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LDN for AS and other auto-immune

Jun 23, 2017 1:01 PM

Do you know of LDN? If you take it, what do you take it for?

Jun 23, 2017 1:21 PM

This is the first time I'm hearing about LDN. I did read "A study done on treating Fibromyalgia pain with LDN showed a 30% reduction in symptoms." And I think that sounds pretty incredible, but I don't have much more to add.

Are you using it or just looking into it? I would be interested in hearing from those who have experience with it.

Jun 23, 2017 1:37 PM

Me as well. Anyone tell us about it?

Jun 23, 2017 2:48 PM

I'm on it. It's a new med and I've taken it for 2 weeks. Some of the side effects I've experienced are weakness and irritability. It does seem to help the pain. I'm hoping the side effects go away the longer I take it.

Jun 24, 2017 7:54 AM

I take it for my fibro. I also have bulging discs in my neck and last year had back surgery. Hoping it helps all of that. 👍

Jun 27, 2017 6:37 PM

Sorry for not answering sooner, I didn't know anyone responded! Yes, I'm actually waiting to try it. Got Rx but the doctor has dropped the ball on helping me get it, it's got to be ordered from a compounding pharmacy. I also probably will have to pay out of pocket since those pharmacies don't accept insurance.
I'm in a Facebook group that is just for LDN if anyone wants to learn more. Lots of testimonies in there.

Jun 27, 2017 6:45 PM

So LDN is low dose naltrexone. It's used, in higher doses (50mg) for alcohol and opioid addiction. If you take opioids it probably isn't for you unless you can ween off of them beforehand. They won't work together. In lower dose, it's not FDA approved so it's hard to get some doctors to Rx it. And then if you can get it, you have to compound it yourself from 50mg dose to smaller doses (.5 and up to 4.5 usually) or find an online pharmacy that will do that for you. It's important to ask what fillers are used, as some fillers will be bothersome to different people. There are a couple preferred pharmacies to get LDN from and I can tell you those later.

Jun 27, 2017 6:48 PM

LDN has been proven to be effective for those with auto immune diseases like RA, bowel disease, lupus, etc.

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