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CatchMyPain Community and Pain Diary App to manage chronic illness

Just diagnosed with fibromyalgia

Mar 04, 2016 11:25 AM

As of 2/29 I was diagnosed with fibromyalgia and I'm not sure what to do about it. I've been dealing with this for so long and being told it's all in my head. How do I cope? Where do I go from here?

Mar 04, 2016 11:45 AM

I am so sorry you been told you have fibromyalgia. I also got recently diagnosed in January. Actually I have SjΓΆgren's syndrome, fibromyalgia, and hypothyroidism (cause I have no thyroid) as well as other things that have not been diagnosed. So I know how you are feeling. My health became a problem in 2013 for me. So because of no insurance, I suffer because I can't get my pain controlled. Everyday is like I wonder how much pain I'm going to have to deal with today. Just know we all are going thru what your going thru.
One way to cope is talking to us, you can vent, talk, and get advice. This group has been a God-send for me, they have really reduced my depression. They are the best listeners, and everyone has info on chronic illness and all that comes with it.
Where do you go from here, hopefully you have a good doctor that can start by controlling any pain you have. Ask any question on here because quite a few of us are going or have gone with what you are going through. So even though you received bad news. One thing just know we are here and we are you and you are us. You will be in my prayers.

Mar 04, 2016 12:15 PM

Welcome Zephyr1! I just posted multiple links about fibro or chronic pain, to a post by Fibromonster. Check them out. Hugs & prayers you'll find your method of coping from everyone's suggestions. It takes time to adjust to the dx of any chronic illness, and to grieve the loss of our old lives. But you'll find wonderful support here. πŸ™‚πŸ’•πŸ™πŸŒΌ

Mar 04, 2016 12:19 PM

Hi I am a third generation possibly four as we all think grandma had it too but it was not heard of it in her day mum was the first some twenty years ago plus then my older sister followed by mums sister then a younger step sister by this time the doctors and reach people confirmed that the condition does have genetics links but it still took me few years doctors kept saying it's your age bla bla and just because they have it doesn't mean you have or will get it
Having this app will be a great help in the notes on a pain entry start putting in what you have eaten what medication you've had if you have been working on so then you will see if Meds have worked foods made things worse We are all so different so responded different what good works for one will not always be the same for you I personally don't like taking Meds that have such large amount of side effects so only take a painkiller that suits me I do self ear and hand reflexology and visit a chiropractor from time to time also visit a health spa a few days a week to do Aqua movements and use the hot tum a yearly membership is well worth it And the biggest thing to be is positive take a day at a time if it's a fair day don't push yourself as tomorrow may turn into payback day IE unable to Do hope this helps πŸ’πŸ’πŸ’πŸ’

Mar 04, 2016 12:21 PM

Glad you are here, it is a great group of understanding people, and the app can give you some idea of what your body is doing, so you can learn to give it what it needs.
Right now, get warm and cosy, and look at the Internet links for research on your new self. Know you aren't alone. You can learn what you need to have more good days than bad, how to build your new life by understanding your body.

Mar 04, 2016 1:57 PM

Thanks everyone for the kind words. I've been dealing with migraines for the past ten years coupled with anxiety, depression, fatigue and chronic pain. I cannot work because these issues and I've been told to file for SSDI. I'm scared to death about doing so because it's so hard. I know what I've been struggling with but does the government believe me?

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