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Just so tired & hurting, looking for a ray of sunshine

May 03, 2019 10:42 AM

As long as I'm not too mobile I can usually get through my day and sleep better, not so for the past 2 weeks. I've not slept well in over 2 weeks due to various chronic pain issues: hip labral tear, Sjogrens, Fibromyalgia, OA, and spine. Slowly my sleep has decreased in quality & quantity, to the point I'm feeling like a walking zombie, exhausted.

I've been getting medical clearances for my hip surgery on the 14th. And in the past 3 days I've had 2 doctors tell me they suspect my Sjogrens is attacking my joints and spine, and the cause of my lung nodules. Oh yay...not! I'd already suspected the joints being Sjogrens related, because the random ever-changing, painful attacks aren't following RA or OA protocol. And the bloodwork for RA is negative yet positive for inflammation, while the x-rays & MRIs don't show typical OA issues. But inflammation markers are ramped up! First it's my iliac crests hurting, then my tleft humb, then the right ankle, now my left wrist, next my right knee, then let's not forget my right hand fingers, and now it's my elbow...you get the picture. All in the joints, not muscles, but ever changing locations. And each time it attacks an area again, that site pain is worse than the last attack. These painful joints attacks have been going on for over a year, and they don't follow any pattern.

And then walking through the grocery store last night my hip socket popped twice, and by the time I got home I was in a lot of pain. By 1:30 am I still wasn't asleep due to pain all over, not just the hip pain. And today I have to drive to see my stepmom for her birthday (I have the cake so I can't not go). I've drank so much coffee trying to get wide awake and alert...not helping. Our granddaughter is coming for the weekend too, and I'm really not up to it, but she rarely gets to come & is struggling with "becoming a teen" so I don't want to disappoint her. She says our house is her best place to be, her happiest place.

Today I have to stop taking both my baby aspirin (for lower leg vein reflux of blood flow) & the plaquenil for the Sjogrens, because of the upcoming surgery and these meds pose easy bleeding risks. If my fibromyalgia flares up on top of these I don't know how I'm going to get through my surgery & recuperation, as I can't take a lot of pain meds or a high dose of gabapentin. Lord I really need my surgery to go well, to heal quickly, and to be less additional pain than I'm having; and somehow I need to find the strength to get through today... Thanks for listening! Hugs love and prayers everyone has a better weekend!πŸ™‚β€πŸ™πŸŒΌ

May 03, 2019 1:32 PM

Hi Flappy Lady I struggle with my pain also . I’m getting another. Injection in my right side two spots I guess and even Lowe, but now I’m in the middle of trying to schedule a person who can drive me there and back from the place.
My fiancΓ© who is just wonderful to me says he will try and schedule his conference call Tuesday the day of another day . He said to me the things you do for those you ❀️ Love🌈🌈🌈🌈🌈. I’m just so lucky I have a fiancΓ© who cares so much for me in every way .
When I hurt it makes me feel better and relaxed 😎. I will pray for you Flappy Lady , I say a prayer πŸ™ fir everyone every night before bed and the. Lords Prayer . I even make prayer cards that help. I even made some for this Sunday for the Bell Choir 13 of them. Oh letting you know my fiancΓ© just called saying he will take me aww, he schedule his fir that Wednesday the next day.
I know now I’m really blessed I really wanted him anyways to be there with me )))
Well I gtg now rest up I hope it goes well for you )) hug gently Shore ya I’m Diane in real )))) πŸ€—πŸ€—β€οΈβ€οΈπŸ™πŸ™πŸ’•

May 03, 2019 4:17 PM

I'm so sorry you're having more pain FlappysLady81. I'll pray you can get some sleep and your pain eases up. I'll ask for prayer for you Sunday and light a candle. I wouldn't know what to do if I got a good nights sleep. It's been years that I have gotten 8 hours of sleep. I usually get about 4 hours. Not because of pain, I just don't sleep. Non of my docs can help at all. I hope you have a good weekend.

May 03, 2019 6:03 PM

I’m so very sorry your in so much pain. Your right it seems to be your Sjogrens attacking your joints. I will be praying for you my friend. I am recouperatung from a bad bladder infection on top of everything else. My Bs, arehigh an I have hyponatrenia ( low sodium) I’m not suppose to drink. Heck I’ve lost 10 pounds. Frankly you sound much worse. I pray you can get some relief from your pain or the ability to cope with it. Be careful my Georgia peach πŸ‘ β€˜s you to zetarlov a lot of badthreatening weather coming your way ( unfortunately.)1 Hang in there FlappysLady there is always a storm before the 🌈.i will continue to pray for you.

May 03, 2019 8:36 PM

Painwarrirvor, nothing in my area. We got a breeze with a few drops is all. My tiny garden on the deck needs a gentle rain. Since I am trying to play farmer Joe I have only caught a total of a gallon of rain water. Everything in pots seems to drink more than in the ground. Lol.

