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Just Venting

Apr 09, 2019 10:12 AM

These last couple of days have been unbearable. My CT’s have come back ( weeks ago) and my spine is deteriorating at a fast pace. My pain use to be bearable with the help of my pain meds and inflammation meds . Not so much now. Where’re most of my pain was 2/3 up my spine affecting my arms and legs, it now incorporates my entire spine, into my ribs and belly, neck and arms more. Waking up in severe pain from muscle spasms to both my legs early in the mornings. Been crying a lot. Some days I wish it was all over. Don’t get me wrong, I’m not suicidal but at this point not sure If I wouldn’t welcome death. For those few with AS and/DDD tell me I’m wrong?... sorry for such dark thoughts. Struggling to stay positive. For all of us who are in this same struggle, may God Bless you and give you the will to continue to fight the fight. Love to all my friends.😘🤗😢

Apr 09, 2019 4:36 PM

Hi I have sciatica pain left side and hurts to have a nice

Apr 09, 2019 8:44 PM

Tonight my back is some sore I take Tylenol and aspercream for it I’m going to the dr follow up may 2 in the morning. I hope it goes good. Have a nice one .

Apr 09, 2019 8:51 PM

WeddingShore200, I know what sciatica pain feels like. I hope your doctor will give you something for your nerve pain. Sending love 💗 and 🤗 hugs to you.

Apr 09, 2019 9:35 PM

Update; Doing better today. Had 6 days in a row with unbearable pain with the last 3 the worst. Going to pain doctor tomorrow. Don’t want to increase my oxycodeine on 5 mg 3 times a day. I take 1/2 pill every 4 hours while awake. With my condition rapidly worsening I want to hold off on increasing it until I absolutely have to. My gabapentin for my nerve pain is at 800mg 3 times a day. I’m on prednisone for inflammation also 3 times a day. In addition taking Azothiorprine 3 times a day ( effects formation of my DNA in some way). Don’t know what else I can do. My insurance won’t pay for nontraditional treatments and my husband and I are both on Medicare so funds are limited for me. Any suggestions anyone? Not able to do yoga,Pilates etc ( poor rom)have so many Dx that I won’t bore you all with them. Just a couple for those who do not know me. DDD, Ankylosing Spondylitis, OA, RA, spinal stenosis, psoriatic arthritis, Parkinsonism, Fibromyalgia,IBD, incontinence of B&B, just to name a few.

Apr 10, 2019 10:10 AM

Painwarrior, I totally understand! At 57 I literally dread even thinking I will possibly live another 25-35 years like I am, especially with everything worsening (like you, and we share a lot of diagnosed problems). I'm a very strong faith Christian and try to not let my faith waver no matter how bad it gets, and I'd never take my own life. But sometimes I'm like, "Lord please don't let me live another 25+ years like this or worse!" Yeah, I do get it!! I'm just coming out of a 2 weeks fibro & Sjogrens flare up, where every muscle and joint hurt more than normal. Then at 3 am this morning I woke to pain in my bad left hip and tailbone area; I couldn't get comfort to go back to sleep. And every step I take cause pain in the hip and tailbone when I walk today. This sucks! But as long as we all have each other to push and pull each other through... We can get through it! Hugs love & prayers to all! 🙂❤🙏🌼

Apr 10, 2019 2:02 PM

Omg ty for that pain warrior )) This could help me to gent hug ty have a nice day )))))🌈🌈🌈🌈🤗🤗🤗🤗🤗

Apr 10, 2019 2:14 PM

Hi btw do you guys ever come on in the middle of the night? Just was asking .have a nice one ty👋👋👋🤗🤗🤗🤗

Apr 10, 2019 6:58 PM

Welcome to the community WeddingShore200. We are from all over USA and world so different time zones.

Apr 10, 2019 7:28 PM

FlappysLady do you ever get muscle spasms to your legs? I’m constantly getting tendinitis like pain behind my left knee. Put cold to it first then will apply heat after 24 hrs, this keeps coming back. I used to get it to my forearms and now am being plagued with it to both my legs. Just wondered.

