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just a question?

Jan 23, 2015 7:17 PM

So I have seen multiple rheumatologist and a couple of them agree saying I have fibromyalgia. I haven't been dealing with this but for 6 months now so I have been trying to research a lot of what has been going on. My issue is that every thing I get told and read says that you need to keep moving cause moving helps alleviate the pain. Well the more I move and do the worse the pain gets and then the fatigue really sets in. So could it be the fact that it is chronic fatigue syndrome or do others with fibromyalgia have these issues as well? Thanks for your time.

Jan 23, 2015 8:12 PM

Hey! I have pain no matter what, whether I'm moving or not..but I have noticed that I get extreme and horrible pain in my hand when I write or drive. I do not recommend forcing your body to do work when it's in pain. Instead, do it on days you feel good. :)

Jan 23, 2015 8:19 PM

Unfortunately some doctors I know say a lot of the time fibromyalgia is what doctors diagnose when they don't know wtf is wrong with you its a real illness but some docs just use it as a umbrella cover all for unidentifiable pain problems

Jan 23, 2015 8:38 PM

Since August 1st I have not had a day without pain. I do know they keep running test but the last Dr I saw said I had more then 11 markers for fibromyalgia but still no overall help with the pain. They have told me to give the meds sometime to work and then they will go from there. It's just very discouraging some days, especially when I have to tell my 3 year old daughter that daddy hurts to much to pick her up.

Jan 23, 2015 10:26 PM

I have fibromyalgia and I find that if I don't keep moving it gets worse. The key is to not over do it, which is hard. But maybe a 5 minute walk on a flat soft surface would help. Then maybe two or three separate walks in a day. Or up the time by a minute or two. Increase slowly.
It's been 4 years but I went from not able to do much to going to a 60 minute hot yoga class twice a week and a 60 minute light walk/jog on my elliptical on the other days (with some stretching after). I bought an elliptical because I never wanted to make the drive to the gym, and treadmills cause more pain for me and bikes hurt my crotch. I react to the chlorine in pools so I don't swim. Everyone is different though. I know some that feel better with swimming.
I recommend finding something you enjoy and do that. Listen to your body and stop when you start to feel a little tired. Slowly work up to doing more. Rest as needed.
Im repeating myself so I'll stop. Hope you find something that helps.

Jan 23, 2015 10:38 PM

Listen to your body and definitely don't over do it in the beginning but yes, moving helps a lot. Also the exercise helps with depression. Hot baths and pamper yourself a little. Hot tea and a warm blanket. Don't give up!! I've had it 15 years and I do great and all of a sudden I'm in debilitating pain... It comes and goes but you learn to live with it.

Jan 23, 2015 10:53 PM

I agree with the above... I think the key is to start with baby steps. Maybe set a goal of going for a walk three times a week for X number of minutes (5-15) whatever you think won't be stressful. And keep yourself at that goal for whatever number of weeks is necessary till you can do it easier and with less fatigue and then increase by 5 min etc... Maybe you can do some stretching at home also. That's less stressful but real good for you. Most sources will say that swimming or excercising in a pool is great for fibro if you have access to a warm pool.
Pick the time of the day where you feel less worse to start off and plan to do nothing else that day that will stress it.

Jan 24, 2015 12:53 AM

My biggest problem is balance the kind where I pace myself. I have had many bad days where I do not do much. Then on a good day say pain 5-6 I run all over getting groceries.and doing general errands. You know what happens next bed for minimum rwo days. It is best to move those joints everyday but know your limits and take breaks. I suck at limits and pacing.myself. At least I am honest. I do keep a food journal to see if there us anything there are connections. I do not eat hardly anything that is processed, contains sugar,artifical sweeteners or even gluten. I have cut meat down to 10% of my diet. I have found for me CoQ10 (Walmart has a good one that is 28.00 for 90 day supply-ubiquinol) well as liquid B-12 drops uneer my tounge helps me tremendously. I am and Aldo will swear by a very warm bath with about 6-7 cups of Epsom salts. The magnesium helps your muscles and the nervers send the correct pain signals and most Americans are magnesium deficient. Hope something that I added will help you. We have a good group of people here all trying to help one another.

Jan 24, 2015 1:29 PM

All great advice! If I am in a bad flare- I really can't move much. But I do find the more I move around ( with in balance!) the better! I need to balance rest ( mind and body) with movement. Do what feels best for you!

Jan 24, 2015 5:57 PM

JayS77, I have fibromyalgia, osteoarthritis and multiple other conditions that cause pain, with or without exercise. I was exercising 30-50 min/day, 3-5 days a week last summer when I began having breathing problems & leg swelling due to exercises, so now I dont. The past 3 weeks I'm giving out of breath just getting through the grocery store or Walmart. I'm actually bedridden right now because I gave out at Walmart and had 2 asthma attacks. When nothing else bothers me I still hurt all over with the fibro.

Jan 24, 2015 6:36 PM

Thanks for all the tips and advice. Besides the light physical therapy they have me on I am going to try and work on finding the balance, I do over do it.

Jan 29, 2015 4:53 AM

All of those suggestions are great and I will start

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