May 04, 2019 5:15 PM

Hi pain and z just letting you know I’m still have my back pain lower right side and middle. I can hardly wait now till Tuesday back injection I get two shots right side.
I have a heat pad on me right now then resting up I have been all day so far. I sat outside with my FiancΓ© this afternoon for an hour half.
I am Sing Sunday noting with the church choir tomorrow and handing out thank you cards I made, to the bell ringers we are have also there are 13 of them.
I like doing them at times.
I hope that you are all have a nice Saturday day . Hugs to all Diane I’ll give up date on back Tuesday as it comes Hug gently Shore ouch oops laterπŸ™πŸ™πŸ€—πŸ€—β€οΈβ€οΈπŸ’•

May 04, 2019 5:19 PM

We’ve been getting a gentle/moderate rain storms all week. Gotta plant our onions and potatoes πŸ₯” πŸ˜‚ we’ve been gardeing/canning for 35 years! This year not as much😞

May 04, 2019 10:59 PM

Painwarrirvor, happy to say we finally got some rain! It got a little loud w thunder but noclose lighting. I was able to collect 3 gallons of rain water. Just today the radishes I put in pots look twice as big. It's the small things today that make me happy enough to cry.

May 04, 2019 11:40 PM

Me to. We should make it a point Zetarlov FlappysLady Weddingshore and all my other friend on this app even on our bleakest day to find something we’re grateful for. It’s there even our our bleakest day...mine today to be able to sit upright on my own🌈

May 05, 2019 9:58 PM

@Shore, thank you for the prayers. I'm glad your fiancee will be able to go to your appt with you. I'll pray your treatment helps much better than last time.

@AnimalLover2, thank you for the prayers & candle. I know what you mean about not knowing what 8 hours of sleep would be like. Before my hip issue I was getting at least one good night sleep in every 3-4 nights, averaging 6 hours, and really that's been my norn for 2 years. The sleep doc said it's my pain causing my sleep deprivation but because I'm so sensitive to meds there's not much else I can do. It also seems the older I get the less I can sleep well. I'll pray that somehow we will all be able to get our circadian rhythm synced for much better sleep!

@Painwarrior, I'm sorry you're having issues with your bladder. I hope it gets better real fast because bladder issues are no joke. My hubby is still having overactive symptoms following his prostatectomy, but it's nothing compared to what you're going through. You take care of yourself, and thanks for the prayers. Our weather wasn't too bad at all here, but Savannah had a tornado. We did get much needed rain even though not enough.

@Zetarlov, I'm jealous over the gardening! πŸ˜‰ I have to share this funny story... The last gardening we attempted was growing potted tomatoes. My hubby looked out the window and a squirrel had taken the largest tomato we had off the vine and was trying to climb a tree with it. The tomato was twice the size of the squirrel's head and as the squirrel started up the tree the tomato weight threw it off balance and he fell backwards off the tree trunk! He kept trying , 3x until he finally gave up. I laughed so hard I couldn't get my breath. My hubby went ballistic and said if we didn't live in the city he would have had squirrel for supper! Lol.

My pain has slightly improved and although it's not as good as if like it to be I'll take it. Sending out hugs love and prayers for everyone to have a good start to a new week! πŸ™‚β€πŸ™πŸŒΌ

May 09, 2019 8:27 AM

Love the squirrel story, I had a dog that would pick them when they were ripe. She picked them and gently played them on the ground, our other dog loved honeysuckle, lol.

May 09, 2019 12:00 PM

Hi up date well flappy my back is now hurting me little again some . I’m ready to give up on it bc, there’s nothing I can do , I have try everything but my fiancΓ© keeps telling me not to give up I’m just frustrated is all on that and other things .
It was just so nice for a couple days that I had no pain I’m just upset it’s all come back I knew that it would .
I am try to even keep positive around my fiancΓ© and everyone.
There is sone relief but not like when I got my shot I was 4 now I went back up to about 6 . Hmmm
I will keep up date everyone hug gently , I have heat pad on that seem to help the most and Tylenol strangely. Anyways later guys Shore πŸ™πŸ™β€οΈβ€οΈπŸŒˆπŸŒˆ

May 09, 2019 12:58 PM

Zetarlov, that it's too cute! We use to pick the honeysuckle, pop the stem off & suck the nectar out. OMG, how I miss those days!

May 09, 2019 1:00 PM

Hey Shore, I'm sorry you're having a rough day. Take the heating pad off, it will inflame the injx site right now. Wait at least 5 days before using a heating pad (it's like treating spraina). I mentioned using ice packs in another thread chat you responded on (15-20 minutes on, 15-20 minutes off cycle). Besides that my doc also told me to limit my activity for 3-5 days and rest frequently. Try and rest more off your feet if you can.

