Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Joint pain

Sep 06, 2016 12:06 PM

I know heat and rubs but what else can help with joint pain and some swelling.its odd that some of my joints that hurt don't look swollen but actually looks boney or thin. ( Not really sure how to describe it) my ankles are swollen and weak and I'm lightheaded.
I just can't get a good handle on my symptoms to get a balance on how to manage my day.

Sep 06, 2016 2:23 PM

I have joint pain pretty much everywhere with lupus but there really isn't visual swelling. The doc can feel the swelling though. Do you take anything for pain?

Sep 06, 2016 2:35 PM

I have tramadol but so far it just brings the pain down to low burn and I try to do r flexing because maybe it's stiffness thst making them hurt but that doesn't help much either. I've been wondering if my Lupus status had changed. At last check dr said I had inactive Lupus. Still not sure what that really means.

Sep 06, 2016 2:51 PM

Sorry you're suffering. I'm guessing your lupus isn't inactive. Is there a such thing? The only other thing I could think of is maybe warm water exercise so there's not extra stress on your joints. Tramadol didn't touch the pain for me. I'm on methotrexate, plaquinel, and perocette. It helps some but I still always have pain. I'm surprised you're not on methotrexate and plaquinel. They not only help with pain over time (It does take 3-6 months) they slow down the damage of lupus.

Sep 06, 2016 2:59 PM

Well not 100% sure but I'm still new to most of this and my rheumatologist is new. I've only seen him once but my three months check up is in a few weeks. At the time he says he wanted to do more test before he confirmed anything. I have the rash ( butterfly) and ANA positive but I also have a thyroid disorder and anemic so I suppose he is just covering his bases.. honestly,like most us here I really don't care what I have I just want it fixed or somehow managed so I get out this darn bed. I know u understand how frustrating it is to always have something wrong or some other mysterious symptom.

Sep 06, 2016 3:13 PM

I do. It's constant ambushing. Lupus sucks. For me right it's wicked auras with migraines if I don't take Advil as soon as the Aura starts. The aura alone messes me up for the day. I also struggle to breath a lot. And now my eyes often hurt like I've been punched in them. Grrr..

Sep 06, 2016 3:17 PM

Wow..thsts awful . And OMG is thst or could that be what that pain in my eye is? I've blamed it on fibro. But it is so painful and tender to the touch . I'm having the breathing issue to but I think it's from the swelling which is probably not good but my arms and chest are swelling the last week.

Sep 06, 2016 3:20 PM

Thyroid disease is autoimmune disease and an overlapping one to lupus. Wow I hope your doc gets with the program. Sounds like you could really use some relief. I was diagnosed just 5 months ago, but have had it much longer. The quicker you get on meds to slow the damage the better. Not all Rheumies know much about lupus. If you can find one who knows about it you'll get further.

Sep 06, 2016 3:22 PM

Wow get to a doc sooner then later. Look into sjogrens often overlaps with lupus. It causes dry eyes, mouth, and nose, joint pain and all sorts of other things. It's also autoimmune.

Sep 06, 2016 3:22 PM

Thanks.. yes I need relief like ASAP.. I'll look into it and see I never knew to even check if they specialized or not.

Sep 06, 2016 3:24 PM

Lupus can attack your lungs or any other organs. I wish you all the best. If you're willing keep me updated.

Sep 06, 2016 3:27 PM

Yes of course I will thank you for the information.

Sep 06, 2016 3:31 PM

You're welcome. :)

Ready to start relieving your pain?

Join Community