Apr 10, 2019 7:30 PM

Oh these last couple of weeks especially been having muscle spasms to my feet and lower legs. The tendinitis is a chronic problem

Apr 10, 2019 9:39 PM

Ty Animal Lover you have a nice one to I’m from the USA also central . Hugs to all 🤗🤗

Apr 10, 2019 9:41 PM

Hi when I rest up it some tunes help . I hope that you have s nice night ))

Apr 10, 2019 9:49 PM

Oh btw I do have a rod in my back besides from my scoliosis, I also have ear troubles. I just get frustrated when my pain gets worse .I also have some times heart burn it nuts lol . Hug to all later

Apr 11, 2019 12:03 AM

Wedding shire, with your scoliosis your no stranger to back pain. I’m from PA on the east coast of good old USA. It’s nice to know somewhat our location. Makes it seem more personal. We talk about our mates, children, pets and our physical or emotional pain. Nothing could be more personal than that. For all those who are still up Love heals all. By showing our love and concern for each other we encourage healing of mind, body and spirit. God controls it all. Gentle hugs [[🤗]] to everyone. May you all have a peaceful and as painfree night as possible.

Apr 11, 2019 12:04 AM

Sorry I typed Shore but it came out Wrong. Thanks for everyone’s input.🌺

Apr 11, 2019 6:58 AM

Hi pain ty that’s ok about shore you may call me that 😀😀😀 I did sleep good last night I must of need it . I. Hope that you are doing good looks like I found the right spot to chat about things .)))) ty guys hug gently have a nice day to you to )))

Apr 11, 2019 6:58 AM

Oh here I’ll send you thusto you all 🌈🌈🌈🌈🌈🌸🌸🌸🌸🌸

Apr 11, 2019 1:49 PM

Painwarrior, I do get cramps and spasms in both legs at night. My PCP seems to think it's Restless leg syndrome. I've had bursitis and tendonitis in my upper body and his for years. It seems the more active I am the worse my symptoms. I use baclofen muscle relaxers to help with it.

Apr 11, 2019 2:33 PM

Hi 👋 I just got done clean some of my few things . I put some old clothes I fight need in a bag . I also did other things and that just wear me out. Oh well at least I did something today . I get it them in my toes and ankles and my calf legs 🦵 . Btw as per cream works )) have a nice day do you check often to Lady Hug 🤗

Apr 11, 2019 8:17 PM

Thanks FlappysLady and Weddingshore for your input. Doctor thinks it’s because of my Lumbar stenosis. I have 5 different discs that have collapsed to certain degrees. My Foramina openings have narrowed. Think it’s pinching off nerves to legs. Will try that Aspercream . Have used hot moist towels wrapped with garbage bag. Helps when someone can get it for you. Difficult to do otherwise. I to am plaqued with bursitis of the hip and shoulder along with the chronic tendinitis. Seems to be expected. Was interested if you also get that FlappysLady as we both share a lot of similar conditions. I agree, It sure is painful in your feet and calves. I hope you never get it in the inner thigh... dang feels like your being drawn and quartered ( pulled apart) thank you both for your response. Pray that you both are having a decent day.🦋

Apr 11, 2019 8:41 PM

Hi ty very much, it just seems when I go in there’s nothing they can do but therapy , which I try all the time they say it don’t work hmm 🤔 I just told my fiancé maybe it’s all in my head but I don’t think it is, grr ,
He put as per cream on me tonight it works for awhile. Mine is left hip and feet and inner calf leg. Left. I just want to give up but I don’t you see bc, my Fiancé is going through things also we help each other out... sorry I’m venting hug 🤗 have a nice night Shore 🌈🌈🌈🌈🙏🙏🙏🌹🌹🌹ty though for notice me on)))) Hug to you both to

Apr 11, 2019 9:01 PM

It’s nice to have someone who understands what you are going thru. I’ve been blessed with a husband who is compassionate and patient with me. Especially when I’m having a really bad day and not much is getting done. Tonight he suggested we go out to dinner instead of me cooking because of my having a very bad day.💗 love that man! Hugs to you. Hope your day is going well for you and everyone else.