May 09, 2019 2:04 PM

Hi Flappy ty for your response so fast πŸ€— hug. I am doing all that and rest some skid . My fiancΓ© been a big help also even while he is going through his stuff also .I love him so very much .
I hope that I can chat with you when I can that you are there ty much . I’ll try and keep on going which I try and do anyways .
Hug all and Flappy , day will you be on while you are in the hospital to? I’m just wondering. Hug Shore πŸ™πŸ™β€οΈβ€οΈπŸŒˆπŸŒˆ

May 13, 2019 10:00 AM

Love πŸ’— and gentle πŸ€— being sent your way FlappysLady. Easy does it. Prayers πŸ™ being sent to alll including your surgeons hands. β€οΈπŸŒΊπŸ¦‹

May 13, 2019 12:33 PM

No I won't be online after I sign off today, not for a few days at least. But I'll be thinking about you all and pray everyone's week it's as good as possible!
Thanks to you both!! πŸ™‚β€πŸ™πŸŒΌ

May 13, 2019 12:42 PM

Hi gl Flappy for tomorrow I hope you have a safe recovery.
Hug gently I will sure and miss ya . Shore ) πŸ€—πŸ™β€οΈπŸ€— rest up to I’ll pray for you and everyone later

May 13, 2019 5:57 PM

Oh FLAPPYSLADY81, Im so sorry to hear of your ever increasing pain. Its no fun huh? I know. I hope you are in very good & capable hands. And I also hope you have an awesome support system around you. I can't imagine (even with what I suffer) what is happening to you. Seems like your pain is just jumping all over the place & getting worse.
Gosh...I wish you all the very best & I can't wait to hear when your suffering has deceased. We all seem to have your back here Flappysysgirl81. If you ever need a friend, I'm totally here. I'm in Las vegas but, we can always chat. I'm a night owl so, the later the better lol. You can also find me on FB (messenger etc...)@Rain Havok And Ive left my email addy a few places within these conversations
. Trust me, I am forever searching for that ray of sunshine myself β˜€πŸŒžβ˜€πŸŒžβ˜€πŸŒžβ˜€πŸŒž πŸ¦„πŸŒ§πŸŒˆπŸŒ§πŸŒˆβ­πŸ¦‹πŸ₯€πŸŒΉπŸŒΊπŸŒΌπŸŒ·πŸŒ» Try to have a beautiful day.
Sincerely,
Rain Havok

May 13, 2019 6:04 PM

Hi hmm now you are different rain . See I like care things like this . . Sorry to of come off wrong I thought you were saying something different us was all sorry . Hmm 🌈

May 15, 2019 10:21 AM

Thank you RainHavok! I'll update my surgery status on my surgery post. Have a blessed & less painful day, everyone! .πŸ™‚β€πŸ™πŸŒΌ

May 15, 2019 10:38 AM

Hi rain how are you ? I’m doing fine. Later

May 15, 2019 10:39 AM

Flappy, been thinking of you and keeping you in my prayers. Can’t wait to see your update and I pray you are recovering well.

May 15, 2019 10:41 AM

Hi gabby Hug ShoreπŸ€—πŸ™πŸ™πŸŒˆ

May 15, 2019 12:25 PM

Hi Shore! I hope you are having a low pain day!

May 15, 2019 3:23 PM

Hi I’m leaving sorry just go with the app .hug to all πŸŒˆπŸŒˆπŸ™πŸ™πŸ€—πŸ€—

May 15, 2019 3:23 PM

Hey Shore & Gabbylynn, I'm doing fairly ok.

May 15, 2019 3:25 PM

Hi flappy I gtg leave the site some one is saying I’m rude in here and I can’t have this stress on me . But you guys were really nice ty , have a nice one and pain less days hug gently Shore I gtg β€οΈβ€οΈβ€οΈπŸŒˆπŸŒˆπŸ™πŸ™

May 15, 2019 3:26 PM

I’m also glad that you are recovery also from surgery hug gtg now Shore bye sigh πŸ˜”

May 19, 2019 12:31 PM

So glad FlappysLady your doing better each day. Slowly no leaps and bounds. I now have an infection on my right lung. Looks like I’m gonna be in the hospital for a couple more days, I’m glad your surgery didn’t have to be as extensive as they first thought.Sending you πŸ˜˜πŸ€—πŸŒΊ Love to all.

May 23, 2019 6:38 AM

Hi pain and flappy are you out of the hospital yet ? Hug I still have issues with my ears but they are getting better day by day ))))
My back still bothers he .
Now I have another issue menopause, they are going to test he to see if I really am that far on Juge 5 before my back dr appointment. Sigh. I’m 48 . I keep say to young but I guess it the right tine ? Later all Shore πŸ™πŸ™πŸŒˆπŸ€—πŸ€—

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