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It's a bummer

Jun 01, 2017 1:21 AM

I haven't kept up with my pain entries because seeing it is just so depressing and I've developed anxiety from the constant pain and my fiancee doesn't understand100% why it's so depressing. But I can't talk to a shrink because every time I have they've either told my parents everything I said (when I was around 15) or after talking about the weather for 7 minutes they declared me a drug addict and then laughed about me to other doctors in the hospital so nurses would chortle and short when they gave me medicine. How do you deal with this?

Jun 01, 2017 6:27 AM

That is sad and horrible. I deal with them by reminding myself that karma is a bitch!!!! Stay strong & know that we in this chat room totally understand you.

Jun 01, 2017 10:50 AM

Zeeb. I understand. I also don't do my pain journal. It is depression . And I'm sorry those doctors had no right telling your parents anything unless they was worried about you hurting your self or someone else

My daughter is 13 and when she comes home telling me that she talked to her counselor. I make sure she is okay but also remind her she doesn't have to talk to me about it. I am just happy she found a trusting adult in school that she can talk to.

Best of wishes. Sending lots of preyers your way. ((Gentle hugs)) ..

Jun 01, 2017 4:16 PM

Well ive learned others not going through it will not understand & that's ok. I either ignore them or try explaining what it's like. I like emailing my husband short articles I find helpful. Try to keep telling yourself you can get through this. We're always here for you!

Jun 01, 2017 8:32 PM

thank you all so much. I'll try to remember that they don't know what it's(sorry if that's the wrong form of its I always get confused) like being in debilitating pain except the comic shop guy ^^ he always makes sure there's room for my wheelchair and even knows that when I get pale and my cheks flush that I need my bed and meds. We're frieds now and compliments my chair lol

Jun 01, 2017 8:37 PM

Zeeb I am so happy that you got a great friend that can help you and really pays attention to your needs. ☺☺ that's is so awesome to hear .

((Gentle hugs))

Jun 01, 2017 11:19 PM

Yes agreed! Hard to find good friends.

Jun 02, 2017 7:33 PM

I'm sorry for all your going through. With my injuries my wife is my caregiver and has medical proxie over me and I'm 49. She, by law can get all the info about my talks with my therapist. That would be devastating to say the least.

As for your comic shop guy friend. That's great he is there for you. May I sugest you and he check out some art type stores clearance shelves. (not sure were you are but in US like Michaels or Joanns or Hooby Lobby)

The reason I say this is I have a few brain injuries. With what was called "Camp TBI" (Traumatic brain injury) we had boxes of stuff donated from these shelves. We did a thing called "Pimp My Ride" Some people in walkers put the paper Hawaiian grass skirts around them. People in wheelchairs grabbed some of the like very large pipe cleaner like stemed with leaves and a flower on top and wrapped it around there push bars and the flower over hanging so they could see it. I was only on a walking stick at that point and found long 1" wide glitter stickers so ran those up my stick (its been 3 years and still have them!!! People remember me by them!!!)

Anyway I'm babbiling. You two may find things that you may like that cost very little to "pimp your ride" add some fun and happiness to it and create great memories. Just a thought for you to think about...

(or anyone else reading this!!!)

((((gentle hugs)))) & blessings

Jun 03, 2017 10:41 AM

That's awesome! Then it wouldn't feel like a medical device it'd be fun!

Also all three of those stores are within around 3 miles of each other, i never thought of using the store to decorate my chair.

Jun 03, 2017 4:38 PM

Here is my walking stick with my goiter runs on it. I do get a lot of compliments on it and start of a lot of conversations about that and not my medical.

It sounds like your excited and I am for you as well!!! 😆😆😆

Jun 03, 2017 4:48 PM

This is a great friend of mine. I tried to screen capture parts of the video when we were doing "pimp my ride" she had red boa around the back and streamers off her arm rests (out of the picture)

Jun 03, 2017 4:50 PM

Here is the grass Hawaiian skirts I told you about on the walkers!!! 😀😀

Jun 03, 2017 4:53 PM

Here someone putting blue boa and a stared bow on there walker.

Jun 03, 2017 5:09 PM

I wanted to show you some captures from the video to show you. We had great fun. I comment a lot on posts. I feel like sometimes people may think I'm a "know it all" That hurts me a lot inside. I have experienced a lot. And so despritly want to help others.

Here I am (with my head chopped off. Lol) with my great friend in line to register with my walking stick. I was there too!!

I'm sorry if this is wrong to do, proving I was there. I just don't want to feel like a fraud or take something I heard some were else and use it hear calling it my own.

Anyway. I'm here if you ever need to talk Or someone to listen. Just PM me and I will get back to you. Have a blessed day today and always!!!

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