I would like to know more about what I'm suffering in terms of lower back pain. Apart from endless medication, countless cortisone injections, radio frequency neuropathy, physical therapy...what is next ? Is it really all about medication there after?
I'm also having conflicting thoughts about the meds I'm on now. Should I be on them if they may be harmful for me in the distant future? If I'm off them I fail to function now, if I use them I'll be unable to function later, or worse, die 10 years earlier. I want to see my kids grow up.
I hope some of you whom had been through so many treatments, is there any light at the end of the tunnel? Some of you have crazy dosage of meds, can you maintain that amount of medication for a long time coming or is it just short term.
Good question Octobot! Six years ago I was only taking asthma maintenance meds. Now I'm on 12 meds, some multiple times, daily. That doesn't include the prn meds or vitamins and herb supplements. My hubby worries about my liver. With the addition of the Plaquenil I'll be getting labs every 2-3 months. My psych runs tests every 2 months on his meds. I often wonder will it be like this the rest of my life. And I do feel my life will be shortened by my health and also genetics. My mom and grandmother died at 65 & 72. I have a lot of the same issues they did. Of course I could live to be older, like my 90s, but if I do I won't be aware of it... fibro fog, dementia and all, Lol! But yeah, i feel like a walking pharmacy! 🙏🌼
Octobot I have had all those plus I've had 7 surgeries on my neck & 3 on my low back & I'll most likely have 2 more on my on my low back. I don't know how old u or but my surgeries started in 2000 when I was in my 40's & I'm still going not very fast but I'm still enjoying my grandkids. So don't give up on watching ur kids or grandkids!
My tummy isn't taking to 99% of the meds we've tried. so I've had to really focus on constant physio supervised gentle excercise and strengthening / stretching and use of cold/heat packs and strapping as required and balanced diet to keep my weight down - when these are all in balance it's manageable but not gone and it's hard work keeping the balance - flare ups often prevent excercise and then I have to start from scratch when it settles - but I don't really have a choice - so when it's a bad day I just spend some time reading through these types of forums to remind me I'm not alone and it could be MUCH worse
Ularoo, due to my numerous allergies and sensitivities to meds there's very little pain relief meds I can take. I've developed a fairly high pain tolerance, unless it involves needles! Lol Like you I am trying to work through the pain. You're not alone, for sure. There are so many people with chronic pain and until I found this community I thought I was abnormal. Though I hate others suffering, I'm glad I have friends who truly understand. 🙏🌼
I'm 35 this year. 4 years going on 5 with daily pain. From an active social life to nothing at all. My meds have only decreased by the various doctors but my pain has only increased. I'm so tired everyday, good days are so few and I don't have any options to change doctors. Small island community here so that's why my options are out of my reach.
Maybe I'm writing this during my flare up causing so much negativety. I've been living like this far too long. I only hope to live a normal life again. In saying that, I don't care about taking all the meds now as long as I'm happy than be miserable for the rest of my life. I want to be remembered for being a lively person, not a hermit who stays at home and cry.
We are so close in age! I just turned 36, but I've had chronic pain since the age of 14. Lucky to have some good years off in there for good behavior or just plain luck itself, otherwise been battling the pain beast the entire time and until 2008 without really any medication except over the counter and the occasional odd prescription from the family Dr who really didn't have a clue what to make of me. I too am flaring really badly, and since this flare has my endometriosis involved I know I'm particularly moody and feeling dramatic (and I use this as an endearment towards myself, I have come to live with the loud boisterous voices of my fears, negativity, and stubbornness but I can recognize they are putting on a show) as I struggle with my day. I can't imagine living on a small island. The thought is terrifying to me. Must be my great American plains upbringing right on the edge of the Rocky Mountains. I need open space and the ability to drive for insanely long distances. I think it is so I feel like I have an escape route.
You are very lucky indeed. I wish I was in a city area, I miss the luxury of doing what I want and when I want lol.
There's no entertainment or even specialists on this island, help is very far indeed. Our population is on about 1800 people including kids. I see my doctors out of business hours as well which makes it hard. I work when I'm feeling bearable, so the higher chance the doctors sees me only when I'm feeling decent. Maybe that's why they don't think I need meds to function at all.