Apr 11, 2019 9:05 PM

Hi pain nice to see you , yup I have a great fiancé . Hug to you to . I take care of him while he does with me . It is nice to have someone who cares and understand you .Mine wants me to share everything I can ))) 🌷🌷🌷🌷🌈🌈🌈hug to you To night now Shore

Apr 12, 2019 10:02 AM

Painwarrior, wow...I have the foramina issue at C2 & L2-3. My tendinitis has mainly been in my upper body, left elbow & hand. But I'm having pain in the left groin area that feels like a pulled muscle. It's possibly one of my 3 tears in that hip joint area. And it hurts a lot! You're right on the "drawn & quarterd"! Lol I don't know if it's partly due to tendinitis or not, but I'll ask my doc next week.

Apr 12, 2019 8:51 PM

FlappysLady mine is c-2-3 and
T 10-11-12 L1-2-3-4 those have either partially or completely collapsed. My doctor said my body can’t take another surgery. Probably would have to put a Herrington rod in( would be very extensive). Would it help me? Don’t know 🥰 I think that’s where all these muscle spasms etc are going on. Have all of you tried Theraworx ? Here in USA 🇺🇸 it’s been advertised as a muscle relaxer ( foam based) basically potassium sulfate. Just wondered was considering buying it. I buy boxes if lidocaine patches now. Their only 4% instead of 5 but my insurance makes me pay s much larger copay because it’s lidocaine so I just buy a dozen boxes and use them sparingly for my back.

Apr 13, 2019 8:43 AM

I'll have to look into the Theraworx; I've not heard of it. Yeah the doc said mine are collapsing and the OA is building up from the L2-sacrum, and along both sides of the iliac crests. I saw a product of "pastuerized tumeric" at a pharmacy yesterday and almost bought it, to try the inflammation ability. I may get it when I go back next time. Several in here use tumeric I think with good results.

Maybe someday we can quit having deteriorating spine issues and it will all just level out...maybe. 🙂❤🌼🌼

Apr 13, 2019 11:27 AM

Hi guys my back hurts a lot also hmmabout the same I use patches when it really hurts me have not lately. I have a rod down my back it bothers me at times. They are trying to avoidhave surgery on my back to and have therapy or medications. I hope that you two find relief someday soon and me hug gently 🙏🙏🙏🌈🌈🤗🤗🌹🌹oh btw happy Osln Sunday to you two also

Apr 13, 2019 5:50 PM

Hi I hope that everyone is doing fine I am for now.hugs to all night Shore be safe hug gently 🙏🙏🙏💤💤🌈🌈

Apr 13, 2019 10:34 PM

One positive note; Thank God the ice is gonna stop now since spring is in the air! At least one thing we can check ✅ off our list of things we dread ( at least for now...Lol). Have a restful evening I hope without leg spasms 🤞ps: I bought Theraworx today I’ll let you both know how well it works. 😬

Apr 13, 2019 10:37 PM

I pray you both are safe with this run of bad weather we’re experiencing in the country. 🇺🇸💗🌪🌧☔️

Apr 13, 2019 10:39 PM

Sorry, you to Animallover😘💗🌺

Apr 14, 2019 10:37 AM

Weather is a little dicey here right now; one tornado headed toward my siblings and stepmom's areas, and another South of us that may head out way if it holds together. I'm praying they weaken!

Apr 14, 2019 9:32 PM

We just were issued a severe storm warning and a tornado Watch at this point. Itsnow lighteing outside mybedroom and you can hear the rain. It’s 65 out with possible snow can you believe it? Theraworx is helping so far. To bad the Gabapentin isn’t.😞Here’s all hoping you all have a safe and restful evening.

Apr 15, 2019 11:57 AM

Hi pain I hope the weather is better , Hug have a safe and nice 👍 day hug gently Shore 🌈🌈🙏🙏🌹🌹Hi to every one these to

Apr 17, 2019 1:43 PM

It’s been crazy here 2 days ago we had 65 degree temps then the next day the bottom fell out and we had 34 degrees withwicked winds. I mean the kind that just cut thru you. I was coming out of Walmart and it started to sleet/snow! Wow 😮 Love and peace to all.🌺🤗

Apr 17, 2019 3:37 PM

Hi pain lucky I wasn’t out in mine Hmm looks like we can speak to each other I’ll try some time . Have a nice night . Hug 🤗 🙏
🌸🌸🌈🌈

Apr 17, 2019 3:39 PM

Oh nvm just another way so we don’t have to type lol hug later

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