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Just a bad Month in a great life.

May 03, 2017 3:50 PM

I am trying very hard to stay as positive as I can be. I continue to tell myself what as great life I have had and this is just a road block.

After years of being in back pain (being told it's my weight) a doctor finally performed some tests (MRI's, CT, blood and so on) and discovered I have ankylosing spondylitis. So for just over a year I was on Humira which worked ok but only lasted about a week and the pain would come back do to the inflammation. I also have 3 herniated disks in my next and 1 in my lower back but I managed the pain well and just knew I could do without being into much pain. Knowing my SI joints are already fused and they see my back riddled with arthritis just confirmed the diagnosis.

Well, about 3 weeks again I woke up with my feet, hands arms, wrists, knees well just about everything inflamed and could barely move. Back to the doctor 2 days later and I also have rheumatoid arthritis and having what is called a severe RA flare up. I was placed on what I considered to be the worst drug on earth Methotrexate which caused an ER trip and d-dimmer levels to be elevated, Massive confusion, and all sorts of weird issues.

My doctor now wants me to take this as an injection form as there is no to little side effects via injection. So Friday I go start this. Then in 12 weeks, I will be starting Remicade infusions. I am not sure what to expect with either of these meds now and really wanted to find others opinions. I am also on 30 MG of Percocet but that really only takes the edge off not the full pain away.

Then 2 days ago I received a call from my Mother, my Uncle shot himself in the head. For him, he is in a better place and it has been a rough road of drugs and issues for a while now. For my Mother, it has devastated her. With all my pain I go through I just want to be there for her all day and night but after sitting for an hour in the different waiting rooms I have to stand and walk or the pain comes back to strong which she understands but still breaks my heart. So if you can find it in you to pray for my mother and her suffering please does so.

May 03, 2017 4:34 PM

I am soooo sorry! All of you will definately be in my prayers!🙏

May 03, 2017 5:41 PM

Awww. Im sorry your dealing with a lot right now. Sending lots of preyers your way.. 😊 we are all here for you . Sending prayers for your mom as well.

Very ((gentle hugs))

May 03, 2017 10:57 PM

Praying for you and your family at this difficult time for you and them. Blessings to all.

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