Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Just Diagnosed

Jun 18, 2015 8:41 PM

Hello everyone, so glad i foundI this app. I was diagnosed with fibro today, though I'd been suspecting I had it for years. It's nice to get that confirmation.

My pain gets severe when it's cold or rainy out, do you find the same to be true?

I also have PTSD (and depression/anxiety) which I understand can be linked to fibromyalgia. I have a wonderful therapist, I believe she will be able to help me deal with this new diagnosis. Does anyone else have PTSD as well?.

I also have battled with gastrointestinal and severe insomnia issues most of my life (starting both around 6 years old). Is this a part of the fibro, perhaps?

Anyhow, glad to find y'all! :-)

Jun 18, 2015 9:10 PM

I believe years of insomnia can have much to do with Fibro. Anything that has previously really taken a bad toll on your body and wore it down and made the immune system weak. I suffered from PTSD. I feel like I have it under control. There are some good books out there about it. I will send you the title of my favorite one. I don't think it should replace therapy, but it gave me a good understanding on how the trauma begins and how it magnifies. It talks about how things trigger it. I can let you know if you would like.

Jun 18, 2015 11:18 PM

I don't know why but I usually feel better when it's cold and rainy than if it's sunny.
The heat and sun are usually worse,and I get really stiff.
Insomnia and gastrointestinal issues could be from Fibro or something else.

Jun 19, 2015 2:42 AM

Just Read your entry and I feel like you read my journal! So very alike in symptoms, and issues. I am new to this site also, but welcome aboard. Just kn I wing I am not a hypochondriac and reading other entries has helped me communicate better with my dr., and family.

Jun 19, 2015 4:27 AM

I have Autism, Anxiety, Depression, (ex and relapsing) self harm, suicidal thoughts, insomnia and Post Traumatic Stress Disorder like tendancies (I. E. I have acute episodes which is 10/10 pain + muscle spasms and I remember every single one they haunt me in my thoughts)

Jun 19, 2015 4:27 AM

You have very similar pain to me according to the app, it would be lovely to talk with you and exchange tips

Jun 19, 2015 8:10 AM

Welcome Kimmiekins80! IBS issues are part of fibromyalgia. I posted 2 links below that are very informative. Someone else posted another link somewhere, but I can't remember the link or which post it's in. Maybe they'll see this and post it. They're all very helpful. I hope you find this community to be as caring and supportive as I have. There's so much knowledge I've gained from posts by others, or their responses to me. I do have fibromyalgia, and I have many other chronic pain issues. Others here have pointed me in the right direction several times.

I've had fibromyalgia since 2008-2009, but didn't get officially diagnosed until 2012. This year I was diagnosed (dx) with Sjogrens & hypothyroidism, both considered in the autoimmune category. While researching I was surprised to find many common shared symptoms between them and the fibro. I also learned once you get one it raises the risk of another issue. I credit my pain specialist for bringing the most spinal & migraine/headaches relief, my endocrinologist for putting me on the right meds for my thyroid, the rheumatologist for listening and supporting & treating the fibro & sjogrens, and my psych doc for helping me cope while treating my depression, anxiety, and genetic vitamin B deficiency, all without slapping me on meds I don't need as if it's "all in my head." These docs listen and care. I've changed docs when I needed to. Make sure your doctor(s) listens and care.

Occasionally you'll see posts that share enjoyable parts of our life. I like to think of them as the pot of gold at the end of the rainbow, because it helps lift our spirits and make us laugh. But we also rant, cry, ask for help, of whatever we need. We do not judge others or criticize someone's post. Sometimes one posts their way of doing or thinking, and another posts may be an opposite way, but it's done with respect.

Welcome again & bless you! 🙏🌼



Jun 19, 2015 11:28 AM

Kimmiekins80, welcome to our community family. I pray you find it as much of a Godsend as I have. Yes, with constant pain, I too suffer anxiety and depression. It's not easy. Take solace in knowing you're not alone. There's always someone here ready and willing to help!!

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