pain medication being prescribed to those who need it. I havent heard of any issues with possibly having meds removed here in Canada though.

Personally I just want them to legalize pot once and for all so that I don't have to ask my doc for a green card again. I would like a strain that helps with pain but doesn't get me stoned.

Jul 03, 2016 9:56 PM

It's rough to get what you need. When we do it What you can get by on. I've never heard anyone say they get more meds than they can use. I agree it's the misuse and with how pain mngmt is these day its difficult to think people get away with the things they do. I guess if there's a will there's a way. I'm in Washington State in the US and they have legalized pot here. You know, I've never ever tried it in my life. I've heard it helps. Does it?


Jul 03, 2016 10:12 PM

I am also in pain without my meds. My pain management doctor is trying tageted injections. They weened me off of my weekly pain patch and muscle relaxers. So now i have to take take pills 4x a day and that allows me to get out of bed each day do a little daily house activity or make it to my medical appointments.

Jul 04, 2016 9:42 AM

Teepainter, that's exactly the stuff I don"t understand. I wish I had the ability to be an advocate for pain management. I'm sorry, somewhere in some lab, som mice got it all wrong. I realize the cycle of getting use to jt, then it takes a little more but come on, what about those with all the documentation that get no help at all. Been there, I get it.

Jul 04, 2016 10:05 AM

Hi im in pain constantly and struggle to keep a smile on my face too unfortunately i am also on pain meds but i am also on anti-depressants they help i dont wanna be on them but unfortunately they are needed i hope this helps x

Jul 04, 2016 10:20 AM

Luvmylabmolly, I really wish I could try marijuana to see if it would help me. I haven't smoked since I was in my 20's.. I'm 50 now and I am in pain management where I've signed a contract not to get meds from other doctors, use only one pharmacy and cannot use marijuana or I would be dismissed from the program. I am tested each and every month so there is no time to give it a whirl without risk of getting caught and it's not worth it to me. Years ago I smoked to get high, now I just want to try to lessen the pain. Many say they can get their levels down to a very low level. I've read feeds where folks use CBD oil and it helps their pain. Medical marijuana is legal here in NY as well but my pain clinic is not certified to write the RX or help you get the card. Such is life I guess. {{{Hugs}}}💕🙏🏻🌻😊

Jul 04, 2016 10:58 AM

Alwayzinpain, I too have heard remarkable things about marijuana. I have signed a pain contract with the same stipulations and totally not worth the risk. Pain management has gone crazy the last 10 or 15 years.


Jul 04, 2016 11:03 AM

Luvmylabmolly, it's not pain management that's gone crazy. They have to follow all of the stringent rules that the DEA has put in place to stop the street use and sales of prescription drugs. It's sad for those of us who need them and are not abusing or selling them. They are being watched and monitored and it's really difficult for them as they can lose their license for prescribing too much medication for patients that are not presenting as needing as much in their notes. It makes it hard for both the doctors and the patients. It is what it is. I'm just grateful for what I get and that it takes enough of the edge off to help me function. 💕🙏🏻🌻😊

Jul 04, 2016 12:27 PM

Some very interesting points there guys regarding not being allowed to get prescriptions i e marijuana! yes Alwayzinpain its pain management gone mad.

here in the UK I smoke marajuana and it really does help my nerve pain but I am stoned all the time. Which one gets does get used to. However i would rather do that then walk around like a zombie dependent on opiates.. but i am breaking the law..Mad!!

I to have smoked it in the past to get high, to have fun ect.. alas now its for medication and not for fun. It does chill me out a helps me relax and most importantly sleep.. good luck guys Gx

Jul 06, 2016 11:46 AM

I have to move to keep from being stuff. And I have to rest between activities. It's a hard balance to achieve, and I'm never pain free. Hugs & prayers you'll find ways to cope better, one day at a time! 🙂💕🙏🌼

Ready to start relieving your pain?

Join Community