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Knowledge of Spinal Cord Stimulation

Sep 08, 2016 9:21 AM

I posted earlier about SCS treatment but did not receive many responses. Does anyone know of or have experience with SCS?

Making the decision is proving hard for me

Sep 08, 2016 9:43 AM

Hello Pugger, sorry you didn't get many responses... Have you googled them to get some insight???? I have had one for years and it has been revised 5 times and is now sitting broken in my spine. It's a nightmare... Would you like to hear about it???

Sep 11, 2016 8:11 AM

Pugger, my second mom had one and hers slipped out the night she got it in and it took them month's to put it back in and when they finally got it back in it only lasted for about 5 month's before it shorted out on her and it stayed broken in her spine for 2 year's before the insurance company would replace it again and it broke down on her again.

Sep 11, 2016 8:39 AM

I had one for 2.5 years. Unfortunately it did not work for me and I had it removed March 7th. I had 2 revisions in the first 5 months, and then would get sporadic coverage. My company reps and Neurosurgeons gave up and told me there was nothing more they could do. I chose to gave it removed as I'd been diagnosed with a AI disease that requires mri monitoring.

Sep 12, 2016 10:28 AM

I had a trial for an SCS placement. In my specific case, unfortunately it did not work but instead exacerbated my specific pain issues. Additionally, my understanding is that not all insurance companies cover it.

Oct 15, 2016 8:51 AM

Do you know why insurance doesn't cover it?

Oct 15, 2016 9:37 AM

Some insurance companies don't cover DME. You'd have to check your medical plan and see if they do or not. (Sometimes you can get an override but it's not easy since the SCS are now running over $20k).

Oct 15, 2016 10:44 AM

Pugger -
Have you gone through the trial period? Of not then it wouldn't hurt to at least go through that part to give you an idea as to if it would even work for you and what difference it would make on your pain. That would certainly help you make the decision that's best for you.

We each react differently. I have met people it didn't help, others it helped some what and others it have them their lives back.

(((((gentle hugs)))) mine worked wonders for about 2 years. I need to get it recalibrated I think. Especially since my pain has changed since it was implanted.

Oct 15, 2016 10:50 AM

One concern I had when I got mine - and it's still a concern - is that you can't have MRI's while you have an implant. I had a stroke back in 2003 with a frontal bleed. At the time I got the implant they were doing yearly scans of my head. The surgeon did one final one before the surgery and really it wasn't a big issue not being able to get an MRI until last month when a car accident caused my headaches to change and intensify.

So it's a small thing but definitely something to consider if you have health issues where MRI's are important.

Hmmmm... Unless they have finally changed the stimulator so they are compatable with MRI machines. ????

Oct 16, 2016 3:02 AM

Mimikay, they have since come up with new material to use for the stim that allows you to have an MRI. They worked on it because there were several folks that had other issues that needed to be followed by having an annual MRI and the people who had the stim couldn't have them any more. Boston Scientific came up with a wonderful unit that performs well for pain management and also allows the patient to have an MRI. Ask your pain management provider to check into it for you. Good luck. 💕😊

Nov 13, 2016 10:21 AM

@alwayzinpain. Do you mind sharing your journey to get to SCS... reviews are all over the place (50/50)... either it changes someone's life or it is a horror story

Nov 13, 2016 10:22 AM

Is Boston Scientific the best? I see Medtronic and St Jude offer SCS as well

Nov 13, 2016 11:51 PM

I have one in now that was put in as a rush to a diagnosis by my neurologist and said it was THE answer to my problems.......after many months a small adjustments and oof and on and more adjustments, I wish I had NEVER done it. Does nothing but causes me more issues when I am in a flare up as all kinds of swelling happens around it. I have had to Lagerfeld saromas drained that formed around it and that was no fun. We told them by body does not like foreign objects and now I am begging them to remove but with my current situation, lupus in full active disease mode and issues with 3 organs, I am getting push back to not have the surgery. I need it out as I am losing my insurance at the end of this year. I wish I never did it at all. More problems that I didn't need to deal with having my laundry list of other issues. Just my shortened version of my story.

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