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Just can’t deal with it !!!!!!!!!!!!!

Mar 14, 2018 3:38 PM

Garythacker I DO NOT want your advice

My legs are getting worse I break down into tears all the time ( including the time I am writing this )

My doctor is never free so I can never see him and tell him it’s getting worse

I’ve been using the RICE method everyday and it’s not working
I have nothing to help and my legs are falling apart

Hope your day has been better than mine

Mar 14, 2018 9:50 PM

Hey if you need to talk, I am here to listen (no advice given, unless asked for).

Mar 15, 2018 2:56 AM

SnoqualmieYeti, I sure hope so

Jun 03, 2018 6:05 AM

@painat12 Before I offer any advice I just want you to know you can private message me if you ever need to talk. I have leg pain myself and I know what it’s like to have it be so bad you end up in tears. My first piece of advice is to see if you can try a medication called Gabapentin, it’s not a narcotic or opioid. It’s used for seizures among other things including chronic pain. I have been on this medication since I was 12 years old. It’s takes a few days to build up in your system before you will be able to tell if it’s working and you may need to have the dose adjusted until the one that works best for you is found. I take 300mg twice a day. I also suggest looking into getting a mobility scooter or even a wheelchair. I use a mobility scooter because I cannot walk long or medium distances or for a long time because my muscles are very weak. I used a wheelchair in the past when I was in middle school after I started taking Gabapentin, we had been going through the process of getting my wheelchair before Gabapentin came into my life. I used my wheelchair at doctors appointments and school. Staying off my legs and feet as much as I could and the Gabapentin helped me immensely. Gabapentin still helps me to this day. It used to be that any walking causes my legs to hurt but when I entered high school it was only when I did A LOT of walking would my legs hurt. My legs constantly hurt before I started the Gabapentin but walking made the pain worse. I’m on a lot of medications now including 3 strong pain medications for severe chronic pain but Gabapentin was the first medication to truly help me to be able to function like a normal human being. I hope this helps you at least a little bit.

Jun 03, 2018 10:05 AM

I was meant to see this post and subject matter. I have the same issues. Pain in my legs. I fell a week ago and hurt my ankles. Then I fell again and rein juried my ankle and leg. I was just crying and asking for relief. I’ve taken Gab before and was on it for awhile. Since my pain didn’t improve my doc took me off and said sometimes it could add to the pain. Today I was frustrated and sad asking why do I have to go through this when I want so much to be active and independent. I have a scooter. I forgot to put it on the charger during the winter so I have to replace the batteries. I don’t like to use it. I want to be normal. I can’t walk distances either. I use a tens unit. That might help you if you haven’t tried it. It seems you’re not alone. That’s what helps me by coming on here and reading these post. Yours today. I considered doubling up on pain pills today to try to fell better so I can do some yard and house work. Your post was no accident. Thank you for sharing. Thank you all for sharing. It helps to communicate with others going through the same thing as I am. Thank you.

Jun 06, 2018 7:54 PM

I was meant to see this post. I had been suffering from acute nerve pain to both my legs and at times to all 4 extremities. I have AS, RA, Spinal Stenosis and Psoriasis ( bad) . I had been taking Gabapentin and Plaquinil for a while at 600 mg 2 times a day ( Gabapentin) . Wasn’t working! Was crying every night and taking Percocet more than I wanted to but to no avail. Finally my PCP stated we have to do something about this. Your inflammation is out of control ( no 💩) well anyway he increased the Gabapentin 100% to 800 mg 3 times per day. It made a world of difference. My Rheumatologist also put me on azathiorprine 50 mg day. The nerve med has helped me the most. I’m still having joint arthritis pain but the severe nerve pain has for the most part stopped. Maybe talk to your doctor about putting you on a good dose of Gabapentin it could make a lot of difference like the others also have stated. Good luck we all truly know what kind of pain you are feeling. 🌸

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