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CatchMyPain Community and Pain Diary App to manage chronic illness

Just looking to talk, fed up with pain.

Jul 14, 2018 4:01 PM

I am 27 years old and have different forms of chronic pain surrounding the right hand part of my brain and right jaw I’ve had the main pain for around 8 years now but the jaw pain has only recently developed. I’ve never wrote on this platform before or anything like this but I’m just fed up of always hurting and doing so in science. I don’t really have anyone to talk to about my pain that can vary so much, outside of the medical profession. I’m really looking for somewhere to just find people who understand.

Jul 14, 2018 5:56 PM

JT have they given you a diagnosis yet? And have you looked it up on FB? I have several friends from support groups that I reach out to.

Jul 14, 2018 11:11 PM

Hi JT, new to this site and if you need to vent about pain, seems this is great place to do so. Sorry you hurt, do you get migraines as well?

Jul 15, 2018 1:44 AM

Hey guys thanks for answering back, when I was 19 I contracted meningitis and that damaged blood vessels and nerves in the right hand side of my brain it has a long Latin name i can now pronounce very well but still cant spell :). I also suffer quite badly from chronic cluster headaches and sinus headaches, so unfortunately about 80% of my day consists of some form of light and sound sensitivity. I get so angry and frustrated all the time now I just don’t want pain to have such an influence over my life. And maybe talking-sharing helps in some way. I would love to hear about other people’s stories because I’ve only ever been able to share this with one other person and she’s gone now so pretty lonely, sad I no but true.

Jul 15, 2018 11:55 AM

This is a great platform. It has helped me a lot to chat with other who have pain. We may have different types of issues diagnoses but sharing is a great release. Welcome and gentle hugs! ...strong hugs hurt. Lol

Jul 15, 2018 12:51 PM

An absolute pleasure to speak to you thank you for for such a beautiful welcome. And gentle hugs back to you 😊

Jul 15, 2018 10:16 PM

Hey JT , I’m sorry your in so much pain, I’m 45 and I have fibromyalgia really bad I have such horrible pain my whole body hurts my right arm I can’t hardly move without pain from elbow to wrist I wear a wrist brace . I have a job as a CNA so I totally feel dead after work. Feel very lonely with this illness no one understands and always hearing oh yeah I get I have a headache or my back hurts too. I love when ppl think I’m lying cuz I don’t look sick, I have a new pain in my chest and it pops

Jul 16, 2018 3:04 AM

Thank you so much for sharing guys it means a great deal to me. And isint that just the most annoying thing not looking sick so it can’t be that bad or yea I had a really bad headache the other day too. But thanks to this platform I really know I’m not alone and neither are you.

Jul 16, 2018 11:20 PM

JThomasMH I’m glad you are here to see that you aren’t alone, I felt the same way too, till I found this community it helps we are all here for one another vent anytime 😊

Jul 17, 2018 8:14 AM

This is the first time I haven’t felt alone thanks to all of you. Thank you guys x

Jul 27, 2018 4:56 PM

You are definitely not alone. We are all in the same pain boat. Glad you found us. If you ever just want to talk just PM me

Aug 02, 2018 2:25 AM

Hey, man. I'm new here too. I've had endometriosis (aka endo) flare ups since I was 9 & I'm in my early 30s now. Some of my internal organs are fused together by scar tissue & I get chronic inflammation. My migraines w/ aura started about 2 yrs ago when my anemia from endo related blood loss got really severe. I've had 4 surgeries for endo, one of which was an emergency surgery for an ovarian torsion.

Having an invisible illness definitely sucks! People can't see that my innards are impersonating a pretzel with super glue poured over them. It took a decade for me to even be diagnosed at 19, which was a relief to finally find out WHY I'm in pain, but also upsetting cuz it took a decade of suffering to finally find a competent doctor.

If you need to talk I'm all ears. I find talking with others really helps so much, but most of my family & friends can barely pronounce endometriosis let alone understand it. This community seems really nice & understanding.

Aug 04, 2018 2:25 PM

hey I'm 18 and though I only had pain for three years it becoming maddening the daily struggle with pain though I have really good days I decided to stop ignoring my pain and join this program as the bad days are becoming worse. I'm trying to find a way to deal with my pain without going to the doctor before I'm at least 30 so I can live my life my way, but who knows what will happen.

Although I'm young and still inexperience I've had a successful wrestling career even after breaking my neck and I've dealt with some excruciating pain (such as wrestling with a broken foot) so if you want to talk I'm always game.

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