Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Knees pain.

Sep 27, 2015 6:30 AM

I'm new here and still searching for a diognoses but at the moment my knees are terrible. (I have many aches and pain but my back and knees are the ones which are really making me suffer) I'm 34 years old and feel like I'm 90. If I have my knees bent for any amount of time they hurt so bad. It wakes me in night. Up and down stairs is very painful and they just ache all day every day. It's really getting me down. Any one have any ideas? I got no inflammation showing in my bloods so they say it's not any type of arthritis. Thyroid is fine. Xxx

Sep 27, 2015 6:32 AM

Just to say I have back and pelvis pain, pain in bum cheeks and legs and random pain I. Fingers, neck arms etc but knees and back are really tiring. I feel exhausted a lot. Xx

Sep 28, 2015 6:43 AM

I got no signs of inflammation in my blood test so they said I don't have any type arthritis. Said I have said sacriolitis and I had spd in all my pregnancy's and I never recovered fully from this but that doesn't answer my head aches or arms aching and feeling heavy or the days where I can just sleep. Neck pain and tandom pains in my hands. Hoping one day I get answers. I suffer with depression and IBS so I just feel totally crap. Sorry, what a moan!!! Xx

Sep 28, 2015 7:13 AM

Have you been tested for thyroid issues? I myself have hypothyroidism and it makes my pain worse, causes severe neuropathy when is not treated and some other very unpleasant side effects.... Anyway i have been meeting more and more people with thyroid issues. And a spike in Hashimato's disease (which i don't remember exactly the symptoms but just a few).
I, too, don't have the inflammatory markers in my blood be some days i feel like everything is swollen and not working correctly. Best of luck to you finding a solution

And don't worry about fussing and complaining, you gotta get it out to people who understand! I have noticed if i don't talk to period who understand, I become life a boiling pot that's not been watched and all of a sudden i just make a huge mess of it all and it gets all over the people closest to me

Sep 28, 2015 7:17 AM

Oops just read thyroid is fine. That's part of Hashimato's (don't know if spelling correctly) and part of just the thyroid in general, it fluctuates. One day your thyroid levels will be fine. The next they can be out of whack. And for the Hashimato's it takes a special doctor to see the signs.

Sometimes I've found that it takes our support groups, our own research, and being our own advocate to get diagnosed correctly. Oh and a doctor who listens and is knowledgeable because things are a'changing in medical science.

Sep 28, 2015 12:47 PM

I have a little of the same symptoms. I can not walk up and down the stairs without my knees hurting. It feels like the ate going to pop out of place. I have pain that radiates from my back to my feet. The doctors say my lower back is definately fibromyalgia, but I have also been diagnosed with arthritis and degenerative disc disease.

Sep 28, 2015 2:45 PM

It could be EDS type 3... Hyper Mobility Syndrome. Are you very bendy in the knees as this could be a big indicator.

Sep 28, 2015 7:11 PM

When I was first Dx. I had severe knee pain so bad I couldn't get off the toilet without severe pain. I was put on Cymbalta and it was a lifesaver for sure. It's not for everyone but it has sure helped me. I. am up to 90mg a day.

Sep 30, 2015 2:52 PM

Aw thank you so much for all your input. I'm flexible but not to the point they are concerned. Only way I can explain knees o's that the knee hurts but the muscle from my thighs feels like I've been to the gym and done a workout. Getting off the loo, stairs and having to squat to get low to pick things off for is so painful. Having knees bent causes extreme pain if in a bent position for a time. Back and coxics is painful also. Just don't know what's going on. Pain going through my whole legs some days
, like today. I really want to keep working as I love my job and worked so hard last year to be qualified so I can work from home as a beatician and nail technician but I'm struggling. Thank you so much for your input. Oh, my arms are week. Drying and straightening my hair is hard work as my arms ache so much. So strange xxx

Sep 30, 2015 3:53 PM

That sounds like nerves getting pinched on you lower back to me. Any trapped nerve in the lower lumbar region of your back can give you all sorts of aches and pains in your hips, thighs, knees and even your feet ! Depending on which nerve it is & where in your back iit is trapped you can even get various symptoms in your fingertips, arms, shoulders and neck. It may be worth mentioning it to your G.P.

Oct 01, 2015 12:23 AM

There are types of arthritis that don't show inflammatory markers. I'm being looked at for sero-negative arthritis. My knees have been problematic since I was a kid but all the doctors just tested my inflammatory markers and sent me away. My current doctor is great and is checking out these other tyes.

Oct 01, 2015 1:04 PM

Thank you for advice 😊 o believe the same as nerves being pinched but doctor is using a xray and mri that is over 2 years old and although I had back pack, I never had all this. Trying to keep eyes open today has been hard. Eyes rolling in my head. So silly xx

Oct 01, 2015 7:35 PM

Familiar symptoms. Sounds like maybe should repeat mri if it's been two years. Gabapentin helped me tremendously. Pain free for almost a week. Pain gradually back today seems to have switched sides in severity. Keep me informed if get any ideas. I'm still waiting on MRI results for myself

Oct 01, 2015 7:35 PM

Familiar symptoms. Sounds like maybe should repeat mri if it's been two years. Gabapentin helped me tremendously. Pain free for almost a week. Pain gradually back today seems to have switched sides in severity. Keep me informed if get any ideas. I'm still waiting on MRI results for myself

Oct 01, 2015 7:36 PM

Sorry my phone is possessed I only sent it once lol

Oct 01, 2015 10:13 PM

Katyhadenough, my first knee pain came two years after a fall directly on my knees, in my 20's, followed by making both knees into the dash of my car in an accident. In my thirties I was diagnosed with chondromalacia of the patella. Now at 53 both knees creak & grind with pain. It's nearly impossible to do stairs anymore. I have developed osteoarthritis all over my body, but my left knee has a large bone spur under the kneecap. They won't do surgery to remove it due to complicating health factors right now. Plus they want me to start exercising and lose 10+ pounds. As you can see, many factors affect my knees. I use ice and heat packs and voltaren gel for the pain. And I've learned not to sit with my knees crossed or other positions that make it hard to stay mobile. Gentle stretches help too. I hope you can get some help to better understanding of why you're hurt and how to cope with it. You're in my thoughts and prayers. 🙏🌼

Oct 03, 2015 4:56 AM

Thank you. I really do need to get them looked at again ad even getting from sitting to standing is very painful. Only thing I can compare it to is simular to doing hundreds of squats, the pain you'd be in the days after is simular to what's in and around my knees. It'd both knees although this started in the right one first and now it's both. Xx

Ready to start relieving your pain?

Join Community