I wanted to start a group for people under 21 who get pain from their senses ex pain from sound,light,smell,touch etc or for people that get sick from things in there environment ex people who get very sick from the slightest of germs etc I have found lots of adults with these types of conditions but not many people in my age group I want to meet more people like me so that we can exchange tips and advice give each other support and talk about what it's like being a kid or teen with these changes
oh I'm 17 and we're not really sure what's wrong with me exactly, but I have a lot of allergic type reactions to environment stuff, perfume soap certain fabrics you get the idea. I get nasty headaches from light and sound stimuli sometimes but the main issue for me is that it will always push me over the edge of whatever other issuies i have going on
The reason that I started the group is because I have a condition called hyperacusis which means that I get pain from the sound although there is a hyperacusis network it's mostly full of just the dogs I've been searching for a group of kids and teens to get chronic pain from sensory stimuli just like myself since I couldn't find one I decided to create one and so I thought then I'll be able to get in contact with people my age who have similar conditions
Hey Jemma, I'm 18 now and have had multiple condition's since birth, even more from the age of 7 and then more still since the age of 14. I will write about them for you if you'd like but I thought I'd say hey and that I hope this time the under 21 group stays active
I think that's a great idea. The challenges teens and young adults face are different from the ones those middle age or older face. Wonder if you created one if there would be a way to link the two together. You could be like a "sister" site. Just rambling here.
That's a good idea Mimikay. I tried doing this a long time ago but it fizzled out. I might try looking for an app that we can use as a group chat like thing for us young adults. Of course we'd still use this app as it's incredibly useful and you all have a wealth of knowledge and kindness but the app would enable the young group to bond a bit more too