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Just diagnosed, fibro help please?

Aug 30, 2016 4:40 PM

Hi I was diagnosed two days ago with bad fibromyalgia and visceral hyperalgesia. I now know finally why I've spent the last 17 years in agony. Thing is its all so new to me, and after a lot of years trialling drugs etc, hormone therapy, etc while they tried to treat my "mystery illness", I'm hesitant to take anything. They want to start me on lyrica this weekend. And have advised I use tramadol for pain relief. Oh and exercise of course! Any advice would be greatly appreciated, as the drs thought all these years that my endometriosis was the culprit of the pain, so I'm well read on endo but clueless on fibromyalgia etc.

Aug 30, 2016 5:54 PM

Fibro and food intolerances go together. If you can find your food triggers and stop consuming them your pain will be more managable. The common ones seem to be sugar and processed foods. Gluten is also high in the list but it isn't one of my food problems, eggs bother me and dairy.
It's one large experiment to see what your body does and doesn't like.
There are a few threads on fibro. And several on pain relievers. I think one thread is 'best pain relievers no drugs' but i could be mistaken on the title.

Aug 30, 2016 6:45 PM

I am currently gluten free :) its made a difference to bloating and tummy aches. Have yet to go back and figure out what else is causing inflammation etc in my diet. Thanks. I'm lucky that dairy is OK, but processed foods. Yeah. They are rotten on health

Aug 30, 2016 7:00 PM

There is so much to learn and read about Fibromyalgia it is a very confusing condition with so many symptoms and it affects everyone so differently! Do your research Google fibro the more you know about it the better you can understand your symptoms and the condition itself! Also if you want to research Lyrica just go to ask a patient.com I always use that website but remember you will see a lot of negative because this medication doesn't work for everybody! If it works some people swear by it!! But if anything helps manage pain I would swear by it too. Unfortunately you will probably have to try different medications and maybe a combination of medications to find what's best for you! If you have any questions just ask away.. we are not doctors but have the best first hand experience with Fibromyalgia!

Aug 30, 2016 8:20 PM

Fibro is definitely different for everyone, and the med combo that will work is going to be different for everyone too. I was diagnosed almost 10 years ago, and right when I think I have my meds, diet, exercise down, my fibromyalgia throws another symptom in, or my body stops responding, so I have to figure it all out again. Don't be discouraged though. It will take time, but the most helpful thing you can do, along with the research, is keep a journal of your everyday life with fibro. Write down what you eat, your stress levels (and what stressed you out), your pain levels (what hurts and what symptoms) exercise, the meds and doses you are on,and even the weather that day. Then you can go back and see what are your good and bad days and make minor adjustments until you feel the best you can. Hope this helps a bit!

Aug 30, 2016 8:31 PM

I have yet to find a diagnosis but I have been put on tramadol until my first doctor appointment here in Indiana. My (soon to be) mother in law gave me the advice to take stool softeners because tramadol (along with other pain meds) can cause constipation so I definitely encourage taking those. Tramadol doesn't do much for my pain unfortunately but it helps me sleep which is a godsend because my pain keeps me up. I hope this helps!

Aug 30, 2016 11:39 PM

Since you are on the pain meds, which I understand why you would be constipated, been there done that, I have IBS with constipation, I take a probiotic everyday
It took awhile to find the right one that worked, but finally did. If you have to continually take pain meds, I would ask your doctor on what they would suggest, obviously. Hope your appointment goes well and that you get some answers!

Aug 31, 2016 1:48 AM

Hello flower 🌹 so nice to meet u hunni. There are many gorgeous fibro-friends πŸ€— here... along with much helpfull info on triggers of flares...😊 and coping mechanisms for painπŸ€” and recovery... and medications 🐴
I hope u can find πŸ€—support from our growing group 😚 so welcome 😚

Sep 01, 2016 2:31 AM

Its all a bit new and yuck, thanks for all the kind words. Its tough being this sick with a five year old in tow. Exhausting. Oh well, I start lyrica tomorrow night, fingers crossed it makes a difference :)

Sep 01, 2016 2:35 AM

Make sure u fully read the leaflet with it...🐫 so u are aware of the side effects hunni... πŸͺas some people cannot tolerate lyrica.πŸ˜‰ I am on it... πŸ€—so i can tell u... that it makes u stupid for about a week before ur body adjusts to the dose... so give it time ok πŸ€—

Sep 01, 2016 2:44 AM

Hi sooz,
Please be careful with the Lyrica, I know we are all different and respond differently to medication. Lyrica was the first thing they put me on along with tramadol, I was on a very low dose of the lyrica, but it knocked the stuffing right out of me. I felt like I'd been hit by a bus every morning and with a then 9yr old and a 12yr old i couldn't function.
I don't want to scare you, just be mindful of the side effects plus weight gain. I still pop the Tramadol like they're lollies as I'm getting used to them.
Maybe one of the other lovelies here can help too. Take care 😊🌻

Sep 01, 2016 3:00 AM

Hi little to say width all the wonderful advised that the group provided. I could suggest if possible for you to start new medication like Lyrica and those on that line during the weekend to see how you react when hopefully others can help if you get sleepy or anxious, many of the side effects are transitory

Sep 03, 2016 9:42 PM

Welcome to our community family Sooz! I've been fighting fibro since 2007 but wasn't officially dx until 2012. When I first joined the community several others shared fibro info sites with me, so I'll pass them along in case you haven't seen them. Meds are different as well as coping methods; what works for one doesn't work for another. I'm on gabapentin and so far haven't had any bad effects, but I'm also on a low dose, specifically for the neuropathies 200-300 mg/ day. And I have tramadol I take during flare ups only. I have lots of med allergies & sensitivities so I limit my meds. I do walking & stretches, after others suggested they help keep muscles & joints limber. It really helps me but if I don't feel up to it then I don't do it. Listening to the signals of when your body is tired, or you've walked to fear, or you need to sit down or take a break; those are things you'll figure out and learn in pacing activities with breaks. I use the drugs.com site to check out my new meds, but I didn't know about the other one; askapatient.com. I've been reducing my sugar intake, and starches, as well as eliminating lactose (intolerance), and I now eat more fresh fruits & veggies, usually in smoothies. That alone helps my IBS-C. Hugs love & prayers as you try various suggestions to find your best coping methods! πŸ™‚πŸ’•πŸ™πŸŒΈ

http://www.fmcpaware.org

Sep 03, 2016 9:44 PM

I came across this one by accident, but I have both fibro & sjogrens, as do others in the community.

http://www.myalgia.com/sjogrens.htm

Sep 03, 2016 9:50 PM

Let me try this one again...

http://www.myalgia.com/sjogrens.htm

Sep 18, 2016 10:12 AM

Thanks for all that great information

Sep 18, 2016 11:01 AM

I have joined a site called my fibro team.

Sep 18, 2016 11:03 AM

Stretching and exercise and food are all key in battling fibro

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