As long as I'm not too mobile I can usually get through my day and sleep better, not so for the past 2 weeks. I've not slept well in over 2 weeks due to various chronic pain issues: hip labral tear, Sjogrens, Fibromyalgia, OA, and spine. Slowly my sleep has decreased in quality & quantity, to the point I'm feeling like a walking zombie, exhausted.
I've been getting medical clearances for my hip surgery on the 14th. And in the past 3 days I've had 2 doctors tell me they suspect my Sjogrens is attacking my joints and spine, and the cause of my lung nodules. Oh yay...not! I'd already suspected the joints being Sjogrens related, because the random ever-changing, painful attacks aren't following RA or OA protocol. And the bloodwork for RA is negative yet positive for inflammation, while the x-rays & MRIs don't show typical OA issues. But inflammation markers are ramped up! First it's my iliac crests hurting, then my tleft humb, then the right ankle, now my left wrist, next my right knee, then let's not forget my right hand fingers, and now it's my elbow...you get the picture. All in the joints, not muscles, but ever changing locations. And each time it attacks an area again, that site pain is worse than the last attack. These painful joints attacks have been going on for over a year, and they don't follow any pattern.
And then walking through the grocery store last night my hip socket popped twice, and by the time I got home I was in a lot of pain. By 1:30 am I still wasn't asleep due to pain all over, not just the hip pain. And today I have to drive to see my stepmom for her birthday (I have the cake so I can't not go). I've drank so much coffee trying to get wide awake and alert...not helping. Our granddaughter is coming for the weekend too, and I'm really not up to it, but she rarely gets to come & is struggling with "becoming a teen" so I don't want to disappoint her. She says our house is her best place to be, her happiest place.
Today I have to stop taking both my baby aspirin (for lower leg vein reflux of blood flow) & the plaquenil for the Sjogrens, because of the upcoming surgery and these meds pose easy bleeding risks. If my fibromyalgia flares up on top of these I don't know how I'm going to get through my surgery & recuperation, as I can't take a lot of pain meds or a high dose of gabapentin. Lord I really need my surgery to go well, to heal quickly, and to be less additional pain than I'm having; and somehow I need to find the strength to get through today... Thanks for listening! Hugs love and prayers everyone has a better weekend!🙂❤🙏🌼