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Just diagnosed today

Mar 04, 2016 6:46 AM

Just diagnosed with fibromyalgia today. Feeling upset, angry, afraid, sad, a bit helpless... I think my husband won't really understand. I fear what he might say or act like I'm just acting up or demanding attention. I kind of been avoiding him so I don't have to tell him, but I guess I should tell him... Any words of advice out there? I need your wisdom.

Mar 04, 2016 8:25 AM

Fisrt off welcome.. I'm glad u found us .you will find we are a fun loving group. Now I would also say don't be afraid. Here you are among friends who understand exactly what u are going through. I suggest that u take your husband with u to your next appointment and have the Dr explain to him how your illness works. In the meantime talk to him, shown him information on fibromyalgia websites etc. I will pray he receives the one well.

Mar 04, 2016 11:47 AM

I'm going to post some links that might help you & your hubby. Hugs, love, & prayers as you adjust and learn methods of coping that work best for you! 🙂💕🙏🌼

http://www.fmcpaware.org

Mar 04, 2016 12:13 PM

Definitely Google "invisible illness" or "invisible disability". There are many great fibro sites that can help explain it what is and isn't.
If he's a reasonable man and he loves you, he should be glad that you at least have a diagnosis even if there is no cure, and be willing to learn about this thing.
It's not fun to have this monster, however over time you learn a little of what can help you specifically, because it does affect everyone in different ways, from pure exhaustion down to severe hangnails!
This app can help you learn what your body is doing, and the people in this community are awesome and understanding

Mar 04, 2016 7:52 PM

Really there is not a good answer. Just talk to him, let him know things will change but you do everything in your power to be the same person. Let him know that some days it will be hard, but with his love and support you and him can make it through.

Mar 05, 2016 3:12 AM

I find it helps if you bring a nonbeliever to a doctors appointment with you... But it has to be a doctor that believes you and takes you seriously.

Myfibroteam is a great app/website and there is also a forum at cortjohnson.org called healthrising that is phenominal when it comes to keeping up with research, patient activism, and community interaction.

Mar 05, 2016 3:17 AM

I forgot to mention, look up spoon theory and have your husband read it. Print out a copy and cary it with you for other family members. Essential fibro/invisible disibility reading.

Mar 05, 2016 3:19 AM

I agree with Shyla. Spoon theory is something every fibromyalgia sufferer learns about pretty fast.

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