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JHS FM CFS

Apr 05, 2015 11:36 AM

How can you help people to see it?
It seems like people can't just take my word for it or understand it.
How can you get people to understand the perspective that you manage a lot of pain and fatigue symptoms the best you can and use all your energy to be successful, instead of just seeing that you are successful and assuming you can't have done it with symptoms so they can't exist.

Apr 05, 2015 1:52 PM

I don't have an answer for you, wish I did. When you figure it out let me know.

Apr 05, 2015 4:23 PM

I don't understand why people are like that. It's like they think we are faking it so we can get the drugs. Unfortunately what we all have is not something that can be seen. Just keep strong in your faith, it's like I've always told my kids always tell the truth and if they don't belive you, you and God knows and that's all that counts.

Apr 06, 2015 6:26 PM

I wish I did have an answer for that at this point. In the little bit of time I've been dealing with pain, it sometimes feels that people think we are drug seekers. Hell, if I could get through one day and not take a Tylenol, Advil, Vicodin or flexaril for pain, it would be a miracle. My mom sometimes tells me, "just let them walk a mile in your shoes." I said to her at that point, "Mom, if they had to walk a mile in my shoes, they wouldn't be able to walk when they got done."

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